Kick in to Stop Sarcoidosis
 

 

 
 
 


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Sarcoidosis is a potentially fatal inflammatory disease that can affect any organ in the body. Common symptoms include fatigue, fever, weight loss, persistent cough, difficulty breathing, skin rashes and swollen lymph nodes. FSR is the nation’s leading organization dedicated to improving care for patients and to finding a cure for this disease. Since 2000, FSR has worked to position sarcoidosis as a growing problem on the U.S. health care agenda and established itself as the authoritative resource for patients, health professionals and the public.

The following programs were developed in accord with the 2009 FSR Strategic Plan. Each reflects our goals of increasing patient and professional knowledge about sarcoidosis and providing information and support to patients and their families. Without dedicated funds, some of these projects may not be implemented.  Please consider supporting a portion or all of one of these important initiatives.

2009 Programs

FSR Patient Conference
$15,000 Goal - 100% Funded

In March 2009, leading sarcoidosis specialists will gather in Charleston for the 5th International WASOG Conference on Diffuse Lung Disease. In addition to supporting the scientific program for physicians, the Foundation for Sarcoidosis Research is committed to providing patients with access to cutting-edge information about their disease.   Costs include speaker stipends, meeting space and conference materials.  See the Conference Agenda or Order Tickets.
All donations will be acknowledged in the conference materials.
Donate Online Now: $25 | $100 | $250 | $1,000

Sarcoidosis & the Eyes Patient Brochure
$20,000 Goal - 10% Funded
($2000 pledged)
Sarcoidosis most commonly targets the lungs, but the disease can also affect the eyes, a condition called ocular sarcoidosis. Researchers who study sarcoidosis estimate that ocular sarcoidosis affects more than 25 percent of those with the disease. To prevent the most serious complications which can include vision loss, people who have sarcoidosis should discuss being screened for ocular sarcoidosis with their doctors.  FSR hopes to add a new publication on this topic to our library of consumer materials.  Costs include development and distribution.
A dedication page will list contributions over $1000. 
Donate Online Now: $25 | $100 | $250 | $1,000

Spanish Language Patient Brochure - $5,000 Goal
$5,000 Goal - 13% Funded ($675 pledged)
Once thought rare, sarcoidosis is now known to be common. The disease can affect people of any age, race and gender. This brochure would offer critical information, in both English and Spanish to an underserved population of patients.
A dedication page will list contributions over $1000.
Donate Online Now: $25 | $100 | $250 | $1,000

FSR Research Fund
$200,000 Goal

FSR research awards focus on collaborations advance an improved understanding of sarcoidosis and address the causes of the disease, the suffering of patients and the potential for a cure for sarcoidosis.  Grants awarded in 2008 include $100,000 each to researchers at Johns Hopkins and Ohio State to study mechanisms of disease which we hope will lead to better treatments.  If we are to keep pace with this level of funding, we need your help!
Donations at any level will be acknowledged in our annual report.
Donate Online Now: $25 | $100 | $250 | $1,000

 

 

   
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