Foundation for Sarcoidosis Research Staff Members
Ginger Spitzer joined the Foundation of Sarcoidosis Research in September 2012. As Executive Director, she leads the implementation of a new strategic plan to support the Foundation’s mission and to raise vital funds in a cost-effective and time-efficient manner. Building on the Foundation’s previous successes, Ginger leads a comprehensive plan that both highlights and unifies the FSR’s multiple research and education initiatives with the goal of bringing accelerated changes for sarcoidosis patients.
With nearly 25 years of experience in managing non-profit organizational operations, Ginger provides expertise in organizational growth, best practices operations, and funder relations. Her professional endeavors encompass executive management positions for nonprofits with both a service and advocacy mission throughout nationally and globally. She also has held numerous adjunct university teaching positions. She currently is a member of the American Thoracic Society PAR committee, as well as the PAR Awards Committee and the PAR Health Disparities Committee. In addition, she is a member of DIA, a 2015 Fellow of DIA-PEC, and associate editor of the DIA-PEC Newsletter, as well as a member of the Pfizer Rare Disease Advocacy Board, and numerous other professional organizations. Currently she is a PhD candidate at the University of Chicago
Director of Education & Outreach
Kelli Beyer joined the Foundation for Sarcoidosis Research in November 2015. As Director of Education and Outreach, she leads the implementation of educational programming and communication initiatives designed to engage the Foundation’s network of physicians, investigators, and patients. Unified in our collective mission to accelerate research and improve clinical care for sarcoidosis patients, these initiatives have increased awareness for sarcoidosis, empowered patients to take an active role in their treatment plan, and provided invaluable clinical tools and collaborative opportunities to clinicians and investigators.
With nearly 10 years of experience in non-profit management, Kelli offers a proven track record in program development, best practice communications and outreach, advocacy, and stakeholder engagement. Her professional career transverses large and small non-profit organizations, from the U.S. Fund for UNICEF to a small, direct-service non-profit serving families experiencing homelessness in Washington, DC. Having built numerous local and national programs, Kelli is undaunted by entrepreneurial demands or the need to adapt quickly to meet the needs of constituents. She holds a Bachelor’s degree from Loyola University Chicago in Biology with concentration in Spanish Language and Literature. Kelli is also a recipient of the President’s Gold Volunteer Service Award from the President’s Council on Service and Civic Participation, which recognizes her dedication as a lifelong volunteer.
Amy Donatell joined the Foundation for Sarcoidosis Research in March 2016. As the Development Director, where she manages the fundraising for the Foundation to help FSR to be one-step closer to finding a cure. She works closely with third party fundraisers, individual donors and major donors as well as Foundation and Corporate donors. Amy believes that partnerships and collaborations are the key to raising awareness for sarcoidosis and raising the much-needed funds for scientific research.
With nearly 15 years of experience in non-profit management, Amy brings her expertise in donor cultivation, fundraising event management, advocacy, and her commitment to best practices for donor management. Her professional career includes a diverse range of charities and small non-profit organizations. Including WTTW Channel 11, the Peggy Notebaert Nature Museum, Friends of the Parks and the Academy of Nutrition and Dietetics Foundation. She has experience in managing large fundraising events, developing new fundraising revenue streams, and she is always thinking outside of the box on how to improve for next year’s fundraising. She holds a Bachelor’s degree from Loras College in Marketing and is a member of the Association of Fundraising Professionals.
Maggie joined the Foundation for Sarcoidosis Research in 2016. In her time with FSR, she has worked to increase communication with patients and enhance FSR’s online visibility. Active in digital communications, she creates and manages content on FSR’s website as well as social media, regularly working with guest bloggers and other organizations to bring FSR’s online audience fresh and accurate information.
Maggie came to FSR from Kenyon College, with a Bachelor’s degree in Psychology and a minor in Women’s and Gender Studies. She has always been passionate about helping others. In her four years at Kenyon, she was an active volunteer with Transition Mission, a program to help local high school students with developmental disabilities integrate into social situations. She also worked as an employment support mentor at George Mason University’s LIFE Program, a program for high functioning college-aged students with disabilities. Maggie helped her students develop important skills to help them succeed in the workplace and accompanied them to internships on Capitol Hill. At FSR, she enjoys that she’s able to continue this work being an advocate and resource for those who need it.
Lesley began volunteering at FSR in 2012, after her husband was diagnosed with cardiac sarcoidosis. She has experienced first-hand the devastation that sarcoidosis can cause, and became determined to help the fight in eradicating this disease. Lesley quickly became involved in all aspects of the foundation, and subsequently joined on as Outreach Coordinator in 2015. Lesley can be credited with her work in developing the foundation’s extensive Physician and Investigator Directory and Network. This network serves as an invaluable resource for sarcoidosis outreach and communication, in hopes that it will connect sarcoidosis specialists from around the world to advance research and awareness.
Lesley is an accomplished project manager with experience in both public and private education environments. She holds a BA in Psychology from Trinity College in Hartford, Connecticut, as well as an MA in Education. Lesley lives on the north shore of Chicago with her husband and two sons.
Ginger Riessen joined the Foundation for Sarcoidosis in February 2016 as the Foundation’s Accountant. She brings over 16 years of experience as a Certified Public Accountant in Corporate America. She began her career at a Big 4 accounting firm where she held positions as a Risk Management Consultant and Audit Manager. From there, Ginger advanced to serve as an Internal Audit Manager in the mortgage banking industry. As her career progressed, she held the role of Financial Controller at both a well-known national home builder, and at a large national real estate investment trust. In 2014, Ginger left Corporate America to focus more of her time on her family as well as pursue her interest in entrepreneurship and small business financial management. She is a Colorado-licensed Certified Public Accountant and holds a Bachelor’s degree in Accounting from Michigan State University.
Hana Nabulsi joined the Foundation for Sarcoidosis Reseach in August 2015. As a Development Intern, she assists in donor-related communications, gathers information concerning prospective donors and physicians, and helps with outreach efforts to inform patients and supporters of their opportunities to support the Foundation’s mission.
She is studying Neuropsychology as a sophomore at DePaul University and hopes to earn her master’s degree. She is interested in pursuing a career that deals with patient empowerment and healthcare.