FSR is grateful for our friends throughout the world who are dedicated to raising awareness and accelerating research for sarcoidosis! To learn how to host your own fundraising event, download our fundraising guide and email Amy Donatell at amy@stopsarcoidosis.org for help to get started. We’ll provide resources to make your event a success and help promote what you’re doing on FSR’s website.

April is Sarcoidosis Awareness Month

We will be working throughout the month to ensure the voices of sarcoidosis sufferers everywhere are heard! In addition to the Kick In to Stop Sarcoidosis (K.I.S.S.) 5K Run/Walk in Nashville, TN, volunteers will be bringing walks to their own hometowns on April 22, 2017. Search for a walk near you using the search function below. If you can’t find an event near you, learn about how you can become a walk leader and raise awareness in your own community!

Tue 04

12:00 AM, April 4, 2017 | Today Show Plaza

New York

FSR staff and volunteers will be out on the Today Plaza on April 4th & Good Morning America on April 5th to bring national awareness to SARCOIDOSIS! Last year, we met Al Roker, Hota Kotb, and were spotted on TV by several patients who previously thought they were alone in their suffering. Bring your loved ones, wear purple, and help us #PaintThePlazaPurple!

To maximize our visibility and impact:

  • RSVP to the Today Show, sharing a bit of your story and why awareness is so important. Include a link to our website for more information: http://visit.today.com/
  • Communicate our visit, your story, and what awareness for this devastating disease would mean to our community to the hosts via social media – ask them to wear purple!

Today Show@TODAYShow on Twitter and on Facebook
Hoda Kotb – @HodaKotb on Twitter and on Facebook
Al Roker@AlRoker on Twitter and on Facebook
Matt Lauer@MLauer on Twitter and on Facebook
Savannah Guthrie@SavannahGuthrie on Twitter and on Facebook
Carson Daly – @CarsonDaly on Twitter and on Facebook
Alex Ficquette@AlexOnThePlaza on Twitter and #AlexonthePlaza on Facebook

  • Wear purple and make signs to hold in the plaza to raise awareness for sarcoidosis
  • Email your story and the dates we’ll be at the show to todaystories@nbcuni.com
  • Encourage friends and family members to watch the show LIVE on April 4th – share photos and videos of any live footage on social media using #PaintThePlazaPurple and #SarcoidosisAwareness

Can’t make it in person? Tune into NBC on April 4th at 7:00 am EST. Take photos and videos of any live footage and help us make noise on social media using #PaintThePlazaPurple and #SarcoidosisAwareness.

Learn more
Wed 05

12:00 AM, April 5, 2017 | Times Square

New York

FSR staff and volunteers will be out on the Today Plaza on April 4th & in Times Square outside Good Morning America on April 5th to bring national awareness to SARCOIDOSIS! Last year, we met Al Roker, Hota Kotb, and were spotted on TV by several patients who previously thought they were alone in their suffering. Bring your loved ones, wear purple, and help us increase #SarcoidosisAwareness!

To maximize our visibility and impact:

  • Request your free ticket to the Good Morning America, sharing a bit of your story and why awareness is so important.
  • Communicate our visit, your story, and what awareness for this devastating disease would mean to our community to the hosts via social media – ask them to wear purple!

Good Morning American – @GMA on Twitter and on Facebook
Robin Roberts – @RobinRoberts on Twitter and on Facebook
George Stephanopoulos – @GStephanopoulos on Twitter and on Facebook
Amy Robach – @ARobach on Twitter and on Facebook 

  • Wear purple and make signs to hold in the plaza to raise awareness for sarcoidosis
  • Encourage friends and family members to watch the show LIVE on April 5th – share photos and videos of any live footage on social media using #WeAreGMA and #SarcoidosisAwareness

Can’t make it in person? Tune into ABC on April 5th at 7:00 am EST. Take photos and videos of any live footage and help us make noise on social media using #WeAreGMA and #SarcoidosisAwareness.

Learn more
Sat 08

12:00 AM, April 8, 2017 | Magoo's Bar

Illinois

Join Jody on her journey to stop sarcoidosis when you join her and her supporters at Magoo’ Bar. This is a fundraising event which will involve raffles, prizes, 50/50 drawing and other games. Food and drink included.

For more information, email amy@stopsarcoidosis.org.

Learn more
Sat 08

12:00 AM, April 8, 2017 | Hershey Medical Center - Room TBD

Pennsylvania

Please join the Foundation for Sarcoidosis Research and internationally recognized physicians in Hershey, PA to gain valuable insight into sarcoidosis. Patients and loved ones will have the opportunity to learn about FSR’s research initiatives, sarcoidosis treatment options, and clinical care with experts in the field.

This event provides the chance to network with patients, physicians, and researchers to share your experience, identify and discuss needs, and gain a better understanding of sarcoidosis. Each patient attendee requires an individual registration – please complete the form below and refresh the page to register additional attendees.

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Hershey Patient Conference Agenda

10:00 am – 10:15 am Welcome & Introductions
10:15 am – 10:30 am Patient Speaker
10:30 am – 10:50 am Sarcoidosis: An Overview
10:50 am – 11:10 am Cardiac Sarcoidosis
11:10 am – 11:30 am Neurosarcoidosis
11:30 am – 11:50 pm Treatment Options
11:50 am – 12:45 pm Lunch
12:45 pm – 1:45 pm Panel Q&A
1:45 pm – 2:15 pm Your Role in Research
2:15 pm – 3:00 pm Patient Engagement Workshop

Presenters will include Dr. Misha Rosenbach of the University of Pennsylvania, Dr. Lisa Maier of National Jewish Health, Dr. Marc Judson of Albany Medical Center, Dr. Dan Culver of the Cleveland Clinic, and Dr. Elliott Crouser of Ohio State University.

Location:

Hershey, PA
Exact Location TBD

Nearby Hotel Options Include:

Call for rates and availability.

Holiday Inn Express Hershey
610 Walton Ave
Hummelstown, PA 17036
(717) 583-0500

Milton Hotel Hershey
1 Sipe Ave
Hershey, PA 17033
(717) 553-5665

Comfort Inn at the Park
1200 Mae St
Hummelstown, PA 17036
(717) 566-2050

Hilton Garden Inn Hershey
550 E Main St
Hummelstown, PA 17036
(717) 566-9292

Fairfield Inn & Suites Hershey Chocolate Avenue
651 W Areba Ave
Hershey, PA 17033
(717) 520-5240

Parking:

Please note that parking fees are not included in the registration fee. Visitor parking information will be posted when the exact conference location is determined.

If you have any questions, concerns, or need help registering, please contact the Foundation for Sarcoidosis Research at 312-341-0500 or info@stopsarcoidosis.org.

Learn more
Sat 22

12:00 AM, April 22, 2017 | Shelby Bottoms Park

Tennessee

Patients and their loved ones know better than anyone that we need to speed up research and raise more awareness for this terrible disease. There’s never been a more fun way to raise awareness while doing the hard work of raising funds for sarcoidosis research and patient support programs. Kick In to Stop Sarcoidosis with us at the Foundation for Sarcoidosis Research’s 4th Annual 5K Run/Walk in Nashville, Tennessee! 

The race will kick off at 10:00 am CST in Nashville’s beautiful Shelby Bottom Park. Together with family, friends, and other supporters, you’ll admire the scenery and costumes at this superhero themed run/walk. Whether you choose to enjoy a morning run or make new friends as you walk with fellow patients and loved ones along the route, you’ll cross the finish line to cheering supporters. The fun will just be getting started at our post-race party! After we show our appreciation for top fundraisers, top race finishers, and best costumes, we’ll celebrate the progress we’re making towards a cure with the rest of the sarcoidosis community. Don’t miss your chance to join us!

But the 5K represents more than a walk, it is a movement with opportunities to join us no matter where you live! Become a walk leader and bring an event to your hometown, find a walk near you, or nab a tshirt and participate in your own way when you register as a virtual walker.

Event Details:

Saturday, April 22, 2017 at 10:00 am CST
Shelby Bottoms Park, Nashville, TN

Awards:

This year’s theme is Superheroes for Sarcoidosis! We encourage walkers and runners to dress up as their favorite superheroes. Prizes will be awarded for:

  • Best individual costume
  • Best group costume
  • Best Sarcoidosis Superhero costume

Prizes will also be awarded to our top finishers by gender. This is a timed race with results available immediately when you finish.

Registration:

  • $30 Early Bird Registration: November 22, 2016 – March 31, 2017
  • $35 General Registration: April 1, 2017 – April 19, 2017
  • $35 Day-of Registration: Cash or Check on April 22, 2017

Your registration includes a tech tshirt, timed race participation, and refreshments. Celebrate our progress towards a cure with other patients and supporters at a post-race party! All proceeds benefit FSR’s efforts to empower patients worldwide and accelerate sarcoidosis research.

Register Today

Can’t join us in Nashville? Our incredible team of volunteers are bringing a walk to a town near you! Or you can participate in your own way through fundraising when you register as a virtual walker! You’ll still receive a tshirt, and be able to join the movement on social media with #stopsarcoidosis!

Learn more
Sat 22

12:00 AM, April 22, 2017 | Dorey Park

Virginia

Please come support our first ever National Sarcoidosis Awareness Day 5K Walk/Run to bring awareness to the world about the debilitating and incurable disease, Sarcoidosis. Bringing awareness will help bring research; research will help find a cause; finding a cause will help find a cure! Come be a part of history!

Contact: info@stopsarcoidosis.org

Please note that while all proceeds for this event benefit the Foundation for Sarcoidosis Research, this event is being managed and led by a volunteer walk leader. FSR will not be present for the event. If you have questions the walk leader is unable to answer or concerns about this event, please email info@stopsarcoidosis.org or call 312-341-0500. 

Learn more
Sat 22

12:00 AM, April 22, 2017 | Wilkes Dam

Ontario

We are walking on April 22 in support of Research for Sarcoidosis. As many of you know, my father-in-law (Dennis Scottie) passed away from complications from this rare disease back in the Fall of 2015. We are walking in memory of him! As well, my father (Perry Enyedi Sr.) has been battling this disease for the past six years! This disease shows no mercy and has greatly impacted my family’s life. Anyone who has been impacted by this disease or wants to show support is welcomed to attend the walk or donate to FSR. Thanks in advance for the support!

Contact: Perry Enyedi at penyedi@braemarhouseschool.ca

Please note that while all proceeds for this event benefit the Foundation for Sarcoidosis Research, this event is being managed and led by a volunteer walk leader. FSR will not be present for the event. If you have questions the walk leader is unable to answer or concerns about this event, please email info@stopsarcoidosis.org or call 312-341-0500. 

Learn more
Sat 22

12:00 AM, April 22, 2017 | Gladgow Park Trail

DE

Glasgow Park is located on Rt. 49 & 896 in Newark, DE
Sign in at 9 a.m. and Kick-off at 10 a.m. sharp

Help raise awareness for Sarcoidosis and to share my story of my battle for 17 1/2 yrs.

Contact: info@stopsarcoidosis.org

Please note that while all proceeds for this event benefit the Foundation for Sarcoidosis Research, this event is being managed and led by a volunteer walk leader. FSR will not be present for the event. If you have questions the walk leader is unable to answer or concerns about this event, please email info@stopsarcoidosis.org or call 312-341-0500. 

Learn more
Sat 22

12:00 AM, April 22, 2017 | Boettler Park Green

Ohio

This event is being held to raise awareness for Sarcoidosis, a debilitating disease that I and many others suffer from day to day. It’s to honor those we’ve lost, support those that fight every day, and say thank you to all who help us with our struggle. This walk is to raise awareness of our disease so we can raise more funding for research and one day find a CURE! Come walk/run 1or 2 miles with us! Come out and donate!!! Wear your purple in support!!! See you there!!

Contact: Lindsey Mayfield at enhanceyourlife.lm@gmail.com

Please note that while all proceeds for this event benefit the Foundation for Sarcoidosis Research, this event is being managed and led by a volunteer walk leader. FSR will not be present for the event. If you have questions the walk leader is unable to answer or concerns about this event, please email info@stopsarcoidosis.org or call 312-341-0500. 

Learn more
Sat 22

12:00 AM, April 22, 2017 | Manasquan Elks Lodge

New Jersey

This is walk is intended to raise awareness for sarcoidosis in my community and help raise funds for FSR. It is also my wish to raise awareness on a national level. My prayer is that with so many of us hosting a walk on the same day at the same time, the national media will take notice and hopefully bring awareness to this awful disease.

Contact: Cathy Wick at (732) 528-0073 or Cathyscause@gmail.com

Please note that while all proceeds for this event benefit the Foundation for Sarcoidosis Research, this event is being managed and led by a volunteer walk leader. FSR will not be present for the event. If you have questions the walk leader is unable to answer or concerns about this event, please email info@stopsarcoidosis.org or call 312-341-0500.

Register:

Learn more
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