FSR has several programs to provide people affected by sarcoidosis with the support they need to successfully cope with this disease.

Online Support - FSR Sarcoidosis Community

Our experience suggests that patients who use the Internet are looking for information about their disease and also a mechanism for support.   FSR is proud to announce that we have partnered with ClinicaHealth, a leading provider of online community services for health organizations, to create a new service where sarcoidosis patients around the world can share information and support one another.

Since its launch in November 2006, the FSR Sarcoidosis Community has offered more than 500 patients, their families and caregivers a safe, trusted online environment to share stories, conversations and as much or as little personal information as desired.  Members are actively participating in discussion groups and building a network of online friends.  They can also create personal blogs (online diaries) to tell their stories on a daily basis.

The online community is not meant to be a substitute for professional medical information, but rather a place where those affected by sarcoidosis can connect with others.  Users will be able to decide which information they wish to share, and with whom they wish to share it.

If you or someone you love is living with this disease and want to share and support others through their individual journeys and experiences with sarcoidosis, we encourage you to register and become members of our new Online Community.  Registration is FREE!

Traditional Support Groups

In-person support groups can provide another great way for patients and their family members to share experiences, emotions and knowledge. Many people find that talking with others who have had similar experiences can help them face the challenges of coping with sarcoidosis with a positive attitude.

Through a collaboration with the patient support organization Sarcoid Life we offer the only updated list of local groups in the United States available on-line.

The Foundation is happy to provide existing groups with free information for their members.  Please contact us at 312-341-0500 to request free material.  Existing groups are also encouraged to use the FSR Sarcoidosis Community to write a group blog to keep members informed of upcoming meeting dates and activities.