How do I talk about sarcoidosis with my loved ones? How do I get my doctor to explore more treatment options than just steroids? What are some tips for getting through bad brain fog days?
We’re excited to be launching a new initiative through our Patient Ambassador Program, called Ask the Ambassadors! FSR’s Patient Ambassador Program consists of 73 volunteers- patients and loved ones- who have all been formally trained by FSR on sarcoidosis, patient advocacy, research, and more issues surrounding this disease. They can act as an extension of FSR, representing us in 43 states across the US, and rapidly expanding each year.
While all of our Patient Education Conferences have a Q&A session with the physician presenters, sarcoidosis patients often have questions that only people who have lived through the same experiences can answer for them. That’s why we’re launching Ask the Ambassadors- a virtual Q&A where anyone can submit questions, no matter whether they’re a newly diagnosed patient, have battled the disease for year, if they’re a caretaker for someone with sarcoidosis, or even a medical professional trying to better understand the experience of sarcoidosis patients.
We’ll be selecting a few questions to be answered per post, depending on the number of question submissions and our Ambassadors’ schedules. Please know that your questions may not be answered in the first post- we might have an Ambassador who is an expert on your question and may have to wait until they have time in their own loves to get us their answer. After all, many of them are patients themselves, navigating symptoms and treatments as well as their own personal and work lives. Please note: Ambassadors will not be answering any medical questions about sarcoidosis. With any medical questions, always consult a trained physician.
Submit your questions in the form below and we’ll get it answered for you!
If you have more than 3 questions, you can submit a second form.