Category: Patient Stories

Feeling Grateful

Feeling Grateful

When FSR asked me if I’d write a blog on what I’m grateful for, I almost didn’t know where to start. I’m often up late thinking about the downs and ups of the last 6 years and I’m so grateful not just to be alive, but also to be alive with both a sense of...
3 Tips to Beat Stress While Playing the Waiting Game

3 Tips to Beat Stress While Playing the Waiting Game

Be patient.  That’s what I tell myself, again and again.  It’s easier said than done when you are waiting to feel better. I was “officially” diagnosed with sarcoidosis in January 2013.  Like many people with sarc, I had mysterious symptoms for years until a lung...
Leaving My Legacy

Leaving My Legacy

As a relatively younger woman (ok …in my 40’s, but that is all I am saying!), I certainly do not spend a lot of time thinking about my own mortality. And yes, I DO battle sarcoidosis every single day, but I refuse to let this disease dictate my spirit of life and...
Rough Roads: Cycling with Sarcoidosis

Rough Roads: Cycling with Sarcoidosis

John Carlin is an award-winning news anchor currently working at WSLS 10 in Roanoake, Virginia. He’s also an avid cyclist, a strong pillar of his local community, a loving husband and father, and a sarcoidosis warrior. Several years back, John began...
The Long Road to Diagnosis

The Long Road to Diagnosis

Allison Hawley- like so many other sarcoidosis patients- has had a tough time getting a diagnosis. Her journey has been filled with misdiagnoses, complicated tests and procedures, and doctors scratching their heads. Allison attended the FSR Patient Conference in...
A First Responder’s Story

A First Responder’s Story

Firefighters and first responders seem to be at a higher risk of developing sarcoidosis. While this has been a theory by many over the years, like every other aspect of sarcoidosis, research was lacking. As a disease that commonly affects the lungs and shows a...