Support Groups

Wright Sarcoidosis Support Group

• Group Leader: Terri Covington
• Email: tlc004@aol.com
• City: Troy

Denver Sarcoidosis Awareness Group

• Group Leader: Leonard Holley
• Email: leonarddsa@q.com
• Phone Number: (303)-371-0446
• City: Denver

Charleston Sarcoidosis Support Group, Low County Sarc Group

• Group Leader: Marcus Williams, Robin Thomas
• Email: mpwilliams95@yahoo.com, thomas9789@bellsouth.net
• Phone Number: (843)-471-3201
• City: North Charleston

National Organization for Rare Disorders Support Group

• Phone Number: 8009996673
• City: Danbury

Sarc Support Group of ALA, DC

• Group Leader: Howard Wilson
• Phone Number: 2026825864
• City: Washington

Sarc Group of Dixon IL

• Group Leader: Kelly Allen
• Email: mrnmrsjja@yahoo.com
• Phone Number: 815-284-0369
• City: Dixon

Houston Sarcoidosis Support Group (Janine’s Sarcoidosis Outreach)

• Group Leader: Emma Carroll
• Email: jsof.org@gmail.com
• Phone Number: (832)-248-6621
• City: Houston

Sarcoidosis the Silent Disease Support Group of Central Pennsylvania

• Group Leader: Chanel Lewis
• Email: chanel1252003@yahoo.com 
• Phone Number: 7176231039
• City: Harrisburg

Sarc Patient Forum

• Group Leader: Paula Polite
• Phone Number: 9013275454, 9013275455
• City: Memphis

Sarcoidosis Awareness Support Group of Greater Baton Rouge

• Group Leader: Rodney Reese
• Email: sarcoidgbr@cox.net
• Phone Number: (225)-773-0985
• City: Baton Rouge

Dr. Alvin S. Teirstein Sarcoidosis Support Group

• Group Leader: Pearl Johnson
• Email: Pearl.Johnson@mssm.edu
• Phone Number: (212)-241-8733
• City: New York

Wilmington Sarcoidosis Support Group c/o American Lung Association

• Group Leader: Will Braunlein
• Phone Number: 302 655-7258 or 3027376414 EXT 16
• City: Wilmington

Let’s Talk Sarcoidosis

• Group Leader: Dorothea McGuire
• Email: letstalksarcoidosis@gmail.com
• Phone Number: (443)-762-4282
• City: Columbia

Detroit, MI – Sarcoidosis Support Group

• Group Leader: Sylvia Johnson
• Phone Number: 313-538-5682
• City: Detroit

Brighton Sarcoidosis Support Group

• City: Hassocks

Triangle Sarcoidosis Support Group

• Group Leader: Virginia Johnson
• Email: virginia.johnson22@gmail.com
• Phone Number: 919.260.0830
• City: Raleigh

Sarc Foundation of Texas

• Group Leader: Rachella Washington
• Email: rachella@sbcglobal.net
• Phone Number: 8176583040
• City: Ft. Worth

Virginia Sarc Support Group

• Group Leader: Marvella Scott
• Email: marvella.scott@yahoo.com
• Phone Number: 804-244-2573
• City: Chesterfield

Sarcoidosis Healing Network

• Group Leader: Dalvery Blackwell
• Phone Number: 414-264-4023
• City: Milwaukee

Utah Sarcoidosis Support Group

• Group Leader: Susie Torres
• Email: ambassadorsusie@stopsarcoidosis.org
• Phone Number: (480) 280-5627

Sarcoidosis Support Group of South Florida, Inc.

• Group Leader: Henry Moya
• Email: henry@bcs-fl.com
• City: Miami, FL and surrounding area

Tampa Bay Support Group

• Group Leader: Ida Lewis & Megi Garrison
• Email: sarcoidosis@jsof.org
• City: Tampa

Tampa Florida Support Group (Janine’s Sarcoidosis Outreach)

• Group Leader: Fannie Keith
• Email: jsof.org@gmail.com
• Phone Number: (813)-466-5876
• City: Tampa

Sarcs together of Southern NJ

• Group Leader: Linda Johns
• Email: lpin34@aol.com
• Phone Number: 8565620017
• City: Voorhees Township

New England Sarcoidosis Support Group

• Group Leader: Melissa Pollard
• Email: melissapollard@fastmail.com
• City: Boston

Sarcoidosis Support Group of Lumberton

• Group Leader: Jessica Reid
• Email: mrsjreid2003@yahoo.com
• Phone Number: 910-536-8635 or 910-674-4892
• City: Lumberton

Surviving Snowflakes Sarc Support Group of MI

• Group Leader: Latonya Warmsley
• Email: survivingsnowflake@gmail.com
• Phone Number: 3137337254
• City: Detroit

Anne Arundel County Sarc Support Group

• Group Leader: Betty Powell, Ruth Pinder
• Phone Number: 4102633123
• City: Severna Park

Upstate Sarcoidosis Support Group

• Group Leader: Brenay McNeil-Webb
• Phone Number: 864 576-8764
• City: Spartanburg

Michigan City, IN – Sarcoidosis Support Group

• Group Leader: Shanetta
• Email: shanettajordan@yahoo.com
• City: Michigan City

The Villages, FL – Sarcoidosis Support Group

• Group Leader: Therese Bruce
• Phone Number: 352 751-3545
• City: The Villages

Sarcoidosis Support Group

• Group Leader: Kerry Kurchak
• Email: sarcoidosis.NEO@gmail.com
• City: Independence

Sarcoidosis of South Carolina

• Group Leader: Dr. Eddie Glenn and Chaha Garrett Rice
• Email: glenn3605@bellsouth.net
• Phone Number: 803.779.2732
• City: Columbia

Central London Sarcoidosis Support Group

Sarc Support Group of Long Island

• Group Leader: Frank Rivera
• Email: frank@sarcoidosisofli.org
• Phone Number: 631-432-9374
• City: Port Jefferson

Let’s Breathe Sarcoidosis Support Group

• Group Leader: Brenda Harris
• Email: bharris354@aol.com
• Phone Number: 2243038155
• City: Zion

Inspire

• Group Leader: FSR
• Email: info@stopsarcoidosis.org
• Phone Number: 312-341-0501
• City: Online

Sarc Support Group of Michigan

• Group Leader: Laura Galbraith
• Email: lagalbraith@yahoo.com
• City: Rochester

Sarc, we will win!

• Group Leader: Cindy Ceurter, Tammy Kozak
• Email: sarcoidwewillwin@gmail.com
• Phone Number: 6077658885 or 6079727260
• City: Newark Valley

SILA Norwich Support Group

• City: Wymondham

Medical University of SC

• Group Leader: Katie Shoptaw
• Email: benfiel@musc.edu
• Phone Number: 843-792-0373
• City: Charleston

ASA

• Group Leader: Ericka
• Email: asa.sarcoid@yahoo.com
• Phone Number: 2149169653
• City: Mesquite

Snarky Sarci’s of ND

• Group Leader: Brandi Cleaver
• Email: ambassadorbrandi@stopsarcoidosis.org
• Phone Number: (701) 343-6293
• City: Larimore

Central Indiana Sarcoidosis Support Group

• Group Leader: Gloria Hooks
• Email: cissg@usa.com
• Phone Number: 317.809.7011
• City: McCordsville

Traverse City, MI – Sarcoidosis Support Group

• Group Leader: Cheryl Cheatom
• Email: cchea04@yahoo.com
• City: Traverse City

S.F. Bay Area Sarcoidosis Support Group

• Group Leader: Emily Braley
• Email: emilymbraley@gmail.com
• Phone Number: (703) 283-9971
• City: Stanford

Arkie Sarkies – Arkansas Sarcoidosis Outreach Group

Shreveport Sarc Support Group

• Group Leader: Rita Cooks
• Email: tccooks@comcast.net  
• Phone Number: 3186871431
• City: Shreveport

Sarcoidosis Support, Greater Sudbury and Vicinity

• Group Leader: Stephanie Hurst
• Email: sahurst@live.ca
• Phone Number: (705) 918-3844
• City: Sudbury

West Tennessee Sarc Support Group

• Phone Number: 7319869832
• City: Huntingdon

West Tennessee Sarcoidosis Support Group

• Group Leader: Patricia Coleman
• Email: pat.coleman1954@yahoo.com
• Phone Number: 731-986-9832
• City: Huntingdon

Positively Sarcoidosis Support Group

• Group Leader: Kristin Wolski
• Email: kwrn02@yahoo.com
• Phone Number: 7086843872
• City: Oak Lawn

SWLA Sarcoidosis Support Group

• Group Leader: Sabrina Sonnier
• Email: ssonnier@lcmh.com
• Phone Number: (337)-842-5939
• City: Lake Charles

Sarcoidosis (Español)

Youngstown Support Group

• Group Leader: Pat Couchenour
• Email: pattws@aol.com
• Phone Number: 330 549-2712
• City: Columbiana

ALA of Illinois

• Group Leader: Michael L. Mark
• Email: mmark@lungil.org
• Phone Number: 800LUNGUSA
• City: Springfield

National Sarcoidosis Online Group

• Group Leader: Frank Rivera
• City: Online

Natchez, MS – Sarcoidosis Support Group

• Group Leader: Jameka Calhoun
• Phone Number: 601-445-0363
• City: Natchez

BayCare Clinic Pulmonology

• Group Leader: Dr. Raul Mendoza-Ayala
• Phone Number: 9202888310
• City: Green Bay

Chicago West-Sarcoidosis Support Group

• Group Leader: Mark Landiak
• Email: mlandiak@CorpDyn.com
• City: Naperville

Chicago Southside Sarcoidosis Support

• Group Leader: Desiree Mack
• Phone Number: 773-285-2608
• City: Chicago

Clayton, GA – Sarcoidosis Support Group

• Group Leader: Sherri Buie
• Email: bless2xgramgirls@msn.com
• Phone Number: 919 524-3455 919-359-9010
• City: Clayton

Central Louisiana Sarcoidosis and Autoimmune Support Group

• Group Leader: Edith Canoe
• Email: edithcanoe@yahoo.com
• City: Bentley

CSRA Autoimmunity and Chronic Illness Support Group

• Group Leader: LeAnne Byrd or Lynne Young, RN
• Email: forthebyrdsfive@bellsouth.net
• City: Martinez

N.O. Sarcoidosis Support Group

• Group Leader: Melanie Goodman
• Email: nosarcoidosis@gmail.com
• Phone Number: (573)-286-6744
• City: New Orleans

Iowa Sarcoidosis Support Group

• Group Leader: Dorothy McDowell
• Email: AmbassadorDorothy@stopsarcoidosis.org
• Phone Number: (319)389-5005
• City: Coralville

Sarcoidosis Outreach and Support Group

• Group Leader: Alice Minyard
• Email: Alifay1963@aol.com
• Phone Number: 256-442-0463
• City: Rainbow City

REACH–Sarcoidosis Network Foundation

• Group Leader: Ruth Jacobs
• Email: reachsnf@msn.com
• Phone Number: 562 809-8500
• City: Artesia

Sarc Support Group of Decatur

• Group Leader: Dr. Catherine Roberts
• Email: c_roberts31@msn.com
• Phone Number: (678)-667-0774
• City: Atlanta

Upstate SC Area Support Group

• Group Leader: Betsy McCart
• Email: upstatesarcoidosis@gmail.com
• Phone Number: (864) 525-9580
• City: Greenville

Middle Tennessee Sarcoidosis Support Group

• Group Leader: Becky Robertson
• Email: br_sarcoid@yahoo.com
• Phone Number: 931-528-7826
• City: Cookeville

Temple University Hospital Sarcoidosis Support Group

• Group Leader: Tanya Bronzell-Wynder
• Email: Tanya.Bronzell-Wynder@tuhs.temple.edu
• Phone Number: 215-707-1722
• City: Philadelphia

Sarcoidosis Foundation Of WV Inc

• Group Leader: Yvonne L. James
• Email: yvonnelj3110@aol.com
• Phone Number: 304.545.0922
• City: Charleston Sissonville

Whitehall, OH – Sarcoidosis Support Group

• Group Leader: Theresa (Penny) LaMons
• Email: lamons2@att.net
• Phone Number: 614-231-8357 or 614-270-1147
• City: Whitehall

TeamAndreaFight, LLC

• Group Leader: Samantha Hubbard-Bradley
• Email: TeamAndreaFight@gmail.com
• Phone Number: 757-572-9384
• City: Chesapeake

K.I.S.S. Westchester (Kick In for Sarcoidosis Support)

• Group Leader: Kerry Wong
• Email: AmbassadorKerryW@stopsarcoidosis.org
• City: White Plains

Faces of Sarcoidosis Support Group

• Group Leader: Jessica Abouhamama
• Phone Number: 717-635-0101
• City: Lancaster

Sarcoidosis Fort Wayne

• Group Leader: Regina Gordon
• Email: sarcoidosisfortwayne@gmail.com
• City: Fort Wayne

Tri-Cities Sarcoidosis Support Group

• Group Leader: Rebecca C. Jordan
• Email: tricitiessarcoidosis@gmail.com
• Phone Number: 757-484-4496
• City: Suffolk

Sarcoidosis of north carolina DBA sarcoidosis of the queen City

• Group Leader: Hattie M. Crawford
• Email: qcsf2012@gmail.com
• Phone Number: 704-519-6056
• City: Charlotte

Caring Hands Sarcoidosis Foundation

• Group Leader: Allison Walker
• Email: caringhandsofmi@sbcglobal.net
• Phone Number: (313)-330-3785
• City: Berkley

Savannah, GA – Sarcoidosis Support Group

• Group Leader: Will Kirkland
• Email: twenty0four@yahoo.com
• Phone Number: 912-657-9367
• City: Savannah

Providence Cook County Hospital

• Phone Number: (312) 572-2000
• City: Chicago

Support Group of North GA

• Group Leader: Cindy Balkstra
• Email: ngakats09@gmail.com 
• Phone Number: 9128448266
• City: Alpharetta

Lawrence R. Davis Sarcoidosis Foundation, Inc.

• Group Leader: Barbara Davis
• Phone Number: 517 484-7831
• City: Lansing

Greater Birmingham Sarc Awareness Group

• Group Leader: Connie Parker
• Email: parkerconnie99@yahoo.com
• Phone Number: 2057069583, 2055867244
• City: Birmingham

Central KY Sarcoidosis Support

• Group Leader: Peggy Baldridge
• Email: pbaldridge@me.com
• Phone Number: (859)-327-8395
• City: Lexington

Raleigh, NC – Sarcoidosis Support Group

• Group Leader: Mary Ballay
• Email: mcballay@hotmail.com
• City: Raleigh

East Jefferson General Hospital Support Group

• Group Leader: Better Breathers Club
• Phone Number: (504) 454-4000
• City: Metairie

Sarcoidosis Support Group of Southern Arizona

• Group Leader: Mark Dec
• Email: sarcoidhelp@gmail.com; handyman@markdec.com
• Phone Number: 520-668-7425
• City: Vail

New Eagle, PA – Sarcoidosis Support Group

• Group Leader: Ray Cabaniss
• Phone Number: 704-531-0723
• City: New Eagle, PA

Sarcoidosis Self-help Group

• Group Leader: Robert Schoenfeld
• Phone Number: 5164832666
• City: East Meadow

South West Sarkies Support Group

• City: Roche

Michigan Unstoppable Warriors Sarcoidosis Group

• Group Leader: Sheron Williams
• Email: WarriorsSarcoidSG2015@gmail.com
• Phone Number: (313)-670-8689
• City: Ann Arbor

Bloomington-Normal Sarc Support Group

• Group Leader: Eddie Glenn
• Phone Number: 3094387884
• City: Bloomington-Normal

Sutton, MA – Sarcoidosis Support Group

• Group Leader: Carl Copeland
• Email: ccope90802@aol.com
• Phone Number: 508-865-8256
• City: Sutton

TC Sarcoidosis Support Group

• Group Leader: Cheryl Cheatom
• Email: tcsarcoidosissupportgroupc.com
• Phone Number: 1-855-550-1500
• City: Traverse City

Hermitage, PA – Sarcoidosis Support Group

• Group Leader: Dr. Bernadette Kutcher
• Email: drbkutcher@gmail.com
• Phone Number: 724-342-4964
• City: Hermitage

Sarcoidosis Networking Association

• Group Leader: Lynn Short
• Email: lynn@sarcoidosisnetwork.org
• Phone Number: 253.988.1528 or 253-472-0423
• City: Tacoma

SarcoidosisUK

• Group Leader: Jack Richardson
• Email: jacquijnewton@gmail.com
• Phone Number: UK Tel: 020 3389 7221 International Tel: +44 20 3389 7221
• City: Stirling

PNW Sarkie Sharks

• Group Leader: Lorie Carter
• Email: ambassadorlorie@stopsarcoidosis.org
• Phone Number: (208) 719-0673
• City: Post Falls

Living your life with pulmonary disorders

• Group Leader: Jennifer Bottcher
• Email: jennifer_bottcher@chs.net
• Phone Number: 610-250-4678
• City: easton

North Texas & DFW Saarcoidosis Support Group

• Group Leader: Kim Ellison
• Email: kimellison.re@gmail.com
• Phone Number: 972-746-0739
• City: Irving