Knowledgeable and connected patients are empowered patients.
Talking with and learning from others who have had similar experiences can help patients deal with sarcoidosis. To address this, Foundation for Sarcoidosis Research (FSR) tries to connect people to local resources whenever possible. One way we do this is by connecting people to online or local, independent sarcoidosis support groups.
Note: These support groups are not endorsed or run by FSR. If you are interested in an online sarcoidosis community, please check out Inspire.
Find a Local Support Group
In-person support groups provide an outlet for patients and family members to share experiences, emotions, and knowledge. Because of this, FSR maintains an online directory of independent sarcoidosis support groups in the U.S. Search for a group in your area using the box below!
Wright Sarcoidosis Support Group
- Group Leader: Terri Covington
- Email: tlc004@aol.com
- City: Troy
Denver Sarcoidosis Awareness Group
- Group Leader: Leonard Holley
- Email: leonarddsa@q.com
- Phone Number: (303)-371-0446
- City: Denver
Charleston Sarcoidosis Support Group, Low County Sarc Group
- Group Leader: Marcus Williams, Robin Thomas
- Email: mpwilliams95@yahoo.com, thomas9789@bellsouth.net
- Phone Number: (843)-471-3201
- City: North Charleston
National Organization for Rare Disorders Support Group
- Phone Number: 8009996673
- City: Danbury
Sarc Support Group of ALA, DC
- Group Leader: Howard Wilson
- Phone Number: 2026825864
- City: Washington
Sarc Group of Dixon IL
- Group Leader: Kelly Allen
- Email: mrnmrsjja@yahoo.com
- Phone Number: 815-284-0369
- City: Dixon
Houston Sarcoidosis Support Group (Janine’s Sarcoidosis Outreach)
- Group Leader: Emma Carroll
- Email: jsof.org@gmail.com
- Phone Number: (832)-248-6621
- City: Houston
Sarcoidosis the Silent Disease Support Group of Central Pennsylvania
- Group Leader: Chanel Lewis
- Email: chanel1252003@yahoo.com
- Phone Number: 7176231039
- City: Harrisburg
Sarc Patient Forum
- Group Leader: Paula Polite
- Phone Number: 9013275454, 9013275455
- City: Memphis
Sarcoidosis Awareness Support Group of Greater Baton Rouge
- Group Leader: Rodney Reese
- Email: sarcoidgbr@cox.net
- Phone Number: (225)-773-0985
- City: Baton Rouge
Dr. Alvin S. Teirstein Sarcoidosis Support Group
- Group Leader: Pearl Johnson
- Email: Pearl.Johnson@mssm.edu
- Phone Number: (212)-241-8733
- City: New York
Wilmington Sarcoidosis Support Group c/o American Lung Association
- Group Leader: Will Braunlein
- Phone Number: 302 655-7258 or 3027376414 EXT 16
- City: Wilmington
Let’s Talk Sarcoidosis
- Group Leader: Dorothea McGuire
- Email: letstalksarcoidosis@gmail.com
- Phone Number: (443)-762-4282
- City: Columbia
Detroit, MI – Sarcoidosis Support Group
- Group Leader: Sylvia Johnson
- Phone Number: 313-538-5682
- City: Detroit
Triangle Sarcoidosis Support Group
- Group Leader: Virginia Johnson
- Email: virginia.johnson22@gmail.com
- Phone Number: 919.260.0830
- City: Raleigh
Sarc Foundation of Texas
- Group Leader: Rachella Washington
- Email: rachella@sbcglobal.net
- Phone Number: 8176583040
- City: Ft. Worth
Virginia Sarc Support Group
- Group Leader: Marvella Scott
- Email: marvella.scott@yahoo.com
- Phone Number: 804-244-2573
- City: Chesterfield
Sarcoidosis Healing Network
- Group Leader: Dalvery Blackwell
- Phone Number: 414-264-4023
- City: Milwaukee
Utah Sarcoidosis Support Group
- Group Leader: Susie Torres
- Email: ambassadorsusie@stopsarcoidosis.org
- Phone Number: (480) 280-5627
Sarcoidosis Support Group of South Florida, Inc.
- Group Leader: Henry Moya
- Email: henry@bcs-fl.com
- City: Miami, FL and surrounding area
Tampa Bay Support Group
- Group Leader: Ida Lewis & Megi Garrison
- Email: sarcoidosis@jsof.org
- City: Tampa
Tampa Florida Support Group (Janine’s Sarcoidosis Outreach)
- Group Leader: Fannie Keith
- Email: jsof.org@gmail.com
- Phone Number: (813)-466-5876
- City: Tampa
Sarcs together of Southern NJ
- Group Leader: Linda Johns
- Email: lpin34@aol.com
- Phone Number: 8565620017
- City: Voorhees Township
New England Sarcoidosis Support Group
- Group Leader: Melissa Pollard
- Email: melissapollard@fastmail.com
- City: Boston
Sarcoidosis Support Group of Lumberton
- Group Leader: Jessica Reid
- Email: mrsjreid2003@yahoo.com
- Phone Number: 910-536-8635 or 910-674-4892
- City: Lumberton
Surviving Snowflakes Sarc Support Group of MI
- Group Leader: Latonya Warmsley
- Email: survivingsnowflake@gmail.com
- Phone Number: 3137337254
- City: Detroit
Anne Arundel County Sarc Support Group
- Group Leader: Betty Powell, Ruth Pinder
- Phone Number: 4102633123
- City: Severna Park
Upstate Sarcoidosis Support Group
- Group Leader: Brenay McNeil-Webb
- Phone Number: 864 576-8764
- City: Spartanburg
Michigan City, IN – Sarcoidosis Support Group
- Group Leader: Shanetta
- Email: shanettajordan@yahoo.com
- City: Michigan City
The Villages, FL – Sarcoidosis Support Group
- Group Leader: Therese Bruce
- Phone Number: 352 751-3545
- City: The Villages
Sarcoidosis Support Group
- Group Leader: Kerry Kurchak
- Email: sarcoidosis.NEO@gmail.com
- City: Independence
Sarcoidosis of South Carolina
- Group Leader: Dr. Eddie Glenn and Chaha Garrett Rice
- Email: glenn3605@bellsouth.net
- Phone Number: 803.779.2732
- City: Columbia
Sarc Support Group of Long Island
- Group Leader: Frank Rivera
- Email: frank@sarcoidosisofli.org
- Phone Number: 631-432-9374
- City: Port Jefferson
Let’s Breathe Sarcoidosis Support Group
- Group Leader: Brenda Harris
- Email: bharris354@aol.com
- Phone Number: 2243038155
- City: Zion
Inspire
- Group Leader: FSR
- Email: info@stopsarcoidosis.org
- Phone Number: 312-341-0501
- City: Online
Sarc Support Group of Michigan
- Group Leader: Laura Galbraith
- Email: lagalbraith@yahoo.com
- City: Rochester
Sarc, we will win!
- Group Leader: Cindy Ceurter, Tammy Kozak
- Email: sarcoidwewillwin@gmail.com
- Phone Number: 6077658885 or 6079727260
- City: Newark Valley
Medical University of SC
- Group Leader: Katie Shoptaw
- Email: benfiel@musc.edu
- Phone Number: 843-792-0373
- City: Charleston
ASA
- Group Leader: Ericka
- Email: asa.sarcoid@yahoo.com
- Phone Number: 2149169653
- City: Mesquite
Snarky Sarci’s of ND
- Group Leader: Brandi Cleaver
- Email: ambassadorbrandi@stopsarcoidosis.org
- Phone Number: (701) 343-6293
- City: Larimore
Central Indiana Sarcoidosis Support Group
- Group Leader: Gloria Hooks
- Email: cissg@usa.com
- Phone Number: 317.809.7011
- City: McCordsville
Traverse City, MI – Sarcoidosis Support Group
- Group Leader: Cheryl Cheatom
- Email: cchea04@yahoo.com
- City: Traverse City
S.F. Bay Area Sarcoidosis Support Group
- Group Leader: Emily Braley
- Email: emilymbraley@gmail.com
- Phone Number: (703) 283-9971
- City: Stanford
Shreveport Sarc Support Group
- Group Leader: Rita Cooks
- Email: tccooks@comcast.net
- Phone Number: 3186871431
- City: Shreveport
Sarcoidosis Support, Greater Sudbury and Vicinity
- Group Leader: Stephanie Hurst
- Email: sahurst@live.ca
- Phone Number: (705) 918-3844
- City: Sudbury
West Tennessee Sarcoidosis Support Group
- Group Leader: Patricia Coleman
- Email: pat.coleman1954@yahoo.com
- Phone Number: 731-986-9832
- City: Huntingdon
Positively Sarcoidosis Support Group
- Group Leader: Kristin Wolski
- Email: kwrn02@yahoo.com
- Phone Number: 7086843872
- City: Oak Lawn
SWLA Sarcoidosis Support Group
- Group Leader: Sabrina Sonnier
- Email: ssonnier@lcmh.com
- Phone Number: (337)-842-5939
- City: Lake Charles
Youngstown Support Group
- Group Leader: Pat Couchenour
- Email: pattws@aol.com
- Phone Number: 330 549-2712
- City: Columbiana
ALA of Illinois
- Group Leader: Michael L. Mark
- Email: mmark@lungil.org
- Phone Number: 800LUNGUSA
- City: Springfield
Natchez, MS – Sarcoidosis Support Group
- Group Leader: Jameka Calhoun
- Phone Number: 601-445-0363
- City: Natchez
BayCare Clinic Pulmonology
- Group Leader: Dr. Raul Mendoza-Ayala
- Phone Number: 9202888310
- City: Green Bay
Chicago West-Sarcoidosis Support Group
- Group Leader: Mark Landiak
- Email: mlandiak@CorpDyn.com
- City: Naperville
Chicago Southside Sarcoidosis Support
- Group Leader: Desiree Mack
- Phone Number: 773-285-2608
- City: Chicago
Clayton, GA – Sarcoidosis Support Group
- Group Leader: Sherri Buie
- Email: bless2xgramgirls@msn.com
- Phone Number: 919 524-3455 919-359-9010
- City: Clayton
Central Louisiana Sarcoidosis and Autoimmune Support Group
- Group Leader: Edith Canoe
- Email: edithcanoe@yahoo.com
- City: Bentley
CSRA Autoimmunity and Chronic Illness Support Group
- Group Leader: LeAnne Byrd or Lynne Young, RN
- Email: forthebyrdsfive@bellsouth.net
- City: Martinez
N.O. Sarcoidosis Support Group
- Group Leader: Melanie Goodman
- Email: nosarcoidosis@gmail.com
- Phone Number: (573)-286-6744
- City: New Orleans
Iowa Sarcoidosis Support Group
- Group Leader: Dorothy McDowell
- Email: AmbassadorDorothy@stopsarcoidosis.org
- Phone Number: (319)389-5005
- City: Coralville
Sarcoidosis Outreach and Support Group
- Group Leader: Alice Minyard
- Email: Alifay1963@aol.com
- Phone Number: 256-442-0463
- City: Rainbow City
REACH–Sarcoidosis Network Foundation
- Group Leader: Ruth Jacobs
- Email: reachsnf@msn.com
- Phone Number: 562 809-8500
- City: Artesia
Sarc Support Group of Decatur
- Group Leader: Dr. Catherine Roberts
- Email: c_roberts31@msn.com
- Phone Number: (678)-667-0774
- City: Atlanta
Upstate SC Area Support Group
- Group Leader: Betsy McCart
- Email: upstatesarcoidosis@gmail.com
- Phone Number: (864) 525-9580
- City: Greenville
Middle Tennessee Sarcoidosis Support Group
- Group Leader: Becky Robertson
- Email: br_sarcoid@yahoo.com
- Phone Number: 931-528-7826
- City: Cookeville
Temple University Hospital Sarcoidosis Support Group
- Group Leader: Tanya Bronzell-Wynder
- Email: Tanya.Bronzell-Wynder@tuhs.temple.edu
- Phone Number: 215-707-1722
- City: Philadelphia
Sarcoidosis Foundation Of WV Inc
- Group Leader: Yvonne L. James
- Email: yvonnelj3110@aol.com
- Phone Number: 304.545.0922
- City: Charleston Sissonville
Whitehall, OH – Sarcoidosis Support Group
- Group Leader: Theresa (Penny) LaMons
- Email: lamons2@att.net
- Phone Number: 614-231-8357 or 614-270-1147
- City: Whitehall
TeamAndreaFight, LLC
- Group Leader: Samantha Hubbard-Bradley
- Email: TeamAndreaFight@gmail.com
- Phone Number: 757-572-9384
- City: Chesapeake
K.I.S.S. Westchester (Kick In for Sarcoidosis Support)
- Group Leader: Kerry Wong
- Email: AmbassadorKerryW@stopsarcoidosis.org
- City: White Plains
Faces of Sarcoidosis Support Group
- Group Leader: Jessica Abouhamama
- Phone Number: 717-635-0101
- City: Lancaster
Sarcoidosis Fort Wayne
- Group Leader: Regina Gordon
- Email: sarcoidosisfortwayne@gmail.com
- City: Fort Wayne
Tri-Cities Sarcoidosis Support Group
- Group Leader: Rebecca C. Jordan
- Email: tricitiessarcoidosis@gmail.com
- Phone Number: 757-484-4496
- City: Suffolk
Sarcoidosis of north carolina DBA sarcoidosis of the queen City
- Group Leader: Hattie M. Crawford
- Email: qcsf2012@gmail.com
- Phone Number: 704-519-6056
- City: Charlotte
Caring Hands Sarcoidosis Foundation
- Group Leader: Allison Walker
- Email: caringhandsofmi@sbcglobal.net
- Phone Number: (313)-330-3785
- City: Berkley
Savannah, GA – Sarcoidosis Support Group
- Group Leader: Will Kirkland
- Email: twenty0four@yahoo.com
- Phone Number: 912-657-9367
- City: Savannah
Support Group of North GA
- Group Leader: Cindy Balkstra
- Email: ngakats09@gmail.com
- Phone Number: 9128448266
- City: Alpharetta
Lawrence R. Davis Sarcoidosis Foundation, Inc.
- Group Leader: Barbara Davis
- Phone Number: 517 484-7831
- City: Lansing
Greater Birmingham Sarc Awareness Group
- Group Leader: Connie Parker
- Email: parkerconnie99@yahoo.com
- Phone Number: 2057069583, 2055867244
- City: Birmingham
Central KY Sarcoidosis Support
- Group Leader: Peggy Baldridge
- Email: pbaldridge@me.com
- Phone Number: (859)-327-8395
- City: Lexington
Raleigh, NC – Sarcoidosis Support Group
- Group Leader: Mary Ballay
- Email: mcballay@hotmail.com
- City: Raleigh
East Jefferson General Hospital Support Group
- Group Leader: Better Breathers Club
- Phone Number: (504) 454-4000
- City: Metairie
Sarcoidosis Support Group of Southern Arizona
- Group Leader: Mark Dec
- Email: sarcoidhelp@gmail.com; handyman@markdec.com
- Phone Number: 520-668-7425
- City: Vail
New Eagle, PA – Sarcoidosis Support Group
- Group Leader: Ray Cabaniss
- Phone Number: 704-531-0723
- City: New Eagle, PA
Sarcoidosis Self-help Group
- Group Leader: Robert Schoenfeld
- Phone Number: 5164832666
- City: East Meadow
Michigan Unstoppable Warriors Sarcoidosis Group
- Group Leader: Sheron Williams
- Email: WarriorsSarcoidSG2015@gmail.com
- Phone Number: (313)-670-8689
- City: Ann Arbor
Bloomington-Normal Sarc Support Group
- Group Leader: Eddie Glenn
- Phone Number: 3094387884
- City: Bloomington-Normal
Sutton, MA – Sarcoidosis Support Group
- Group Leader: Carl Copeland
- Email: ccope90802@aol.com
- Phone Number: 508-865-8256
- City: Sutton
TC Sarcoidosis Support Group
- Group Leader: Cheryl Cheatom
- Email: tcsarcoidosissupportgroupc.com
- Phone Number: 1-855-550-1500
- City: Traverse City
Hermitage, PA – Sarcoidosis Support Group
- Group Leader: Dr. Bernadette Kutcher
- Email: drbkutcher@gmail.com
- Phone Number: 724-342-4964
- City: Hermitage
Sarcoidosis Networking Association
- Group Leader: Lynn Short
- Email: lynn@sarcoidosisnetwork.org
- Phone Number: 253.988.1528 or 253-472-0423
- City: Tacoma
SarcoidosisUK
- Group Leader: Jack Richardson
- Email: jacquijnewton@gmail.com
- Phone Number: UK Tel: 020 3389 7221 International Tel: +44 20 3389 7221
- City: Stirling
PNW Sarkie Sharks
- Group Leader: Lorie Carter
- Email: ambassadorlorie@stopsarcoidosis.org
- Phone Number: (208) 719-0673
- City: Post Falls
Living your life with pulmonary disorders
- Group Leader: Jennifer Bottcher
- Email: jennifer_bottcher@chs.net
- Phone Number: 610-250-4678
- City: easton
North Texas & DFW Saarcoidosis Support Group
- Group Leader: Kim Ellison
- Email: kimellison.re@gmail.com
- Phone Number: 972-746-0739
- City: Irving
ALA of Illinois
- Group Leader: Michael L. Mark
- Email: mmark@lungil.org
- Phone Number: 800LUNGUSA
- City: Springfield
Anne Arundel County Sarc Support Group
- Group Leader: Betty Powell, Ruth Pinder
- Phone Number: 4102633123
- City: Severna Park
ASA
- Group Leader: Ericka
- Email: asa.sarcoid@yahoo.com
- Phone Number: 2149169653
- City: Mesquite
BayCare Clinic Pulmonology
- Group Leader: Dr. Raul Mendoza-Ayala
- Phone Number: 9202888310
- City: Green Bay
Bloomington-Normal Sarc Support Group
- Group Leader: Eddie Glenn
- Phone Number: 3094387884
- City: Bloomington-Normal
Caring Hands Sarcoidosis Foundation
- Group Leader: Allison Walker
- Email: caringhandsofmi@sbcglobal.net
- Phone Number: (313)-330-3785
- City: Berkley
Central Indiana Sarcoidosis Support Group
- Group Leader: Gloria Hooks
- Email: cissg@usa.com
- Phone Number: 317.809.7011
- City: McCordsville
Central KY Sarcoidosis Support
- Group Leader: Peggy Baldridge
- Email: pbaldridge@me.com
- Phone Number: (859)-327-8395
- City: Lexington
Not finding a support group in your area and not ready to start your own?
Reach out to one of our patient ambassadors and get their help! Our patient ambassadors are trained to help patients find the resources they need near them. Your ambassador may know of other support groups in the area that are not sarcoidosis-specific and may be a good source of individual support as well.