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Knowledgeable and connected patients are empowered patients.

Talking with and learning from others who have had similar experiences can help patients deal with sarcoidosis. To address this, Foundation for Sarcoidosis Research (FSR) tries to connect people to local resources whenever possible. One way we do this is by connecting people to online or local, independent sarcoidosis support groups.

Note: These support groups are not endorsed or run by FSR. If you are interested in an online sarcoidosis community, please check out Inspire.

 

Find a Local Support Group

In-person support groups provide an outlet for patients and family members to share experiences, emotions, and knowledge. Because of this, FSR maintains an online directory of independent sarcoidosis support groups in the U.S. Search for a group in your area using the box below!

Wright Sarcoidosis Support Group

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Denver Sarcoidosis Awareness Group

  • Group Leader: Leonard Holley
  • Email: leonarddsa@q.com
  • Phone Number: (303)-371-0446
  • City: Denver
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Charleston Sarcoidosis Support Group, Low County Sarc Group

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Sarc Support Group of ALA, DC

  • Group Leader: Howard Wilson
  • Phone Number: 2026825864
  • City: Washington
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Sarc Group of Dixon IL

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Houston Sarcoidosis Support Group (Janine’s Sarcoidosis Outreach)

  • Group Leader: Emma Carroll
  • Email: jsof.org@gmail.com
  • Phone Number: (832)-248-6621
  • City: Houston
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Sarcoidosis the Silent Disease Support Group of Central Pennsylvania

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Sarc Patient Forum

  • Group Leader: Paula Polite
  • Phone Number: 9013275454, 9013275455
  • City: Memphis
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Sarcoidosis Awareness Support Group of Greater Baton Rouge

  • Group Leader: Rodney Reese
  • Email: sarcoidgbr@cox.net
  • Phone Number: (225)-773-0985
  • City: Baton Rouge
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Dr. Alvin S. Teirstein Sarcoidosis Support Group

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Wilmington Sarcoidosis Support Group c/o American Lung Association

  • Group Leader: Will Braunlein
  • Phone Number: 302 655-7258 or 3027376414 EXT 16
  • City: Wilmington
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Let’s Talk Sarcoidosis

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Detroit, MI – Sarcoidosis Support Group

  • Group Leader: Sylvia Johnson
  • Phone Number: 313-538-5682
  • City: Detroit
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Triangle Sarcoidosis Support Group

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Sarc Foundation of Texas

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Virginia Sarc Support Group

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Sarcoidosis Healing Network

  • Group Leader: Dalvery Blackwell
  • Phone Number: 414-264-4023
  • City: Milwaukee
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Utah Sarcoidosis Support Group

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Sarcoidosis Support Group of South Florida, Inc.

  • Group Leader: Henry Moya
  • Email: henry@bcs-fl.com
  • City: Miami, FL and surrounding area
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Tampa Bay Support Group

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Tampa Florida Support Group (Janine’s Sarcoidosis Outreach)

  • Group Leader: Fannie Keith
  • Email: jsof.org@gmail.com
  • Phone Number: (813)-466-5876
  • City: Tampa
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Sarcs together of Southern NJ

  • Group Leader: Linda Johns
  • Email: lpin34@aol.com
  • Phone Number: 8565620017
  • City: Voorhees Township
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New England Sarcoidosis Support Group

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Sarcoidosis Support Group of Lumberton

  • Group Leader: Jessica Reid
  • Email: mrsjreid2003@yahoo.com
  • Phone Number: 910-536-8635 or 910-674-4892
  • City: Lumberton
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Surviving Snowflakes Sarc Support Group of MI

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Anne Arundel County Sarc Support Group

  • Group Leader: Betty Powell, Ruth Pinder
  • Phone Number: 4102633123
  • City: Severna Park
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Upstate Sarcoidosis Support Group

  • Group Leader: Brenay McNeil-Webb
  • Phone Number: 864 576-8764
  • City: Spartanburg
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Michigan City, IN – Sarcoidosis Support Group

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The Villages, FL – Sarcoidosis Support Group

  • Group Leader: Therese Bruce
  • Phone Number: 352 751-3545
  • City: The Villages
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Sarcoidosis Support Group

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Sarcoidosis of South Carolina

  • Group Leader: Dr. Eddie Glenn and Chaha Garrett Rice
  • Email: glenn3605@bellsouth.net
  • Phone Number: 803.779.2732
  • City: Columbia
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Sarc Support Group of Long Island

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Let’s Breathe Sarcoidosis Support Group

  • Group Leader: Brenda Harris
  • Email: bharris354@aol.com
  • Phone Number: 2243038155
  • City: Zion
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Inspire

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Sarc Support Group of Michigan

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Sarc, we will win!

  • Group Leader: Cindy Ceurter, Tammy Kozak
  • Email: sarcoidwewillwin@gmail.com
  • Phone Number: 6077658885 or 6079727260
  • City: Newark Valley
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Medical University of SC

  • Group Leader: Katie Shoptaw
  • Email: benfiel@musc.edu
  • Phone Number: 843-792-0373
  • City: Charleston
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ASA

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Snarky Sarci’s of ND

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Central Indiana Sarcoidosis Support Group

  • Group Leader: Gloria Hooks
  • Email: cissg@usa.com
  • Phone Number: 317.809.7011
  • City: McCordsville
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Traverse City, MI – Sarcoidosis Support Group

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S.F. Bay Area Sarcoidosis Support Group

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Shreveport Sarc Support Group

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Sarcoidosis Support, Greater Sudbury and Vicinity

  • Group Leader: Stephanie Hurst
  • Email: sahurst@live.ca
  • Phone Number: (705) 918-3844
  • City: Sudbury
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West Tennessee Sarc Support Group

  • Phone Number: 7319869832
  • City: Huntingdon
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West Tennessee Sarcoidosis Support Group

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Positively Sarcoidosis Support Group

  • Group Leader: Kristin Wolski
  • Email: kwrn02@yahoo.com
  • Phone Number: 7086843872
  • City: Oak Lawn
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SWLA Sarcoidosis Support Group

  • Group Leader: Sabrina Sonnier
  • Email: ssonnier@lcmh.com
  • Phone Number: (337)-842-5939
  • City: Lake Charles
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Youngstown Support Group

  • Group Leader: Pat Couchenour
  • Email: pattws@aol.com
  • Phone Number: 330 549-2712
  • City: Columbiana
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ALA of Illinois

  • Group Leader: Michael L. Mark
  • Email: mmark@lungil.org
  • Phone Number: 800LUNGUSA
  • City: Springfield
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National Sarcoidosis Online Group

  • Group Leader: Frank Rivera
  • City: Online
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Natchez, MS – Sarcoidosis Support Group

  • Group Leader: Jameka Calhoun
  • Phone Number: 601-445-0363
  • City: Natchez
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BayCare Clinic Pulmonology

  • Group Leader: Dr. Raul Mendoza-Ayala
  • Phone Number: 9202888310
  • City: Green Bay
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Chicago West-Sarcoidosis Support Group

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Chicago Southside Sarcoidosis Support

  • Group Leader: Desiree Mack
  • Phone Number: 773-285-2608
  • City: Chicago
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Clayton, GA – Sarcoidosis Support Group

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CSRA Autoimmunity and Chronic Illness Support Group

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N.O. Sarcoidosis Support Group

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Iowa Sarcoidosis Support Group

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Sarcoidosis Outreach and Support Group

  • Group Leader: Alice Minyard
  • Email: Alifay1963@aol.com
  • Phone Number: 256-442-0463
  • City: Rainbow City
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REACH–Sarcoidosis Network Foundation

  • Group Leader: Ruth Jacobs
  • Email: reachsnf@msn.com
  • Phone Number: 562 809-8500
  • City: Artesia
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Sarc Support Group of Decatur

  • Group Leader: Dr. Catherine Roberts
  • Email: c_roberts31@msn.com
  • Phone Number: (678)-667-0774
  • City: Atlanta
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Upstate SC Area Support Group

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Middle Tennessee Sarcoidosis Support Group

  • Group Leader: Becky Robertson
  • Email: br_sarcoid@yahoo.com
  • Phone Number: 931-528-7826
  • City: Cookeville
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Temple University Hospital Sarcoidosis Support Group

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Sarcoidosis Foundation Of WV Inc

  • Group Leader: Yvonne L. James
  • Email: yvonnelj3110@aol.com
  • Phone Number: 304.545.0922
  • City: Charleston Sissonville
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Whitehall, OH – Sarcoidosis Support Group

  • Group Leader: Theresa (Penny) LaMons
  • Email: lamons2@att.net
  • Phone Number: 614-231-8357 or 614-270-1147
  • City: Whitehall
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TeamAndreaFight, LLC

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Faces of Sarcoidosis Support Group

  • Group Leader: Jessica Abouhamama
  • Phone Number: 717-635-0101
  • City: Lancaster
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Sarcoidosis Fort Wayne

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Tri-Cities Sarcoidosis Support Group

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Sarcoidosis of north carolina DBA sarcoidosis of the queen City

  • Group Leader: Hattie M. Crawford
  • Email: qcsf2012@gmail.com
  • Phone Number: 704-519-6056
  • City: Charlotte
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Caring Hands Sarcoidosis Foundation

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Savannah, GA – Sarcoidosis Support Group

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Providence Cook County Hospital

  • Phone Number: (312) 572-2000
  • City: Chicago
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Support Group of North GA

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Lawrence R. Davis Sarcoidosis Foundation, Inc.

  • Group Leader: Barbara Davis
  • Phone Number: 517 484-7831
  • City: Lansing
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Greater Birmingham Sarc Awareness Group

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Central KY Sarcoidosis Support

  • Group Leader: Peggy Baldridge
  • Email: pbaldridge@me.com
  • Phone Number: (859)-327-8395
  • City: Lexington
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Raleigh, NC – Sarcoidosis Support Group

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East Jefferson General Hospital Support Group

  • Group Leader: Better Breathers Club
  • Phone Number: (504) 454-4000
  • City: Metairie
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Sarcoidosis Support Group of Southern Arizona

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New Eagle, PA – Sarcoidosis Support Group

  • Group Leader: Ray Cabaniss
  • Phone Number: 704-531-0723
  • City: New Eagle, PA
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Sarcoidosis Self-help Group

  • Group Leader: Robert Schoenfeld
  • Phone Number: 5164832666
  • City: East Meadow
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Michigan Unstoppable Warriors Sarcoidosis Group

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Bloomington-Normal Sarc Support Group

  • Group Leader: Eddie Glenn
  • Phone Number: 3094387884
  • City: Bloomington-Normal
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Sutton, MA – Sarcoidosis Support Group

  • Group Leader: Carl Copeland
  • Email: ccope90802@aol.com
  • Phone Number: 508-865-8256
  • City: Sutton
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TC Sarcoidosis Support Group

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Hermitage, PA – Sarcoidosis Support Group

  • Group Leader: Dr. Bernadette Kutcher
  • Email: drbkutcher@gmail.com
  • Phone Number: 724-342-4964
  • City: Hermitage
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Sarcoidosis Networking Association

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SarcoidosisUK

  • Group Leader: Jack Richardson
  • Email: jacquijnewton@gmail.com
  • Phone Number: UK Tel: 020 3389 7221 International Tel: +44 20 3389 7221
  • City: Stirling
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PNW Sarkie Sharks

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Living your life with pulmonary disorders

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North Texas & DFW Saarcoidosis Support Group

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Not finding a support group in your area and not ready to start your own?

Reach out to one of our patient ambassadors and get their help! Our patient ambassadors are trained to help patients find the resources they need near them. Your ambassador may know of other support groups in the area that are not sarcoidosis-specific and may be a good source of individual support as well.