Knowledgeable and connected patients are empowered patients.
Talking with and learning from others who have had similar experiences can help patients deal with sarcoidosis. To address this, FSR tries to connect people to local resources whenever possible. One way we do this is by connecting people to online or local, independent sarcoidosis support groups.
Find a Local Support Group
In-person support groups provide an outlet for patients and family members to share experiences, emotions, and knowledge. Because of this, FSR maintains an online directory of independent sarcoidosis support groups in the U.S. Search for a group in your area using the box below!
Inspire
- Group Leader: FSR
- Email: info@stopsarcoidosis.org
- Phone Number: 312-341-0501
- City: Online
- Country: Worldwide
National Sarcoidosis Online Group
- Group Leader: Frank Rivera
- City: Online
- State: Online
- Country: Worldwide
Central Louisiana Sarcoidosis and Autoimmune Support Group
- Group Leader: Edith Canoe
- Email: edithcanoe@yahoo.com
- City: Bentley
- State: Louisiana
- Country: United States
Charleston Sarcoidosis Support Group, Low County Sarc Group
- Group Leader: Marcus Williams, Robin Thomas
- Email: mpwilliams95@yahoo.com, thomas9789@bellsouth.net
- Phone Number: (843)-471-3201
- City: North Charleston
- State: South Carolina
- Country: United States
Chicago Southside Sarcoidosis Support
- Group Leader: Desiree Mack
- Phone Number: 773-285-2608
- City: Chicago
- State: Illinois
- Country: United States
Chicago West-Sarcoidosis Support Group
- Group Leader: Mark Landiak
- Email: mlandiak@CorpDyn.com
- City: Naperville
- State: Illinois
- Country: United States
Clayton, GA – Sarcoidosis Support Group
- Group Leader: Sherri Buie
- Email: bless2xgramgirls@msn.com
- Phone Number: 919 524-3455 919-359-9010
- City: Clayton
- State: Georgia
- Country: United States
CSRA Autoimmunity and Chronic Illness Support Group
- Group Leader: LeAnne Byrd or Lynne Young, RN
- Email: forthebyrdsfive@bellsouth.net
- City: Martinez
- State: Georgia
- Country: United States
Denver Sarcoidosis Awareness Group
- Group Leader: Leonard Holley
- Email: leonarddsa@q.com
- Phone Number: (303)-371-0446
- City: Denver
Detroit, MI – Sarcoidosis Support Group
- Group Leader: Sylvia Johnson
- Phone Number: 313-538-5682
- City: Detroit
- State: Michigan
- Country: United States
Dr. Alvin S. Teirstein Sarcoidosis Support Group
- Group Leader: Pearl Johnson
- Email: Pearl.Johnson@mssm.edu
- Phone Number: (212)-241-8733
- City: New York
- State: New York
- Country: United States
Not finding a support group in your area and not ready to start your own?
Reach out to one of our patient ambassadors and get their help! Our patient ambassadors are trained to help patients find the resources they need near them. Your ambassador may know of other support groups in the area that are not sarcoidosis-specific and may be a good source of individual support as well.