Press Releases

Press Releases

news-release
Education and awareness around sarcoidosis is critical in the push for research to fight this disease.

FSR is pleased to be a resource for patients, professionals and consumers looking for additional information on sarcoidosis and are available to collaborate with the media on in-depth articles and news reports.

FSR has produced a Public Service Announcement to help raise national awareness of this disease. The PSA features famed Boston Celtics basketball player Bill Russell and his daughter Karen, both sarcoidosis patients.

Included in this section are recent press releases and articles about the Foundation which have appeared in popular publications. Members of the media are encouraged to contact at FSR at 312-341-0500 or info@stopsarcoidosis.org for more releases and to request additional information.

Press Releases

Current:

May 7, 2015 Venture philanthropy gains steam, pushes promising science through to patients

April 16, 2015 Foundation for Sarcoidosis Research Announces First New York Fundraiser with Support of EnGeneIC

April 1, 2015 CHEST Foundation and Foundation for Sarcoidosis Research Launch “Seek Answers. Inspire Results.” Campaign for Sarcoidosis Patients

Sept 19, 2014    Transparency Life Sciences To Conduct Sarcoidosis Trial For Auven Therapeutics’ Kiacta™ Using Crowdsourcing And Telemonitoring

Sept 4, 2014     PatientCrossroads Launches New Patient Registries

May 15, 2013    FSR Supporter Establishes the Dr. James and Dr. Sharma Fund

Feb 22, 2013     K.I.S.S. Event Rocks the Casbah

Feb 17, 2013     FSR Receives $500,000 Donation to Support Mission

Dec 11, 2012     FSR Plans Annual K.I.S.S. Event

 

Archived:

November 5, 2011 More than 200 join FSR and Mt. Sinai for Patient Conference
November 1, 2011 FSR receives generous donation from 1st golf tournament
October 19, 2011 FSR awards research grant to Dr. Nabeel Hamzeh
September 25, 2011 Team Sarcoidosis walks in 5th Annual Hike for Lung Health
September 10, 2011 Calcutta Tournament Benefits FSR for the 6th Year
June 21, 2011 FSR-funded researcher, Lobelia Samavati, MD, concludes project with promise of ongoing research
April 29, 2011 Nationawide efforst raise awareness during Sarcoidosis Awareness
February 14, 2011 Two foundations applaud NHLBI proposal for $12 million research study on the genetics of Sarcoidosis and Alpha-1 Antitrypsin Deficiency

FSR In the News
Featuring interviews with FSR Leadership.

April 2010 Sarcoidosis Awareness Month. Minnesota Healthcare News. Volume 8, Number 4, April 2010.
March 20, 2010 26 N Halsted. WCIU TV Chicago.
March 2010 Celebrating the Anniversary of the NDRI Rare Disease Effort. The NDRI Interchange. Volume 26, No.1.
July 11, 2009 What is Sarcoidosis? Saturday Mornings with Joy Keys on Blog Talk Radio.
August 14, 2008 Sarcoidosis Community Mourns Bernie Mac; Says More Awareness Needed for Disease. ABC News. 2008 Aug 14
August 12, 2008 Bernie Mac’s death puts sarcoidosis in spotlight; Those with sarcoidosis often live with fear of sudden death. Chicago Tribune. 2008 Aug 12.
February 6, 2007 Partiers Seek to K.I.S.S. this Disease Goodbye. Chicago Sun Times. 2007 Feb 6.
February 5, 2006 Sarcoidosis: Interviews with SAB Chair Dave Moller and FSR President Andrea Wilson. Radio Health Journal.
August 15, 2005 Sarcoidosis: Scattered Symptoms Make Detection Difficult. Nursing Spectrum. 2005 Aug 15.
August 2005 The Mystery of Sarcoidosis and Why it Affects So Many Blacks. Ebony Magazine. 2005 Aug; 106-108.
July 8, 2005 Governor Signs Law to Help Fund Sarcoidosis Research. IDPH. 2005 Jul 8.
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