Education and awareness around sarcoidosis is critical in the push for research to fight this disease.
FSR is pleased to be a resource for patients, professionals and consumers looking for additional information on sarcoidosis and are available to collaborate with the media on in-depth articles and news reports.
FSR has produced a Public Service Announcement to help raise national awareness of this disease. The PSA features famed Boston Celtics basketball player Bill Russell and his daughter Karen, both sarcoidosis patients.
Included in this section are recent press releases and articles about the Foundation which have appeared in popular publications. Members of the media are encouraged to contact at FSR at 312-341-0500 or email@example.com for more releases and to request additional information.
Sept 4, 2014 PatientCrossroads Launches New Patient Registries
Feb 22, 2013 K.I.S.S. Event Rocks the Casbah
Feb 17, 2013 FSR Receives $500,000 Donation to Support Mission
Dec 11, 2012 FSR Plans Annual K.I.S.S. Event
|November 5, 2011||More than 200 join FSR and Mt. Sinai for Patient Conference|
|November 1, 2011||FSR receives generous donation from 1st golf tournament|
|October 19, 2011||FSR awards research grant to Dr. Nabeel Hamzeh|
|September 25, 2011||Team Sarcoidosis walks in 5th Annual Hike for Lung Health|
|September 10, 2011||Calcutta Tournament Benefits FSR for the 6th Year|
|June 21, 2011||FSR-funded researcher, Lobelia Samavati, MD, concludes project with promise of ongoing research|
|April 29, 2011||Nationawide efforst raise awareness during Sarcoidosis Awareness|
|February 14, 2011||Two foundations applaud NHLBI proposal for $12 million research study on the genetics of Sarcoidosis and Alpha-1 Antitrypsin Deficiency|
FSR In the News
Featuring interviews with FSR Leadership.
|April 2010||Sarcoidosis Awareness Month. Minnesota Healthcare News. Volume 8, Number 4, April 2010.|
|March 20, 2010||26 N Halsted. WCIU TV Chicago.|
|March 2010||Celebrating the Anniversary of the NDRI Rare Disease Effort. The NDRI Interchange. Volume 26, No.1.|
|July 11, 2009||What is Sarcoidosis? Saturday Mornings with Joy Keys on Blog Talk Radio.|
|August 14, 2008||Sarcoidosis Community Mourns Bernie Mac; Says More Awareness Needed for Disease. ABC News. 2008 Aug 14|
|August 12, 2008||Bernie Mac’s death puts sarcoidosis in spotlight; Those with sarcoidosis often live with fear of sudden death. Chicago Tribune. 2008 Aug 12.|
|February 6, 2007||Partiers Seek to K.I.S.S. this Disease Goodbye. Chicago Sun Times. 2007 Feb 6.|
|February 5, 2006||Sarcoidosis: Interviews with SAB Chair Dave Moller and FSR President Andrea Wilson. Radio Health Journal.|
|August 15, 2005||Sarcoidosis: Scattered Symptoms Make Detection Difficult. Nursing Spectrum. 2005 Aug 15.|
|August 2005||The Mystery of Sarcoidosis and Why it Affects So Many Blacks. Ebony Magazine. 2005 Aug; 106-108.|
|July 8, 2005||Governor Signs Law to Help Fund Sarcoidosis Research. IDPH. 2005 Jul 8.|