FSR is hoping to better understand the experiences of patients from when they were first diagnosed with sarcoidosis. What messages did your doctor share with you when you were diagnosed? Did those messages help prepare you to live with sarcoidosis? How would YOU describe sarcoidosis to a newly diagnosed patient?
We believe there is inconsistency in the types of messages patients receive when they are diagnosed, due sometimes to a fear of scaring patients and oftentimes due to a lack of knowledge among physicians about what sarcoidosis can and cannot do. FSR hopes to inform physicians about this discrepancy and drive more consistency in what patients hear from the time they are diagnosed.
Your answers to this survey will help us identify trends in the types of messages patients receive when they are diagnosed. We hope the trends will allow us to identify problem areas and highlight ways in which FSR can address them to help all newly diagnosed patients in the future.
We expect this survey to take no more than 5 minutes of your time. Please complete all questions and remember to hit “submit” at the bottom of the page. Thanks in advance for your feedback!