Events

To raise awareness and unite the community during April’s Sarcoidosis Awareness Month, FSR will be hosting a month-long virtual endurance and fundraising challenge! The Steps for Sarc campaign will include a virtual distance and fundraising challenge. Our goal is to amplify our message and connect sarcoidosis warriors around the world. During the entire month of April, we invite all members of the community to walk, run, step, or hike all so that we can reach 9 MILLION steps collectively or complete the equivalent of 4,500 miles! That is the equivalent to the distance between Chicago, IL to Milan, Italy! Additionally,...

Please join us on Saturday, April 17, 2021 from 11:00AM – 12:00 PM CST (12-1PM EST, 10-11 AM MT, 9-10AM PST). Life with sarcoidosis is full of setbacks. It’s full of renegotiating what you can and can’t do anymore. And having a mindset focused on growth can change everything. Join FSR Patient Advocate, Trina Massey-Davis, as she shares her story of how shifting her mindset can have a ripple effect on life with a chronic disease. Topics of discussion include: Understanding where your focus How to keep your focus and get to where you want to be Building a new normal...

Please join us on Saturday, April 17, 2021 from 1:00PM – 2:30 PM CST (2-3:30PM EST, 12-1:30PM MT, 11AM-12:30PM PST). Food is fuel for the body and soul. Join FSR in our first ever nutrition education and cooking class! We’ll learn together and cook together! Our friendly recipe will be sent out to registered attendees ahead of time so we can all make our tasty treats at the same time! Register here: https://www.eventbrite.com/e/lets-eat-a-cooking-nutrition-class-for-people-living-with-sarcoidosis-tickets-144706116891 About our facilitator: Sydney Axelrod is the Senior Dietitian at the Mount Sinai - National Jewish Health Respiratory Institute in New York City. In her current role, Sydney...

Please join us on Saturday, April 24, 2021 from 1-2:30PM CST (2-3:30PM CST, 12-1:30PM MT, 11AM-12:30PM PST). Many individuals living with sarcoidosis experience chronic pain and severe fatigue on a regular basis. The complicated nature of sarcoidosis and its different effects on the body make the explanation of these phenomena more difficult. Research has shown the pain decreasing effects of educating those living with chronic pain about the nature of this pain. Furthermore an understanding of how pain work provides those living with it to understand how and when to integrate other helpful tools for pain management. This presentation will...

On Monday, April 26, 2021, from 5:00PM–6:00PM CST, FSR will be hosting our first virtual Memorial Monday Candlelight Vigil to honor and remember those we lost to sarcoidosis. To celebrate the event FSR has partnered with candle company, Scents of Adventure, to help us Celebrate Life. Scents of Adventure made a custom candle for the event and will donate a portion of the candle proceeds back to FSR. To purchase a candle visit the Scents of Adventure website and pre-order your candle today! The Memorial Monday Candlelight Vigil will include a special tribute presentation and speakers who will guide the...

Please join John Carlin, FSR Patient Advocate and host of the Sarc Fighter podcast, on Tuesday, April 27, at 11:00AM CST (12PM EST, 10AM MT, 9AM PST) as he moderates this panel discussion on sarcoidosis and steroids. Panelists include: Jessica Reid, FSR Patient Advocate, Dr. Elliott Crouser, Chair of FSR's Scientific Advisory Board, and Dr. Sanjay Shukla, President and CEO of aTyr Pharma. To register, please click here.   Speaker Bios John Carlin (moderator) is an award-winning news anchor currently working at WSLS 10 in Roanoke, Virginia.  He is the host of the bi-weekly SarcFighter Podcast. He is a FSR Patient Advocate...

Please join us on Saturday, May 8, 2021 from 11AM-12PM CST (12-1PM EST, 10-11AM MT, 9-10AM PST). Sarcoidosis can affect any organ, including eyes, and May is National Healthy Vision Month! Sarcoidosis of the eyes can bring any number of symptoms, and it’s important to understand what to look for, even if you haven’t been diagnosed with this manifestation. Join FSR Patient Advocate and Navigator, Jim Kuhn, as he shares his own experience with ocular sarcoidosis, and how an eye exam finally lead to a diagnosis. We’ll also explore and discuss the following topics:  Getting to know the basics fo ocular sarcoidosis  What to...