This summer marked the one-year anniversary of the new platform for the FSR-SARC Patient Registry (FSR Registry) – a major milestone made possible by the incredible contributions of our patient community, researchers, and partners. The new platform (hosted on Across...
As we reflect on Brenda Harris’s life and legacy, we remember with gratitude our dear friend and longtime volunteer whose dedication touched so many in the sarcoidosis community. Brenda was one of FSR’s longest serving volunteers, supporting the Foundation for...
Free educational summit brings together nationally recognized specialists, healthcare professionals, patients, and care partners to improve sarcoidosis care across the region The Foundation for Sarcoidosis Research (FSR), the leading international organization...
The Foundation for Sarcoidosis Research (FSR) is proud to share our implementation of a Patient Stakeholder Reviewer Panel into our grant review cycles. This is a review process that brings the patient voice directly into evaluation of research proposals. It gives...
The Foundation for Sarcoidosis Research (FSR) has awarded $700,000 in grant funding to four awardees through its Early Career Fellowship and Established Investigator grant funding opportunities. The 2026 Established Investigator Grant has been awarded to Dr. Laura...
The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for those living with the disease, has announced a new partnership with Patient Advocate Foundation, the nation’s most...
In May 2026, the FSR team came together in Orlando, Florida for the 2026 American Thoracic Society (ATS) International Conference. ATS is a major professional gathering that brings health care professionals, industry representatives, nonprofit organizations, and...
Through the long-standing collaboration between Foundation for Sarcoidosis Research (FSR) and the American Thoracic Society (ATS), FSR and ATS are pleased to announce that John Matthew “Matt” Craig, PhD, has joined ATS staff as Senior Vice President, Translational...
The American Academy of Dermatology (AAD) 2026 Annual Meeting in Denver in March 2026 was an important moment for the sarcoidosis community, especially for people living with skin (cutaneous) sarcoidosis. This year’s meeting featured more than 275 sessions covering...
The Foundation for Sarcoidosis Research (FSR) has been named a 2025 RareVoice Awards recipient by EveryLife Foundation for Rare Diseases, earning national recognition for Federal Advocacy by a Patient or Organization. The award honors FSR’s leadership in securing a...
