Written by Janet Mockovciak and posted on PharmacyChecker.com Living with a rare disease can at times feel like it totally consumes all of your time. Between medical appointments with numerous out-of-state specialists, managing prescription drugs, following up with...
The Foundation for Sarcoidosis Research (FSR) proudly announces the addition of nine institutions to the FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA), bringing the Alliance to 55 members strong. The new members – AdventHealth Orlando, Avicenne University Hospital...
This summer marked the one-year anniversary of the new platform for the FSR-SARC Patient Registry (FSR Registry) – a major milestone made possible by the incredible contributions of our patient community, researchers, and partners. The new platform (hosted on Across...
As we reflect on Brenda Harris’s life and legacy, we remember with gratitude our dear friend and longtime volunteer whose dedication touched so many in the sarcoidosis community. Brenda was one of FSR’s longest serving volunteers, supporting the Foundation for...
Free educational summit brings together nationally recognized specialists, healthcare professionals, patients, and care partners to improve sarcoidosis care across the region The Foundation for Sarcoidosis Research (FSR), the leading international organization...
The Foundation for Sarcoidosis Research (FSR) is proud to share our implementation of a Patient Stakeholder Reviewer Panel into our grant review cycles. This is a review process that brings the patient voice directly into evaluation of research proposals. It gives...
The Foundation for Sarcoidosis Research (FSR) has awarded $700,000 in grant funding to four awardees through its Early Career Fellowship and Established Investigator grant funding opportunities. The 2026 Established Investigator Grant has been awarded to Dr. Laura...
The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for those living with the disease, has announced a new partnership with Patient Advocate Foundation, the nation’s most...
In May 2026, the FSR team came together in Orlando, Florida for the 2026 American Thoracic Society (ATS) International Conference. ATS is a major professional gathering that brings health care professionals, industry representatives, nonprofit organizations, and...
Through the long-standing collaboration between Foundation for Sarcoidosis Research (FSR) and the American Thoracic Society (ATS), FSR and ATS are pleased to announce that John Matthew “Matt” Craig, PhD, has joined ATS staff as Senior Vice President, Translational...
