Category: News

Your Holiday Shopping Could Help FSR!

Your Holiday Shopping Could Help FSR!

It’s that time of year again- no matter what holidays you celebrate, it’s the season for giving and everyone’s stocking up on gifts for friends, family, and themselves too. If you’re shopping for any of these gifts online, did you know that you...
Our Online Support Group Hit 40,000 Members!

Our Online Support Group Hit 40,000 Members!

Our online support community has continued to grow over the past few years, reaching 40,000 online members this month! The Stop Sarcoidosis support community is hosted on the platform Inspire, which provides a space for online support communities that allow patients...
3 Ways to Celebrate #GivingTuesday with FSR

3 Ways to Celebrate #GivingTuesday with FSR

It’s Giving Tuesday- for those who don’t know, this event happens annually on the Tuesday after Thanksgiving. Giving Tuesday is essentially the nonprofit world’s version of “Black Friday” or “Small Business Saturday” and gives...
FSR Represented at ATS Public Advisory Roundtable

FSR Represented at ATS Public Advisory Roundtable

FSR Executive Director Ginger Spitzer attended the 2017 ATS Public Advisory Roundtable Planning Meeting on Nov 17-18 in Miami. Our membership in PAR allows FSR to continue our work toward advocating for patients and ensuring the patient perspective into clinical and...
World Lung Day is September 25

World Lung Day is September 25

The Forum of International Respiratory Societies (FIRS) has created a charter to recognize September 25th as World Lung Day. The purpose of the charter is to draw attention to the global issue of respiratory health and the increasing challenges that individuals with...
FSR Signs Support for DIA and ODTC

FSR Signs Support for DIA and ODTC

The Foundation for Sarcoidosis Research recently signed two petitions to show our support for important polices that directly impact many sarcoidosis patients. FSR makes sure to stay informed on policies that will affect the rare disease community and our patient...
Strategic Planning Session with Board Members

Strategic Planning Session with Board Members

Last week, the FSR staff enjoyed a visit from our Co-Founders Andrea and Reading Wilson, as well as Board of Directors Member Louise Perkins. The three board members joined staff for a strategic planning session focusing on the organization’s growth and...
Can Tracking Fitness Help Sarcoidosis Patients?

Can Tracking Fitness Help Sarcoidosis Patients?

Tracking your fitness may be a way to help manage symptoms and side effects for sarcoidosis patients. As many sarc warriors know, it can be extremely difficult to stay active when you’re living with sarc. Between the chronic pain, fatigue, shortness of breath,...