Lessons from a rude awakening Everyone suffering from sarcoidosis has a unique story to tell. There is nothing cookie-cutter about how the disease presents itself, how it is diagnosed, how it is treated and how the course of the disease will run. So, here’s my...
The Foundation for Sarcoidosis Research (FSR) is proud to share our implementation of a Patient Stakeholder Reviewer Panel into our grant review cycles. This is a review process that brings the patient voice directly into evaluation of research proposals. It gives...
Sarcoidosis has deeply impacted my family. My late grandmother lived with the disease, and my mother has been courageously managing it for over 30 years. While it has brought challenges, it has also shown me what strength, love, and resilience truly look like....
“Ten years ago, I heard a word that would quietly change the course of my life: sarcoidosis. At the time, I had no idea how much that single word would teach me—about patience, uncertainty, suffering, resilience, and the deep importance of living mindfully in...
In 1997, after several months of dealing with confusing symptoms, I was diagnosed with sarcoidosis in my lungs and lymph nodes. The surgeon who completed the biopsy suggested I not bother to research the disease, as it would scare me. On my way home from the hospital,...
It is with deep sadness that we share the passing of our dear friend and longtime volunteer, Bob Gross. For many years, Bob was a dedicated FSR Patient Navigator, always offering his time to ensure those newly diagnosed with sarcoidosis or diagnosed with a new...
The Foundation for Sarcoidosis Research (FSR) is proud to celebrate a major milestone for the FSR Sarc Fighter Podcast, which has officially surpassed 100,000 downloads since its launch in 2020. Hosted by John Carlin, member of the FSR Board of Directors and...
My name is Scarlette Washlock, and I was diagnosed with sarcoidosis when I was 12 years old. I am honored that the Foundation for Sarcoidosis Research asked me to share my story. As I brainstormed what to write, I felt so fatigued that I had to sleep and try again the...
For Molly Flick, the loss of her mother, Dawn Heilman, was more than just the passing of a loved one—it was a call to action. In her search for a meaningful way to honor her mother’s memory, Molly discovered the Foundation for Sarcoidosis Research (FSR). What began as...
On October 28, 2024, the Foundation for Sarcoidosis Research (FSR) hosted a groundbreaking Externally Led Patient-Focused Drug Development (EL-PFDD) meeting on sarcoidosis with the U.S. Food and Drug Administration (FDA). This virtual event attracted nearly 350...
