Category: Patient Voices

FSR’s Women of Color Committee

FSR’s Women of Color Committee

Foundation for Sarcoidosis Research is seeking applicants for our first Women of Color Committee. African Americans in the U.S. have been the group most affected by sarcoidosis with an estimated lifetime risk as high as 2% among the population. Additionally, African...
Meet FSR’s Founders the Wilsons!

Meet FSR’s Founders the Wilsons!

As part of FSR’s 20th Anniversary, we’re profiling some of the people who make everything we do at FSR possible, including our co-founders, Board of Directors, and staff. First up, meet our co-founders, the Wilsons! Andrea Wilson is a sarcoidosis warrior...
Traveling the World with Sarcoidosis

Traveling the World with Sarcoidosis

I had the good fortune this past summer to travel to Norway.  Even more special than being in this gorgeous place was how healthy I felt on this trip.  I was able to take walks with my husband, Jay, and our 15-year old son, Andrew, and paddle a kayak under the...
Life After Transplant: Two Stories of Cardiac Sarcoidosis

Life After Transplant: Two Stories of Cardiac Sarcoidosis

While cardiac sarcoidosis is diagnosed in around 2-5% of sarcoidosis patients in the United States, recent studies are causing some experts to estimate that the number may be as high as 20-30% of sarcoidosis patients in the U.S. Read about two patient’s experiences with cardiac sarc and heart transplants!

Living a Sarc-Adjusted Lifestyle

Living a Sarc-Adjusted Lifestyle

Since I was first diagnosed 6 years ago, sarcoidosis has changed my entire life, far beyond just my health. More so, it has impacted those around me, including my spouse, family, friends, healthcare team, and even people I’ve yet to meet. I have lost track of the...
Why Sarcoidosis Trials are Important

Why Sarcoidosis Trials are Important

What is a Clinical Trial? A clinical trial is part of the research process used to help manage or treat a disease or condition. Trials typically occur after some baseline research into a new treatment has taken place and advanced research is necessary to move the...