26 Patient Volunteer Leaders representing 16 states and 17 hospitals joined the Foundation for Sarcoidosis Research (FSR) at the inaugural FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Volunteer Patient Leadership Advanced Training Conference held at Cleveland...
The Foundation for Sarcoidosis Research is part of a 27-member coalition dedicated to improving access to supplemental oxygen for all in need. Chasta Posey, FSR Patient Advocate, Patient Navigator, Member of the FSR Women of Color Advisory Committee, and FSR Global...
Why is finding your community important? After a diagnosis that changes your life, you need people who understand the journey you are about to embark on and find strength and support from others. After getting my sarcoidosis diagnosis I felt alone, I have family,...
Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, conducted a two-day training of patient Volunteer Leaders to collaborate with and support the FSR...
My journey with Interstitial Lung Disease (ILD) started about 15 years ago, although I did not know it at the time, nor did the physicians who were then treating me. At an annual physical, at the age of 46, I mentioned that my knees were a bit sore after physical...
The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, conducted a two-day training of patient volunteer leaders to collaborate with and support the FSR...
It’s easy to set hard caps on paper about how many pills a doctor can prescribe. It’s a lot harder to address the constellation of issues that lead people to illegally buy and use narcotics. The two aren’t necessarily linked, but we continue to behave as if they are....
I had a dripping faucet in my home that was repaired recently. This annoyance somehow made me think about sarcoidosis and how it is much like a dripping faucet, except for one annoying fact that sarcoidosis cannot be repaired. Strangely comical how a dripping...
Darlene Anita Scott is a writer and visual artist living with sarcoidosis. She applied to become an FSR Global Sarcoidosis Clinic Alliance (GSCA) Community Outreach Leader and is dedicated to sharing her sarcoidosis story with the public to raise awareness and help...
“My hope is that this campaign will greatly increase awareness of sarcoidosis and encourage Black patients to participate in clinical trials. That will ultimately improve our lives and benefit everyone in the sarcoidosis community.” Calvin Harris FSR Patient...
