Category: Patient Voices

Being an Engaged Patient: Staying Up-to-Date on Research

Being an Engaged Patient: Staying Up-to-Date on Research

In 2014, I was diagnosed with sarcoidosis during an unrelated ER visit for an auto accident. I had a chest x-ray to rule out a fracture from the seat belt, and unbeknownst to me, I had hilar and mediastinal lymphadenopathy. My journey with sarcoidosis began that...
7 Questions for a New Medication

7 Questions for a New Medication

Doctor’s visits while dealing with sarcoidosis can feel overwhelming. Sarcoidosis patients often have a lot of symptoms, medications, doctors, and other things to juggle. When you get to the doctor, it sometimes feels like there is not enough time to cover...
Life After Transplant: Two Stories of Cardiac Sarcoidosis

Life After Transplant: Two Stories of Cardiac Sarcoidosis

While cardiac sarcoidosis is diagnosed in around 2-5% of sarcoidosis patients in the United States, recent studies are causing some experts to estimate that the number may be as high as 20-30% of sarcoidosis patients in the U.S. Read about two patient’s experiences with cardiac sarc and heart transplants!