FSR is now hiring for:
Director of Global Patient Programs
Reporting directly to the Chief of Staff and Strategy, the Director of Global Patient Programs is responsible for developing, communicating, executing, and sustaining strategic initiatives that advance all of FSR’s patient education and support programs. Patient education and support programs include but not limited to webinars, town halls, annual patient conferences, creation of educational infographics and special events. In addition, support programs include peer-led support groups, one-on-one patient navigator program, patient advocates program, patient advisory committees and other initiatives to educate, support and empower patients.
FSR works to ensure that every sarcoidosis patient in every community has access to free education, support services, and has a network of others living with sarcoidosis. One of the ways we accomplish this is through our Sarcoidosis Global Clinic Alliance (GSCA). The FSR-GSCA, is an innovative partnership and membership network of institutions nationwide focused on programs to support sarcoidosis patients and clinicians. The Senior Director will oversee the patient trained Alliance leaders including Community Outreach Leaders and Community Group Leaders and will also create and run FSR combined patient and clinical engagement Alliance initiatives. Working with the Chief of Staff and Strategy and the CEO, the Director will prospect and identify opportunities for new Alliance memberships and identify synergies with new and potential partners to engage them in capacity building opportunities for future growth of the Alliance.
Read the full job description here. To apply, please fill out this form here.
Senior Coordinator, Global Patient Programs
The FSR Senior Coordinator of Global Patient Programs provides support for all volunteer programs, patient education, and patient support programs. The Senior Coordinator is responsible for arranging and managing volunteer meetings, recruitment, trainings, and for providing logistical support for all volunteer activities. The Senior Coordinator is responsible for assisting in the i development and execution of patient-facing educational programs such as webinars, town halls, and our bi-annual summit. Furthermore, the Senior Coordinator is responsible for administrative and technical support including maintaining trackers, building reports, note taking, and coordination of meetings.
Read the full job description here. To apply, please fill out this form here.
Data Analyst
The FSR Data Analyst will play a pivotal role in execution of FSR’s strategic and operational plans for research development and growth. The Data Analyst will contribute directly to the interpretation and communication of the results of FSR data programs and initiatives, helping to translate the data into actionable insights for FSR and partnered researchers. The Data Analyst will also support the management of data governance plans, data access requests, and survey design to ensure studies are adequately powered. The Data Analyst will play a pivotal role in establishing and stewarding data collaborations with institutions, researchers, and patient-leaders. They will be a creative leader dedicated to advancing sarcoidosis research to improve the lives of those living with sarcoidosis. This position has the option of being remote.
Reporting directly to the Vice President of Research, the Data Analyst is responsible for supporting the facilitation, tracking, reporting on, and expansion of the data captured through FSR programming and will help to shape FSR future research strategies.
Read the full job description here. To apply for this position, please provide a resume and cover letter to Elise Hoover, Vice President of Research at elise@stopsarcoidosis.org.