The FSR Clinical Studies Network (FSR-CSN) brings together an international consortium of world-renowned medical institutes and researchers for unprecedented collaboration in multi-site studies and drug trials in sarcoidosis research. The goals of the network are to:
- collaborate for studies,
- test the efficacies of treatment approaches,
- measure the impact of re-purposed drug treatments,
- and rapidly screen new promising compounds that emerge from biomedical research, significantly decreasing the time and amount of money needed to develop them.
FSR-CSN provides a forum to address a range of important but unanswered questions in sarcoidosis, facilitates a move towards broader consensus about clinical endpoints, and enables pharmaceutical industry entrance into the sarcoidosis space with less perceived risk. As an active, working entity, the Network provides a valuable resource for industry, academia, and individual researchers.
The FSR Clinical Studies Network (FSR-CSN) is led by a Steering Committee composed of the Principal Investigators from each participating institution. FSR-CSN 2018 – 2020 cycle is composed of 12 sites, two international and 10 U.S.-based.
Work of the FSR- CSN to date has included two internal studies and several industry-initiated trials. All results will be published in professional and/or other publications and reports.
| FSR-CSN SITES, SECOND GRANT PERIOD 2018 – 2020 | ||
| Site | Location | Primary Investigator (Awardee) |
| Albany Medical College | Albany, NY | Judson, Marc |
| Cleveland Clinic | Cleveland, OH | Culver, Daniel |
| Medical University of South Carolina | Charleston, SC | James, Ennis |
| National Jewish Health | Denver, CO | Maier, Lisa |
| Northwestern University Feinberg School of Medicine | Chicago, IL | Sporn, Peter |
| Papworth Hospital | Cambridge, United Kingdom | Thillai, Muhunthan |
| St. Antonius Hospital | Nieuwegein, Netherlands | Veltkamp, Marcel |
| University of Cincinnati | Cincinnati, OH | Baughman, Robert |
| University of Illinois College of Medicine at Chicago | Chicago, IL | Sweiss, Nadera |
| University of Iowa Health Care | Iowa City, IA | Hamzeh, Nabeel |
| University of Pennsylvania | Philadelphia, PA | Ligon, Colin |
| University of Washington Medical Center | Seattle, WA | Raghu, Ganesh |
| FSR-CSN SITES, FIRST GRANT PERIOD 2016 – 2018 | ||
| Site | Location | Primary Investigator (Awardee) |
| Albany Medical College | Albany, NY | Judson, Marc |
| Hôpital Avicenne | Bobigny, France | Valeyre, Dominique |
| Cleveland Clinic | Cleveland, OH | Culver, Daniel |
| Johns Hopkins Medicine | Baltimore, MD | Chen, Edward |
| National Jewish Health | Denver, CO | Maier, Lisa |
| St. Antonius Hospital | Nieuwegein, Netherlands | Grutters, Jan |
| University of Cincinnati | Cincinnati, OH | Baughman, Robert |
| University of Illinois Hospital & Health Sciences System | Chicago, IL | Sweiss, Nadera |
| ILD Care Foundation; WASOG President | (not a site) | Drent, Marjolein: CSN Steering Committee Chair |
