Category: FSR Events
26 Patient Volunteer Leaders Attend the Foundation for Sarcoidosis Research Global Sarcoidosis Clinic Alliance Volunteer Patient Leadership Advanced Training Conference held at Cleveland Clinic
26 Patient Volunteer Leaders representing 16 states and 17 hospitals joined the Foundation for Sarcoidosis Research (FSR) at the inaugural FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Volunteer Patient Leadership Advanced Training Conference held at Cleveland...
FSR to Host 30 Volunteer Patient Leaders at Unique In-Person Training at Cleveland Clinic
The Foundation for Sarcoidosis Research (FSR) is honored to host its inaugural in-person training of FSR-GSCA Volunteer Patient Leaders from around the United States at Cleveland Clinic, the FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Founding Member. This...
The importance of finding your sarcoidosis community
Why is finding your community important? After a diagnosis that changes your life, you need people who understand the journey you are about to embark on and find strength and support from others. After getting my sarcoidosis diagnosis I felt alone, I have family,...
FSR Inaugural Sarcoidosis Crystal Awards Gala to Honor Exceptional Individuals in the World of Sarcoidosis
The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, announces FSR’s Inaugural Sarcoidosis Crystal Awards Gala: Celebrating Connections, Collaboration,...
FSR to Hold Third Annual Global Virtual Patient Summit: Unveiling Possibilities
FSR is proud to bring together sarcoidosis patients, caregivers, and family and friends at the Third Annual Global Virtual Patient Summit: Unveiling Possibilities. This summit is the world’s largest virtual sarcoidosis patient event. This year’s summit...
FSR Virtual Sarcoidosis Support Group
FSR Sarcoidosis Support Group In response to feedback received in 2021 and a growing need to support patients where they are, FSR has launched an online peer-led support group for people living with sarcoidosis. While 2025 will bring additional, more localized...
Save the Date for our Virtual Patient Education Summit – June 12-13th!
Click here to register now! Join us for this year’s Virtual Patient Education Summit, June 12-13, 2021! Our summits in September and November of 2020 were incredibly successful. This year we will be offering a unique two-day experience on a fun, interactive...
Steroids and Sarcoidosis Town Hall Virtual Meeting
Please join John Carlin, FSR Patient Advocate and host of the Sarc Fighter podcast, on Tuesday, April 27, at 11:00AM CST as he moderates this panel discussion on sarcoidosis and steroids.
