Our mission is to stop sarcoidosis — join us.
The sarcoidosis community needs your help to put an end to this disease. When you participate, advocate, and donate, you advance the fight to find the cure and lead us toward a world without sarcoidosis.
FSR Attends Hill Day
On Oct. 2nd and 3rd FSR’s Executive Director, Ginger Spitzer, was able to travel with PAR to Washington D.C for ATS Hill Day.
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Ask The Ambassadors: How to Navigate Medical Expenses
We reached out to our patient ambassadors and asked for their advice on navigating the medical expenses that come with sarcoidosis.
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Understanding Cardiac Sarcoidosis
Cardiac sarcoidosis is diagnosed in 2-5% of patients with systemic sarcoidosis. However, some reports are showing that the incidence of cardiac sarcoidosis in the US may be as high as 20-30% in sarcoidosis patients.
For the patients who go undiagnosed, the repercussions can sometimes be fatal. Wendy Ullmer, a 36-year-old from Wisconsin was unfortunately one of those cases, leaving her husband and their four young boys devastated by her loss. Read her story and learn the signs and symptoms that indicate you should talk to you doctor about screening for cardiac involvement.
What is an FSR Patient Ambassador?
All of our patients ambassadors have a different experience and a different reason for becoming an ambassador. Find out in their own words what our patients ambassadors do and why they became involved with this program.
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