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The Stages of Pulmonary Sarcoidosis- What Do They Really Mean?
It’s estimated that at least 90% of patients with sarcoidosis will experience lung involvement. Chest x-rays are often used to determine the nature of the disease. However, the results of this imaging can cause confusion for sarc patients- your doctor...
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Rough Roads: Cycling with Sarcoidosis
John Carlin is an award-winning news anchor currently working at WSLS 10 in Roanoake, Virginia. He's also an avid cyclist, a strong pillar of his local community, a loving husband and father, and a sarcoidosis warrior. Several years back, John began...
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Local Advocacy Opportunities in Your Hometown!
Rare disease patients find out soon after a diagnosis that they'll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even though...
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The Long Road to Diagnosis
Allison Hawley- like so many other sarcoidosis patients- has had a tough time getting a diagnosis. Her journey has been filled with misdiagnoses, complicated tests and procedures, and doctors scratching their heads. Allison attended the FSR Patient Conference in...
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