Patient Registry Tutorial Video Series

Patient Registry Video Tutorials

Investigating Alternative Treatments: Turmeric

Investigating Alternative Treatments: Turmeric

DISCLAIMER: This information provided by FSR is NOT intended to serve as medical advice, a substitute for consulting with a doctor, or to be used for diagnosing or treating a disease. Users of this website are advised to consult with their physician before making any decisions concerning their health.   Many sarcoidosis patients struggle with treatment options. With…

One-Question Survey: Future Clinical Trial for Pulmonary Sarc

One-Question Survey: Future Clinical Trial for Pulmonary Sarc

Dear Pulmonary Sarcoidosis Patient, FSR is reaching out with our partner Transparency Life Sciences to ask if you would be interested in a future clinical trial of a new drug candidate for pulmonary sarcoidosis. This trial would test the drug Kiacta (eprodisate), an oral medication that could reduce your steroid dose and avoid unfavorable side-effects….

Participate in #GivingTuesday today!

Participate in #GivingTuesday today!

  What is Giving Tuesday? Giving Tuesday comes on the heels of the infamous Black Friday and other designated shopping days like “Small Business Saturday” and “Cyber Monday.” However, instead of focusing on buying things, Giving Tuesday is all about giving back! It’s an opportunity to make some contribution- large or small, monetary or volunteering- to a charitable…

Mindfulness and Chronic Illness

Below are excerpts from an article written by Dr. Lesley Saketkoo, MD, MPH called “Mind and Body Strength” Gentle Listening to the Softening Breath.” Dr. Saketkoo will speak on mindfulness and chronic illness in a webinar on December 8th, 12 noon CT that is cohosted by Inspire, Scleroderma Foundation, and FSR. The webinar is called “Managing…

Environmental Triggers: An Odyssey of Exposures

Environmental Triggers: An Odyssey of Exposures

  It was 1976 and Theresa Michelle— a newlywed working at the Department of Justice in Washington D.C.—was having trouble holding on to heavy pots and pans. She was soon diagnosed with rheumatoid arthritis, but couldn’t have imagined the two decades of health troubles that would follow. Theresa quit her job in D.C. to go…

Hospitals start comparing health outcomes internationally

Hospitals start comparing health outcomes internationally

A new collaboration between six hospitals around the world is allowing doctors to exchange data and compare case outcomes, in order to establish best practices when it comes to treating sarcoidosis. The press release announcement is below:   Nieuwegein / Utrecht, 13 October 2016 Hospitals start comparing health outcomes internationally For the first time, doctors in an international…

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