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Rare Disease Research Consortium Announces Ambitious Goals
FSR is excited to share some breaking news from the world of rare disease research that could have a huge impact on the future of diagnosing and treating rare diseases worldwide. The International Rare Diseases Research Consortium (IRDiRC) has released an ambitious...
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6 Tips for Talking About Sarcoidosis With Loved Ones
Finding out you have a rare and chronic illness can be extremely hard to deal with. Building a strong support system of loved ones can help make the journey easier. However, it can be extremely difficult to talk about your illness with your loved ones....
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Can Tracking Fitness Help Sarcoidosis Patients?
Tracking your fitness may be a way to help manage symptoms and side effects for sarcoidosis patients. As many sarc warriors know, it can be extremely difficult to stay active when you're living with sarc. Between the chronic pain, fatigue, shortness of...
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The Stages of Pulmonary Sarcoidosis- What Do They Really Mean?
It’s estimated that at least 90% of patients with sarcoidosis will experience lung involvement. Chest x-rays are often used to determine the nature of the disease. However, the results of this imaging can cause confusion for sarc patients- your doctor...
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