Patient Registry Tutorial Video Series

Patient Registry Video Tutorials

San Francisco Research Studies Looking for Participants

San Francisco Research Studies Looking for Participants

UCSF Sarcoidosis Studies are Recruiting! San Francisco based studies are looking for people diagnosed with Sarcoidosis in or near the bay area to join us in trying to find out more about Sarcoidosis. Currently, all of our studies are observational (no interventions), looking closely at the immunologic differences between chronic and remitting sarcoidosis, as well…

#CuresNow: Time is Running Out for the 21st Century Cures Act

#CuresNow: Time is Running Out for the 21st Century Cures Act

  Time is running out for an important piece of legislation that has recently stalled in the Senate. The 21st Century Cures Act was passed by the House in July 2015, but is now at risk of expiring before the Senate can approve it. A large portion of the act focuses on one of FSR’s main…

Don’t Forget! South Carolina Patient Conference

Don’t Forget! South Carolina Patient Conference

Don’t forget about our South Carolina Patient Conference Saturday, September 24 10:00am – 3:00pm at the Medical University of South Carolina Register now if you haven’t already! Day-of registration will also be available. More information is available on the registration page.

Partnership Spotlight: FasterCures

Partnership Spotlight: FasterCures

As a foundation, our goals start with ensuring that patients are getting accurate educational information and end with our ultimate mission: stop sarcoidosis. Some of our work is highly visible, like our physician registry, patient conferences, and our online support group on Inspire. Other parts of our work are more long-term and less easy to see,…

FSR Recognizes 9/11 Heroes

FSR Recognizes 9/11 Heroes

September 11, 2001 is a date that Americans have vowed never to forget. Many people still bear the emotional and physical scars from the attack on the World Trade Center and the weeks of rescue and recovery—and years of rebuilding—that followed. People were injured, lost family members and friends, witnessed horrific tragedies, and had the…

Registration is still open for our South Carolina Patient Conference!

Registration is still open for our South Carolina Patient Conference!

Patient conferences are a way for patients, their families, and physicians to build positive relationships and share their knowledge. Our goal is to create a productive dialogue and a collaborative environment, where physicians can share insight on sarcoidosis and treatment options, while patients can share their experiences with doctors to improve patient care. FSR takes…

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