Patient Registry Tutorial Video Series

Patient Registry Video Tutorials

Registration is still open for our South Carolina Patient Conference!

Registration is still open for our South Carolina Patient Conference!

Patient conferences are a way for patients, their families, and physicians to build positive relationships and share their knowledge. Our goal is to create a productive dialogue and a collaborative environment, where physicians can share insight on sarcoidosis and treatment options, while patients can share their experiences with doctors to improve patient care. FSR takes…

Why Clinical Trials Fail: FSR’s New Initiative to Bridge Gap between Industry Leaders, Researchers, and Patients

Why Clinical Trials Fail: FSR’s New Initiative to Bridge Gap between Industry Leaders, Researchers, and Patients

  Guest post written by Sue Bhalla As the latest industry statistics show, an estimated 90% of drugs that reach the testing phase of clinical trials never end up marking the finish line and attaining FDA approval. This leaves potentially useful drug therapies far from entering the market and benefiting patients. So how does this play…

FSR Executive Director presents at the National Black Nurses Association Sarcoidosis Presentation

FSR Executive Director presents at the National Black Nurses Association Sarcoidosis Presentation

We are excited to announce that Ginger Spitzer, Executive Director for the Foundation for Sarcoidosis Research, will present a session at the 44th Annual NBNA Institute and Conference. FSR recognizes sarcoidosis to be a debilitating disease for which there is limited awareness. We’re proud to partner with the National Black Nurses Association to raise awareness for sarcoidosis…

Pokemon Go and Sarcoidosis? Gamifying Your Health

Pokemon Go and Sarcoidosis? Gamifying Your Health

Right now, it’s almost impossible to go a full day without hearing or reading about Pokemon Go. Nintendo has created a big buzz by bringing the 90’s game back in the form of a phone app. A lot of media attention focuses on negative stories: distracted players are causing car accidents, kids and adults alike…

Support FSR When You Shop Online

Support FSR When You Shop Online

Shopping online is an easy way to get everything you need in one place. You can get virtually anything- clothes, books, movies, even groceries- all online and delivered right to your door. Now shopping online is an easy way to give to FSR too! Over 1,700 stores online participate in iGive- they’ll donate a portion…

Clinical Trial for Patients with Pulmonary Hypertension

Clinical Trial for Patients with Pulmonary Hypertension

As a patient battling sarcoidosis and/or pulmonary hypertension, you already know the frustration of limited treatment options.  The Foundation of Sarcoidosis Research is by your side in this fight, dedicated to providing resources to patients as well as working with partners to accelerate research. One of our roles is to help patients understand what they…

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