Oct 26, 2026
Written by Janet Mockovciak and posted on PharmacyChecker.com Living with a rare disease can at times feel like it totally consumes all of your time. Between medical appointments with numerous out-of-state specialists, managing prescription drugs, following up with...Topics: Advocacy/ Awareness/ Living with Sarcoidosis/ News/ Patient Voices
Oct 23, 2026
The Foundation for Sarcoidosis Research (FSR) proudly announces the addition of nine institutions to the FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA), bringing the Alliance to 55 members strong. The new members – AdventHealth Orlando, Avicenne University Hospital...Topics: Advocacy/ Clinician Engagement/ Community Partners/ News
Oct 8, 2026
Official Press Release FOR IMMEDIATE RELEASE Media Contact: Jennifer Wescoe Singley, M.Ed., NCC, Founder, Executive Director, Wescoe Foundation for Pulmonary Fibrosis jennfier@wescoe.org Website URL: lungtransplantawarenessday.org NATIONAL LUNG TRANSPLANT AWARENESS...Topics: Other
Oct 5, 2026
This summer marked the one-year anniversary of the new platform for the FSR-SARC Patient Registry (FSR Registry) – a major milestone made possible by the incredible contributions of our patient community, researchers, and partners. The new platform (hosted on Across...Topics: News/ Research
