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Rare Disease Legislative Advocacy

Rare Disease Legislative Advocacy

Rare Disease Legislative Advocacy By Jim Kuhn, FSR Patient Advocate, FSR Patient Navigator, and FSR Patient Advisory Committee Member In February 2018, I did my first ever grass-roots lobbying, when my wife and I met with legislative aides of the Congressional...
FSR Welcomes New Members to its Board of Directors

FSR Welcomes New Members to its Board of Directors

CHICAGO, Feb. 24, 2021 /PRNewswire/ — The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients, is pleased to announce the appointment...
February Cardiac Sarcoidosis Webinars

February Cardiac Sarcoidosis Webinars

Friday, February 19, 2021 West Coast Cardiac Sarcoidosis with Stanford 5-6PM CST (3-4PM PST, 4-5PM MT, 6-7PM EST) Join Doctors Matthew Baker and Ronald Witteles as they share new clinical information and exciting research in cardiac sarcoidosis through the work...