FSR's Blog — Foundation for Sarcoidosis Research

Why Sarcoidosis Awareness Month Matters

Apr 14, 2021

As the nation’s leading nonprofit organization dedicated to sarcoidosis, we believe in the power of community and that game-changing results in sarcoidosis research can be made when we work together. Sarcoidosis is a rare disease, all too often misdiagnosed and...

Topics: Living with Sarcoidosis/ Patient Voices

Steroids and Sarcoidosis Town Hall Virtual Meeting

Mar 31, 2021

Please join John Carlin, FSR Patient Advocate and host of the Sarc Fighter podcast, on Tuesday, April 27, at 11:00AM CST as he moderates this panel discussion on sarcoidosis and steroids.

Topics: FSR Events

Celebrate World Sarcoidosis Day with FSR!

Mar 20, 2021

Tuesday, April 13th, 2021 isWorld Sarcoidosis Day! Mark your calendars because the international day dedicated to celebrating sarcoidosis awareness is on Tuesday, April 13th, 2021! On this day, FSR along with our worldwide sarcoidosis warriors will be wearing purple,...

Topics: FSR Events/ Take Action

Rare Disease Legislative Advocacy

Mar 2, 2021

Rare Disease Legislative Advocacy By Jim Kuhn, FSR Patient Advocate, FSR Patient Navigator, and FSR Patient Advisory Committee Member In February 2018, I did my first ever grass-roots lobbying, when my wife and I met with legislative aides of the Congressional...

Topics: Advocacy

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Why Sarcoidosis Awareness Month Matters

Steroids and Sarcoidosis Town Hall Virtual Meeting

Celebrate World Sarcoidosis Day with FSR!

Rare Disease Legislative Advocacy

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