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Celebrate World Sarcoidosis Day with FSR!

Celebrate World Sarcoidosis Day with FSR!

Tuesday, April 13th, 2021 isWorld Sarcoidosis Day! Mark your calendars because the international day dedicated to celebrating sarcoidosis awareness is on Tuesday, April 13th, 2021! On this day, FSR along with our worldwide sarcoidosis warriors will be wearing purple,...
Rare Disease Legislative Advocacy

Rare Disease Legislative Advocacy

Rare Disease Legislative Advocacy By Jim Kuhn, FSR Patient Advocate, FSR Patient Navigator, and FSR Patient Advisory Committee Member In February 2018, I did my first ever grass-roots lobbying, when my wife and I met with legislative aides of the Congressional...