Ask The Ambassadors: How to Navigate Medical Expenses
We reached out to our patient ambassadors and asked for their advice on navigating the medical expenses that come with sarcoidosis.
Category: Living with Sarcoidosis
Understanding Cardiac Sarcoidosis
Cardiac sarcoidosis is diagnosed in 2-5% of patients with systemic sarcoidosis. However, some reports are showing that the incidence of cardiac sarcoidosis in the US may be as high as 20-30% in sarcoidosis patients.
For the patients who go undiagnosed, the repercussions can sometimes be fatal. Wendy Ullmer, a 36-year-old from Wisconsin was unfortunately one of those cases, leaving her husband and their four young boys devastated by her loss. Read her story and learn the signs and symptoms that indicate you should talk to you doctor about screening for cardiac involvement.
Prednisone and Weight Loss
Dealing with weight gain cause by prednisone is hard, here are some diet and exercise tip help combat this side-effect.
Ask The Ambassadors: Developing a Healthy Lifestyle
We reached out to our patient ambassadors and asked for their advice on developing a healthy lifestyle while dealing with sarcoidosis.
September is Chronic Pain Awareness Month!
When most people think of sarcoidosis, what usually comes to mind is… ok, let’s start by correcting that – most people don’t ever think of sarcoidosis at all (in fact, most have never even heard of it). Once they learn of this disease, usually because someone...
Ask The Ambassadors: Hard Conversations with Friends and Family
We reached out to our patient ambassadors and asked for their advice on having hard conversations with friends and family about sarcoidosis.
Healthy Eating Habits: Heart and Lungs
Developing healthy eating habits while dealing with sarcoidosis can be hard. Here are some diet tips to help keep your heart and lungs healthy.
3 Tips for Coping When You’re Chronically Ill
Written by Margot Hahn Communications Intern Anyone grappling with a chronic illness understands how emotionally, physically, and mentally draining life can be. In between running around to multiple doctor appointments, experimenting with various medications, or...
The Role of Functional Medicine in Chronic Illness
Any time you’re in a conversation with patients with chronic illness, the topic of alternative treatment is bound to come up. For people who live with constant pain, fatigue, and other burdens of being ill, it may seem to make sense to turn to these kinds of...