My journey with Interstitial Lung Disease (ILD) started about 15 years ago, although I did not know it at the time, nor did the physicians who were then treating me. At an annual physical, at the age of 46, I mentioned that my knees were a bit sore after physical...
Sarcoidosis does not automatically indicate an immunocompromised diagnosis. FSR cannot determine or provide recommendations for your individual immunocompromised status. Please consult your physician for personalized medical advice. On Friday, August 13, 2021, the...
We are thrilled to announce the formation of our new FSR Patient Speakers’ Bureau! This bureau consists of 14 experienced and trained sarcoidosis patient advocates who will share their personal stories to advocate for FSR and raise awareness for...
Foundation for Sarcoidosis Research is seeking applicants for our first Women of Color Committee. African Americans in the U.S. have been the group most affected by sarcoidosis with an estimated lifetime risk as high as 2% among the population. Additionally, African...
Authors: Arindam Singha, MD1; Tricha Shivas, MBe2 ; Elliot D. Crouser, MD1 Since it was declared a global pandemic in March of 2020, the coronavirus disease 2019 (COVID-19) has affected over 100 million lives globally. It has been demonstrated that patients...
As the nation’s leading nonprofit organization dedicated to sarcoidosis, we believe in the power of community and that game-changing results in sarcoidosis research can be made when we work together. Sarcoidosis is a rare disease, all too often misdiagnosed and...
You are not alone. The journey of sarcoidosis feels lonely sometimes. After months or even years of misdiagnoses, difficulties of excusing yourself from events or activities, confronting challenges associated with going to work each day or caring for your family, and...
COVID-19 has changed our world. As of October 1, 2020, the Johns Hopkins University Coronavirus Resource Center reported over 35.5 million individuals worldwide have been infected with COVID-19, including over 7 million in the United States. There are about 200,000...
Since sarcoidosis is a rare disease, there is a lot we don’t know about it. Scientists are working diligently to figure out the cause of sarcoidosis as well as find drugs that can be used to treat it. We already know how important these clinical trials are for...
We already know that sarcoidosis can have a significant impact on a person’s quality of life. Sarcoidosis patients often live with debilitating fatigue, pain, and other symptoms that result in a life much different from the one they had before their diagnosis. There...
