Category: Living with Sarcoidosis
Why Am I Not Eligible? Understanding Exclusion Criteria for Clinical Trials
Clinical trials can be an exciting opportunity for patients to try a new drug or treatment and see if it helps their sarcoidosis symptoms. These trials are important because they advance sarcoidosis research and bring us closer to finding better treatment and a cure.
Buyer Beware: “Miracle Cures” for Sarcoidosis
You may hear a lot of advice from many different sources on how to treat sarcoidosis. It probably feels overwhelming at times – especially when a lot of this advice is contradictory. Your doctor doesn’t necessarily know everything, so doing your own research is an...
How Can Stress Affect Sarcoidosis?
Having a chronic illness is stressful. The frequent doctor’s appointments, the constant pain and fatigue, the looming fear of what turn the disease may take next. It’s hard to take your mind off of your illness long enough to relax. You may find that stress makes your...
Managing Your Work Life With Sarcoidosis
Having sarcoidosis can turn your whole life upside-down. Dealing with chronic pain, fatigue, and other symptoms on a daily basis can affect not only your social and personal life, but also your work life. For many sarcoidosis patients, working is not an option....
5 Myths You May Have Heard About Sarcoidosis
Sarcoidosis is a rare disease, affecting an estimated 150,000-200,000 Americans. Most people have never even heard of sarcoidosis, and many who have don’t know all the facts. There is a lot of misinformation about sarcoidosis out there, even within the medical...
Sleeping with Chronic Pain
The average adult needs 7-9 hours of sleep per night to maintain a healthy lifestyle. Sleep boosts the immune system, regulates blood pressure, improves mental health, and has multiple other health benefits. Getting a full night’s sleep every night is recommended for...
Mental Health Awareness Month
Dealing with a chronic illness, like sarcoidosis, is taxing on your physical health, but it also takes a toll on your mental health. This month, for Mental Health Awareness Month, we are going to be providing resources to help you take care of your mental health! To...
Commonly Prescribed Sarcoidosis Medications
Sarcoidosis is a difficult disease to treat. There are no known causes and no known cure. When patients are diagnosed with sarcoidosis, one of the first things they want to know is how are we going to treat this. Surprisingly, for some sarcoidosis patients – up to 1/3...
Shifting the Conversation: Advanced Sarcoidosis
Why have we become complacent with the perception that all cases of sarcoidosis resolve?