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FSR is looking for Global Sarcoidosis Clinic Alliance Volunteers!

The FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) is a member program consisting of clinics, hospitals, and individual providers committed to finding a cure and offering evidence-based, patient-centric care for those living with sarcoidosis.

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FSR is seeking dynamic, driven individuals impacted by sarcoidosis to apply to become Community Outreach Leaders and Support Group Leaders to work together as part of volunteer teams serving areas close to FSR Global Sarcoidosis Clinics.

Exclusive Volunteer Opportunities:

  • Comprehensive training from leading experts in media and communication and peer leadership
  • Quarterly virtual volunteer leader meetings to enhance networking, community, and share best practices
  • Attendance at future in-person FSR Volunteer Leader training 
  • Invitation to the 2024 Annual FSR Research Gala for Leaders who consistently report monthly activities on time 

How FSR Supports Volunteer Leaders:

In addition to the stated opportunities, each Volunteer Leader will receive:

  • FSR Volunteer Leader tote bag, email address, and business cards
  • Toolkits, templates, event-in-a-box, and education materials provided by FSR
  • Pre-paid visa cards to cover approved upfront expenses for in-person support group and/or events
  • Mileage reimbursement for approved in-person support group meetings and/or events

 

Important Dates:

  • Application deadline: February 3, 2023 (11:50 pm PST)
  • Application review and interviews – rolling through February 7, 2023
  • Notification of Acceptance: February 10, 2023
  • Mandatory Virtual Training: February 25-26, 2023

FSR Global Sarcoidosis Clinic Alliance Support Group Leaders

FSR Global Sarcoidosis Clinic Alliance Support Groups are meant to address the education and community building needs of patients and their loved ones. These support groups serve as a potential gateway for patients to access critical services both within the FSR-GSCA member clinic, as well as from FSR.

GSCA support group leader
  • The FSR Global Sarcoidosis Clinic Alliance Support Group Leaders work in teams of two to co-facilitate and co-host monthly sarcoidosis support groups for patients and their loved ones.
  • Support Group Leaders are dynamic patient volunteers living with sarcoidosis who are specially trained to facilitate in-person support groups at FSR Global Clinic Alliance member locations.
  • All FSR Global Clinic Alliance Support Groups are assigned two co-leaders in support of workload dissemination, as well as illness or vacation coverage.
  • Alliance Support Group Leaders should have excellent communication and active listening skills. They should be emotionally ready to provide peer-to-peer leadership and support through the group they facilitate.
  • 6-8 hours/month time commitment

FSR Global Sarcoidosis Clinic Alliance Community Outreach Program aims to increase awareness about sarcoidosis, available FSR-GSCA member clinic services, FSR initiatives and patient support opportunities, and raise funds within their communities for sustained FSR-GSCA programming.

GSCA outreach leader
  • The FSR Global Sarcoidosis Clinic Alliance Community Outreach Leaders are patients or caregivers who have been trained to share their experiences with sarcoidosis to empower patients and ignite stakeholder engagement.
  • They serve as representatives of FSR and the Member institution through public speaking, media, awareness and fundraising activities.
  • Alliance Outreach Leaders work in teams to engage with local organizations, companies, and places of worship to participate in events, provide presentations and educational materials, and share their experience to raise awareness of sarcoidosis in their surrounding communities.
  • Alliance Outreach Leaders teams work with FSR to host awareness fundraising events. They have the opportunity to share their story with the media to increase awareness and encourage stories about sarcoidosis and FSR initiatives, with special attention to FSR-GSCA member services.
  • FSR’s Volunteer training program brings together experts in sarcoidosis, peer-to-peer leadership and support, and communication and media to ensure each Volunteer is empowered, supported and prepared to become a leader in their community. 
  • 5 hours/month time commitment

View the FSR Global Sarcoidosis Clinics:

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Alabama

University of Alabama Multidisciplinary Sarcoidosis Center of Excellence

California

Cedars-Sinai Medical Center

Stanford Medicine 

UCLA State of the Art Sarcoidosis Clinic 

Colorado

National Jewish Health

Connecticut

Yale Medicine

District of Columbia

Medstar 

Florida

Cleveland Clinic - Florida

University of Florida Gainseville

University of Florida College of Medicine Jacksonville

Tampa General Hospital/University of South Florida

Georgia

The Emory Clinic

Illinois

Northwestern Medicine Sarcoidosis Program

UI Health Bernie Mac Sarcoidosis Translational Advanced Research Center (STAR)

Kentucky

University of Kentucky Sarcoidosis Clinic

Maryland

Johns Hopkins Sarcoidosis Clinic

Massachusetts

Lahey Hospital & Medical Center 

Michigan

Beaumont Health's Royal Oak Interstitial Lung Disease Program

Henry Ford Health

Spectrum Health Sarcoidosis Clinic

Minnesota

University of Minnesota

Mississippi

University of Mississippi Medical Center

New York

Mount Sinai Medical Center

Ohio

Cleveland Clinic Sarcoidosis Center of Excellence

Oklahoma

OMRF Sarcoidosis Research Unit

Pennsylvania

Jefferson Health

Temple Health

Jane and Leonard Korman Respiratory Institute-Jefferson Health-National Jewish Health Partnership

South Carolina

The Susan Pearlstine Sarcoidosis Center of Excellence at the Medical University of South Carolina

Tennessee

The Sarcoidosis Clinic at Vanderbilt University Medical Center

Texas

Sarcoidosis Center of Excellence at the University of Texas Southwestern Medical Center

UT Health Houston/Memorial Hermann

Utah

University of Utah Sarcoidosis Multidisciplinary Clinic

Virginia

Inova Health System's Advanced Lung Disease Services 

University of Virginia, VCU Multidisciplinary Sarcoidosis Clinic 

VCU Health

Do you go to another clinic not listed here? Send them the flyer linked below so they can join the FSR-GSCA!

Download the flyer here.

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