May 7, 2018
This year with the help of awesome sarcoidosis warriors all across the US, we were able to obtain at least 28 state level proclamations designating April as Sarcoidosis Awareness Month, as well as at least 12 local proclamations as well! Learn more about proclamations...Topics: News/ Take Action
May 1, 2018
April might be over, but the fight against sarcoidosis isn’t! While April is Sarcoidosis Awareness Month, here at the Foundation for Sarcoidosis Research we have education, advocacy and research efforts going all year long! We invite you to join us in the fight-...Topics: News/ Take Action
Apr 30, 2018
Each year during Sarcoidosis Awareness Month, we take the time to remember the lives lost too soon to this terrible disease. On this Memorial Monday, we mourn the loss of the fallen snowflakes and remind ourselves why it’s so important to get involved in the...Topics: News/ Take Action
Apr 9, 2018
As we’ve done in past years, we’re encouraging sarc warriors and their loved ones to show off their purple pride this April for Sarcoidosis Awareness Month! Whether you’re decked out in head-to-toe purple or just sporting a subtle accent, find a way...Topics: Events/ Take Action
Mar 13, 2018
Every year, FSR’s Team KISS hosts our Annual Team KISS 5K Run/Walk event in a major US city. On April 28th, 2018 this year’s official event will be held in the beautiful city of Atlanta, Georgia! We’d love to have you join us in Atlanta, however we know...Topics: Take Action/ Team KISS
Nov 28, 2017
It’s Giving Tuesday- for those who don’t know, this event happens annually on the Tuesday after Thanksgiving. Giving Tuesday is essentially the nonprofit world’s version of “Black Friday” or “Small Business Saturday” and gives...Topics: News/ Take Action
Jun 21, 2017
The Foundation for Sarcoidosis Research is sharing this urgent call to action from the National Organization for Rare Disorders (NORD): WE NEED YOU to call, email, tweet, and message your Senators… Urge them to stand up for the millions of children and adults...Topics: News/ Take Action
Apr 21, 2017
If you were one of over 500 people worldwide who joined FSR for our annual K.I.S.S. 5K and virtual walks, you are part of the movement that will put sarcoidosis on the map – the same map as other big name diseases with national walk events that bring in millions...Topics: Research/ Take Action/ Team KISS
Apr 10, 2017
This mission to find a cure is so much bigger than one individual but in the end all it takes is one action by one person at one time to change everything. Deborah, middle, surrounded by her supportive loved ones. FSR’s Patient Ambassador Deborah Rice has gone above...Topics: Patient Stories/ Take Action
Apr 3, 2017
For Rare Disease Week on Capitol Hill, FSR co-cohosted a congressional briefing on the importance of recognizing April as Sarcoidosis Awareness Month. Sponsored by New York Representative Lee Zeldin’s office, the briefing had a great turnout, with many offices sending...Topics: News/ Take Action
