Oct 2, 2018
All of our patients ambassadors have a different experience and a different reason for becoming an ambassador. Find out in their own words what our patients ambassadors do and why they became involved with this program.
Topics: News/ Take Action
Oct 1, 2018
FSR is a part of the world’s biggest workplace charity campaign, the Combined Federal Campaign (CFC). The CFC enables government workers to support FSR through payroll deductions.
Topics: News/ Take Action
Aug 29, 2018
While all manifestations of sarcoidosis can causes physical symptoms, neurosarcoidosis in particular can come with serious mobility challenges. Mark Taylor is a neurosarcoidosis patient from New Zealand who is overcoming the challenges of neurosarcoidosis to raise...Topics: Patient Voices/ Take Action
Aug 22, 2018
Summer isn’t over which means now is the perfect time to soak up the extra sunlight and mild weather while you fundraise with Team KISS!
Topics: Take Action/ Team KISS
Aug 8, 2018
FSR strives to bring patients the most up-to-date information about sarcoidosis, but we can’t do that without you. Besides being a rare disease, affecting only 200,000 people in the U.S., sarcoidosis is commonly misdiagnosed. The limited data that does exist doesn’t...Topics: Research/ Take Action
Jun 21, 2018
Rare disease patients find out soon after a diagnosis that they’ll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even though...Topics: Community Partners/ Take Action
May 7, 2018
This year with the help of awesome sarcoidosis warriors all across the US, we were able to obtain at least 28 state level proclamations designating April as Sarcoidosis Awareness Month, as well as at least 12 local proclamations as well! Learn more about proclamations...Topics: News/ Take Action
May 1, 2018
April might be over, but the fight against sarcoidosis isn’t! While April is Sarcoidosis Awareness Month, here at the Foundation for Sarcoidosis Research we have education, advocacy and research efforts going all year long! We invite you to join us in the fight-...Topics: News/ Take Action
Apr 30, 2018
Each year during Sarcoidosis Awareness Month, we take the time to remember the lives lost too soon to this terrible disease. On this Memorial Monday, we mourn the loss of the fallen snowflakes and remind ourselves why it’s so important to get involved in the...Topics: News/ Take Action
Apr 9, 2018
As we’ve done in past years, we’re encouraging sarc warriors and their loved ones to show off their purple pride this April for Sarcoidosis Awareness Month! Whether you’re decked out in head-to-toe purple or just sporting a subtle accent, find a way...Topics: FSR Events/ Take Action
