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FSR Updates

Stay up-to-date on FSR’s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.

FSR launched the Ignore No More: ACTe Now! Campaign (Advance Clinical Trials for Equity in Sarcoidosis) to address the underrepresentation of Black Americans in clinical trials. As part of the campaign, FSR conducted the first of its kind, IRB-approved national patient survey for Black Americans to better understand the challenges and experiences Black Americans with sarcoidosis face as it pertains to clinical trials and their disease journeys. FSR also conducted a Key Opinion Leaders Thought Workshop (KOL) and Patient Focus Group to explore the findings in greater depth and to identify recommendations for how to improve clinical trial access and overall care of Black sarcoidosis patients.

Some recommendations that emerged include building a blueprint for clinical trial design that increases access and supports diversity, clinical trial navigation and support specifically targeted for Black patients, and educational toolkits to better educate patients and physicians about trial opportunities and engagement. Though this campaign was specific to Black Americans with sarcoidosis the learnings are relevant to improving access to clinical trials for all Black Americans.


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FSR Blog

Tricha Shivas Promoted to Chief of Staff and Strategy at Foundation for Sarcoidosis Research

February 19, 2024

The Foundation for Sarcoidosis Research (FSR) proudly announces the promotion of Tricha Shivas to Chief of Staff and Strategy. Ms. Shivas, who joined FSRLearn More

Advocating for Improved Access to Oxygen

February 13, 2024

The Foundation for Sarcoidosis Research is part of a 27-member coalition dedicated to improving access to supplemental oxygen for all in need. Chasta Posey,Learn More

FSR Awards $100,000 in Support of Cardiac Sarcoidosis

December 19, 2023

The Foundation for Sarcoidosis Research (FSR) announces $100,000 in funding for support of research aimed at improving diagnosis, management, and treatment of cardiac sarcoidosis. Learn More

FSR Announces 3 New Members to the 40 Member FSR Global Sarcoidosis Clinic Alliance through its FSR-GSCA Capacity Building Grants

November 2, 2023

Foundation for Sarcoidosis Research (FSR) announces three clinics that have been selected as members of FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) – a groundbreaking initiativeLearn More

The importance of finding your sarcoidosis community

October 19, 2023

Why is finding your community important? After a diagnosis that changes your life, you need people who understand the journey you are about toLearn More

FSR partners with Walgreens stores in Alabama to raise awareness of sarcoidosis and the importance of all impacted by heart and lung disease to get vaccinated

September 15, 2023

Beginning September 16th, Walgreens, a pharmacy and retail leader who plays a critical role in the U.S. healthcare system by providing a wide rangeLearn More

FSR Graduates Second Class of New Volunteers from 11 States to Raise Awareness and Improve Clinical Outcomes for Those Living with Sarcoidosis

September 14, 2023

Foundation for Sarcoidosis Research (FSR), the leading international nonprofit organization dedicated to finding a cure and improving care for sarcoidosis patients, conducted a two-dayLearn More

Living with ILD: My Sarcoidosis Journey

September 13, 2023

My journey with Interstitial Lung Disease (ILD) started about 15 years ago, although I did not know it at the time, nor did theLearn More

Learn the Facts About Interstitial Lung Disease on ILD Day, Sept. 13

September 5, 2023

With more than 250,000 Americans living with interstitial lung disease (ILD) and pulmonary fibrosis (PF), nine organizations are joining forces to present the thirdLearn More

The Time is NOW for Sarcoidosis

August 17, 2023

“Everything that the foundation (FSR) is doing is moving the needle forward, and so that makes me very hopeful.”  – Jeryl Prescott Gallien, SarcoidosisLearn More

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