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FSR Updates

Stay up-to-date on FSR’s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.

Whether you are someone whose life has changed due to the diagnosis of sarcoidosis, a loved one who is passionate about making the lives of all impacted by sarcoidosis better, or a medical professional dedicated to caring for the sarcoidosis community, you already possess the most powerful tool for shaping legislation and motivating policymaker action– your story!

This toolkit will provide you strategies for getting your story heard and resources for starting your legislative advocacy journey. FSR would like to extend our gratitude to The EveryLife Foundation for Rare Diseases for providing us a grant to support the development of this toolkit.

White Papers

Annual Updates

Press Releases

FSR Blog

Take Our Quiz to Find Out Your Volunteer Style

December 27, 2022

What’s your volunteer style? Do you want to make a difference in sarcoidosis but not sure exactly what role would suit you best? TakeLearn More

Clinical Trial Enrolling Now for New Possible Steroid-Reducing Therapy

November 17, 2022

aTyr Pharma, Inc. is partnering with the Foundation for Sarcoidosis Research (FSR) to recruit for a global pivotal Phase 3 study, EFZO-FIT™, of aTyr’sLearn More

I Am One: Using My Voice to Bring Awareness to Sarcoidosis

November 17, 2022

Darlene Anita Scott is a writer and visual artist living with sarcoidosis. She applied to become an FSR Global Sarcoidosis Clinic Alliance (GSCA) CommunityLearn More

The Foundation for Sarcoidosis Research (FSR) awards $50,000 in support of cardiac sarcoidosis

November 17, 2022

The Foundation for Sarcoidosis Research (FSR) is pleased to award Dr. Nabeel Hamzeh, Professor of Internal Medicine – Pulmonary, Critical Care and Occupational Medicine at The UniversityLearn More

Blog: Addressing Healthcare Issues that Disproportionately Affect Black Americans

October 25, 2022

  FSR Patient Advisory Committee and ACTe Now Committee Member, Calvin Harris, shares the importance of increasing awareness and representation of Black patients inLearn More

The Importance of the FSR Patient Registry

October 20, 2022

If you have sarcoidosis, you MUST join the Foundation for Sarcoidosis Research (FSR) Patient Registry. With less than 200,000 of us diagnosed each year,Learn More

Transitioning to Medicare from Employer Paid Insurance – While on Infliximab

October 11, 2022

Most of us in our 60’s start looking forward to the day when we are no longer dependent on employer paid health insurance orLearn More

FSR Launches Its First-Ever Clinical Trial Equity Initiative for Black And African Americans

October 5, 2022

FSR is proud to announce the launch of the Ignore No More: ACTe Now! (Advance Clinical Trials for Equity in Sarcoidosis) campaign. The goals ofLearn More

On My Diagnosis Anniversary, I’m Grateful for a Foundation That Has Given Me So Much

September 30, 2022

FSR Patient Advisory Committee and ACTe Now Committee Member, Calvin Harris shares the impact FSR and his treatment team at FSR-GSCA Member Clinic John’sLearn More

Having a COVID Response Plan as Someone Living with Sarcoidosis

September 1, 2022

Over the past two years, this Global Pandemic has been changing the way we all exist and go about living our ‘normal’ daily livesLearn More

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