Stay up-to-date on FSR’s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.
Whether you are someone whose life has changed due to the diagnosis of sarcoidosis, a loved one who is passionate about making the lives of all impacted by sarcoidosis better, or a medical professional dedicated to caring for the sarcoidosis community, you already possess the most powerful tool for shaping legislation and motivating policymaker action– your story!
This toolkit will provide you strategies for getting your story heard and resources for starting your legislative advocacy journey. FSR would like to extend our gratitude to The EveryLife Foundation for Rare Diseases for providing us a grant to support the development of this toolkit.
aTyr Pharma, Inc. is partnering with the Foundation for Sarcoidosis Research (FSR) to recruit for a global pivotal Phase 3 study, EFZO-FIT™, of aTyr’sLearn More
Darlene Anita Scott is a writer and visual artist living with sarcoidosis. She applied to become an FSR Global Sarcoidosis Clinic Alliance (GSCA) CommunityLearn More
The Foundation for Sarcoidosis Research (FSR) is pleased to award Dr. Nabeel Hamzeh, Professor of Internal Medicine – Pulmonary, Critical Care and Occupational Medicine at The UniversityLearn More
FSR Patient Advisory Committee and ACTe Now Committee Member, Calvin Harris, shares the importance of increasing awareness and representation of Black patients inLearn More
Most of us in our 60’s start looking forward to the day when we are no longer dependent on employer paid health insurance orLearn More
FSR is proud to announce the launch of the Ignore No More: ACTe Now! (Advance Clinical Trials for Equity in Sarcoidosis) campaign. The goals ofLearn More
FSR Patient Advisory Committee and ACTe Now Committee Member, Calvin Harris shares the impact FSR and his treatment team at FSR-GSCA Member Clinic John’sLearn More
Over the past two years, this Global Pandemic has been changing the way we all exist and go about living our ‘normal’ daily livesLearn More
Check out these recent updates!