Stay up-to-date on the Foundation for Sarcoidosis (FSR)'s latest activities and learn about the ways that FSR is driving progress and accelerating research towards a cure.
FSR Reports
FSR has undertaken a comprehensive process to develop a new Research Agenda that will guide its funding priorities and strategic direction. This initiative comes at a critical time, as sarcoidosis affects approximately 1.2 million people worldwide, and approximately 175,000-200,000 in the United States. Sarcoidosis was first discovered over 150 years ago and yet little progress has been made toward a significant breakthrough in the scientific understanding of the disease and the therapeutic options.
To address this concern, FSR has endeavored to create a robust Research Agenda aimed at addressing gaps in sarcoidosis research. This Research Agenda represents a strategic and measurable approach toward the achievement of our mission to accelerate progress toward improved treatments and a possible cure for sarcoidosis.
On October 28, 2024, the Foundation for Sarcoidosis Research hosted the Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting—an interactive, virtual event where patients and caregivers shared their experiences, unmet needs, and treatment priorities.
The resulting 50-page Voice of the Patient Report captures these insights, reflecting the real-world impact of sarcoidosis and guiding future research and therapy development. This report amplifies the voices of patients and caregivers, providing valuable perspective for healthcare providers, researchers, and drug developers to ensure that patient needs remain at the center of progress.
FSR is excited to announce the release of The FSR-SARC Patient Registry Report (FSR Registry Report), “Living with Sarcoidosis – Insights from the FSR-SARC Patient Registry (FSR Registry)."
This global, patient-reported outcomes program incorporates dates from 2015-2025. For a decade, the FSR Registry has gathered crucial information from individuals living with sarcoidosis around the world. This online patient registry is helping researchers uncover patterns in the disease and identify ways to improve care and quality of life.
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FSR Blog
FSR attending the 8th International WASOG Conference
Please join the Foundation for Sarcoidosis Research (FSR) and the World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) for the 8th International WASOG Conference on DiffuseLearn More
FSR to Host New Orleans Sarcoidosis Conference!
The Foundation for Sarcoidosis Research will host a conference for patients on February 27, 2016 in New Orleans, Louisiana. Please join FSR, Tulane University,Learn More
The Rick Passaglia Memorial Fund
We are heartbroken. We are mourning the loss of our dear friend Rick Passaglia, who lost his battle with sarcoidosis on Monday. Rick wasLearn More
FSR partners with the Investigator Databank!
The Investigator Databank is a global collaboration between Janssen, Lilly, Merck, Pfizer and Novartis (with more companies to come) to share investigator information thatLearn More
SAKURA Phase III Study
The SAKURA study is a Phase III, multinational, double-masked trial investigating the safety and efficacy of DE-109 for the treatment of non-infectious uveitis ofLearn More
Attend FSR’s Fall Events
FSR is hosting events all over the country this fall. Mark your calendars and join us for these upcoming fall events: Hike for Lung HealthLearn More
Neurosarcoidosis Meeting at Washington University in St. Louis
At this meeting, experts who have significant experience with managing neurosarcoidosis will gather to share their latest observations, then participate in a planning retreatLearn More
Foundation for Sarcoidosis Research joins elite group of medical research foundations
FSR is proud to announce our membership acceptance into the elite group of medical research foundations represented by Faster Cures TRAIN. These selected TRAINLearn More
We are speaking at the DIA 51st Annual Meeting
The Foundation for Sarcoidosis Research’s Executive Director Ginger Spitzer is speaking at the 51st Annual DIA 2015 Meeting. She will be speaking about theLearn More
Join the conversation at the National Heart, Lung and Blood Institute!
The National Heart, Lung and Blood Institute is gathering ideas for the most compelling scientific priorities in the four NHLBI Strategic Goals to address overLearn More
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