Category: Other

Team KISS photos!

Team KISS photos!

We’re excited to share some of the photos from our official Team KISS 5K in Atlanta, GA this year! Thanks to all the super runners and walkers who came out to join...
Team KISS’s April Success!

Team KISS’s April Success!

Team KISS was in full swing this April! Big thanks to all of our Team KISS superheroes who kicked in for Sarcoidosis Awareness Month! Our annual walk event was based in Atlanta, GA, but we were joined by a record-breaking number of walkers in person as well as...
It’s National Volunteer Week – THANK YOU!

It’s National Volunteer Week – THANK YOU!

It’s National Volunteer Week! We want to take a moment to thank all of the awesome sarc warriors and their loved ones who have joined the fight against sarcoidosis. Whether you’re participating in a Team KISS walk, helping us Paint the Map Purple,...
Sarcoidosis PSA on NBC Across the Nation!

Sarcoidosis PSA on NBC Across the Nation!

A sarcoidosis PSA is now playing on NBC in nine major cities across the US. Check it out below and see if it’s playing in your city! Help us by spreading the word and raising awareness about this potentially devastating disease. The PSA is now playing in New...

Ambassador Travel Scholarship

2018 FSR Patient Ambassador Travel Scholarship Application Name* First Last Email* Phone*Address* Street Address Address Line 2 City State / Province / Region ZIP / Postal Code AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAntigua and...
Ann Arbor Conference Recording Available!

Ann Arbor Conference Recording Available!

Here at FSR, part of our mission is to bring educational experiences and knowledgeable physicians to as many patients as possible. That’s why we’re proud to be hosting a record of seven patient conferences all across the country this year. We know it’s difficult for...
Local Advocacy Opportunities in Your Hometown!

Local Advocacy Opportunities in Your Hometown!

Rare disease patients find out soon after a diagnosis that they’ll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even...