We are thrilled to announce the formation of our new FSR Patient Speakers’ Bureau! This bureau consists of 14 experienced and trained sarcoidosis patient advocates who will share their personal stories to advocate for FSR and raise awareness for...
Authors: Arindam Singha, MD1; Tricha Shivas, MBe2 ; Elliot D. Crouser, MD1 Since it was declared a global pandemic in March of 2020, the coronavirus disease 2019 (COVID-19) has affected over 100 million lives globally. It has been demonstrated that patients...
FSR is pleased to offer a series of emotional and mental health sessions through our Wellness Series. Throughout 2021, we will host sessions facilitated by clinical mental health professionals on topics important to our sarcoidosis community. These sessions will not...
This is a recording from FSR’s COVID-19 Q&A with Dr. Divya Patel on December 10, 2020. Topics covered include how COVID-19 may affect sarcoidosis patients, the new vaccines*, and holiday safety. *Please see below for a note from Dr. Divya Patel as a followup...
We are thrilled to welcome FSR’s newest team member, Tricha Shivas! Tricha joins the organization as the Vice President of Research and Strategic Partnerships. In this role, she will be working with various stakeholders including individuals living with...
This year, the Team KISS Walk/Run is going completely virtual. This means that participants worldwide can join and complete any route of their choosing – whether that is your neighborhood, favorite park, local trail, or even from your own home. See below for more...
You asked and we answered! FSR is thrilled to announce that we’ve been working behind the scenes to put together an online store with apparel for sarc warriors and their loved ones. Whether you’re running errands, hanging at home, going to an appointment,...
FSR is now inviting individuals living with or affected by sarcoidosis to apply for our new Patient Advisory Committee. It is our vision that this committee will help FSR build a Patient Advisory Board that will further incorporate the patient voice into education,...
Providing answers and education during Sarcoidosis Awareness Month is more important than ever in the face of the COVID-19 pandemic CHICAGO (April 1, 2020) – Individuals with the rare disease sarcoidosis live with concerns about their vulnerable health. The novel...
FSR is announcing the postponement of the Team KISS 5K – both San Diego and Virtual Walk – that were planned for April 18, 2020. The Team KISS 5K, initially scheduled to take place April 18, 2020 in San Diego and virtually, has been postponed. The event...
