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Where will you be on July 30 and 31, 2022?


For those of us with sarcoidosis, the above dates will be important ones if you want to learn more about sarcoidosis and managing your disease.  From July 30-31, The Foundation for Sarcoidosis Research (FSR) will present its annual education summit and this year it’s called “Unveiling Possibilities.”

Last year, I attended FSR’s 2021 virtual summit, where I connected with so many others and widened my knowledge of sarcoidosis. Education of this rare disease helps me know what questions to ask my healthcare providers and stay on top of my disease.  Whether you want to learn more about drug treatments, progression, signs and symptoms, etc., the education you gain at the summit will help you move forward without fear.

If you are new to sarcoidosis, the Sarcoidosis 101 tracks will be helpful for you.  For those of us with multiple organ systems, there are sessions specifically related to sites where you may have sarcoidosis (ocular, pulmonary, liver, neuro, cardiac, etc.).  Wherever your sarcoidosis has affected you, there will be sessions tailored just for you.

Most of us with sarcoidosis have so many questions related to diet, fatigue, joint pain, and countless other ailments.  The educational sessions will cover so many topics, and there is plenty of time to submit your own questions. Even if you don’t ask out loud, I can guarantee you will have questions answered.

There are also so many ways to connect with others that have sarcoidosis in the different breakout sessions and chat rooms. I look forward to making new friends and seeing some old friends, too.

The Foundation for Sarcoidosis Research has tapped into global experts who will share their knowledge of sarcoidosis, treatments, research and hopes for a cure in the future. Mark your calendars and come join me and so many others at the Summit.


Learn more and register for the Summit


About the author

Susan D’Agostino is a FSR Patient Advocate and Patient Navigator as well as a certified mindfulness meditation instructor through the McLean Meditation Institute. Susan has had a life-long interest in the mind-body connection, specifically as to how the mind affects the body in prevention of disease and in its recovery from illness. She is a retired registered nurse and has worked in the health care setting in various roles for over 40 years. 




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