Raising awareness about sarcoidosis

FSR is dedicated to accelerating research efforts that help find a cure for sarcoidosis. One major practice is to raise awareness by putting a spotlight on the disease each year in April, know globally as Sarcoidosis Awareness Month. At FSR, every month is Sarcoidosis Awareness Month, and we rely on the help of our communities to relay this message. Whether you are a patient still awaiting a diagnosis, a chronic sufferer of the disease, someone looking to understand the experiences of their loved one, or just a member of the general public, there are countless ways you can take a proactive role in keeping the conversation going all year long and get involved in raising awareness and funds for sarcoidosis research. 

What is sarcoidosis?
Sarcoidosis is an inflammatory disease of unknown origin that can affect almost any organ in the body. It occurs when a person’s immune system overreacts resulting in the formation of granulomas, microscopic clumps of inflammatory cells. When too many of these clumps form in an organ they can interfere with how that organ functions. It is estimated to affect 200,000 Americans. While most commonly diagnosed in African American women ages 20-40, it has been characterized in all demographics regardless of age, gender, or race.

Disease severity varies widely with spontaneous remission occurring in many, however 30-40% of patients will live the rest of their lives with this chronic, debilitating, and potentially life-threatening disease.

Learn more about the symptoms of sarcoidosis, the organs it can affect, and treatment options.

Join Our Community!

There are more chances to learn about the disease than ever before, as well as opportunities to get involved in raising awareness and funds for sarcoidosis research. Check out the ways you can make an impact on sarcoidosis awareness – start by keeping up to date with FSR research and educational and support programs by joining our community with our newsletter and event announcements!

Check out our upcoming events

We have opportunities every month to connect with other sarc warriors, practice different mental health techniques, and learn from some of the leading sarcoidosis experts. Whether you’re a patient or a loved one, newly diagnosed or battling sarcoidosis for years, everyone is invited to join us for these educational events!

 

Shop Sarc Gear and Support the FSR Mission

Purple is the internationally recognized color of sarcoidosis, and wearing it shows support for all those who are fighting this disease. Shop from our collection of sarc warrior apparel and appliances to help raise awareness about sarcoidosis and help support the FSR mission!

 

 

Get social with FSR!

We are active on social media! Connect with us on Facebook, Twitter, Instagram, LinkedIn and YouTube @stopsarcoidosis and help us spread the word on events, education, and more. 

 

Share your story with the FSR community

Sharing your experience with sarcoidosis is not only therapeutic for you, but also helpful for the hundreds of other patients and loved ones who will read it in addition to helping create conversations and raise awareness. By sharing your story openly and honestly, you’ll validate the experience of other sarcoidosis warriors and help them realize they are not alone.

We have three different ways to help you tell your story:

  1. If you know what you want to write about or already have something you’re working on, you can submit it as a guest blog.
  2. If you’re short on time or you’d like some more guidance on what to write about, you can fill out our survey-style short answer prompts.
  3. Or, if you just want to submit a short quote and photo you can do that too!
Your donation makes a difference

Your donation to FSR will help to fund groundbreaking sarcoidosis research initiatives and innovative patient support programs for sarcoidosis warriors from around the world! Please support FSR’s efforts to improve the lives for those in sarcoidosis community and provide hope that one day we will find a cure.

You can support our mission by making a one-time gift or support FSR every month with a monthly gift!

Foundation for Sarcoidosis Research is a 501(c)(3) non-profit organization. All donations are tax-deductible to the full extent of the law.

Support FSR while you shop!

AmazonSmile is a great way for you to support FSR every time you shop through Amazon! There is no charge for you and has no effect on what you pay or your delivery date. However, for each purchase made through AmazonSmile, Amazon will donate a portion of their proceeds from the sale to FSR!

Click here to learn more about AmazonSmile and through a few simple steps your Amazon purchases can support sarcoidosis research initiatives and patient support programs!

Do you know if your company has a matching funds program?

Companies from all over the world are dedicated to helping make the world a little better through supporting philanthropic causes and initiatives important to their employees. There are thousands of companies who have funding reserved every year to match the generosity of their people. You may be surprised that your company may double or even triple your gift to help support sarcoidosis research and patient support!

Click here to find out what exactly you need and how you can submit a corporate matching request through your employer!

Celebrate your lost loved ones in the FSR Memorial.

FSR is committed to keeping the memory of those lost sarcoidosis alive.  Please share stories of lost loved one, so the sarcoidosis community can celebrate and remember the spirit of those who have passed on, but will always remain in our hearts. FSR’s Memorial provides a platform to share photos and special memories with friends, family, and the sarcoidosis community and provides an opportunity for loved ones to make special gifts to honor the memory of one who passed too soon.

Click here to celebrate your loved in the FSR Memorial.

Give back with a planned visionary gift.

Make sure we all win against sarcoidosis with a visionary gift! The Legacy Society, FSR’s planned giving society, is a community of thoughtful supporters who are leaving a legacy through estate planning to ensure we find a cure for sarcoidosis. Learn more about planned giving.

Team up with organizations to maximize your impact together!

Partner with other organizations and companies to maximize your impact together! Many of your favorite stores and companies have ways they give back! Next time you are shopping at your favorite store, meeting with a local business owner in your town, or even dining at a café, ask about how they are supporting the community. It is a great way to begin a conversation about philanthropic initiatives taking place in your town and you may find that these places would be happy to support the sarcoidosis community in future opportunities!