Category: News

FSR Seeks Organization’s First Ever Chief Executive Officer

FSR Seeks Organization’s First Ever Chief Executive Officer

FSR is now looking to hire the first Chief Executive Officer (CEO) to advance the mission to fund sarcoidosis research and improve the lives of patients worldwide. The CEO will be responsible for overseeing the execution of FSR’s strategic plan, administration,...
Update on Coronavirus, COVID-19

Update on Coronavirus, COVID-19

This page is being monitored and updated regularly. Please check back for additional updates. As information on the novel coronavirus disease, COVID-19, dominates our daily lives, individuals with sarcoidosis and their loved ones are bound to have questions about the...
Memorial Monday: A Day to Honor Those Gone Too Soon

Memorial Monday: A Day to Honor Those Gone Too Soon

On Monday, April 27,2020, the sarcoidosis community will be honoring the lives of the sarcoidosis warriors that were lost too soon. Memorial Monday is a day that reminds our community why it is important that the fight to stop sarcoidosis must prevail. To pay tribute...
Use Amazon Smile to support FSR

Use Amazon Smile to support FSR

Did you know you can support FSR’s mission through your Amazon purchases?FSR strongly encourages all individuals to practice social distancing at this time, especially those with compromised immune systems due to sarcoidosis or medications related to...
RESCHEDULED: Chicago Patient Summit

RESCHEDULED: Chicago Patient Summit

FSR is announcing the postponement and rescheduling of our Chicago Patient Summit that was initially scheduled for April 3-5, 2020 in Chicago, IL. The event has been rescheduled for August 30 – September 1, 2020.

Online Support at Your Fingertips: Inspire Introduces an App!

Online Support at Your Fingertips: Inspire Introduces an App!

Since sarcoidosis is a rare disease, it can be hard for patients to find a support system who understands what they are going through. For that reason, FSR started a Stop Sarcoidosis support group on Inspire, a health and wellness-focused online community. Patients...
5 Ways to Celebrate #GivingTuesday with FSR

5 Ways to Celebrate #GivingTuesday with FSR

Giving Tuesday is just around the corner! For those who don’t know, this event happens annually on the Tuesday after Thanksgiving. Giving Tuesday is essentially the nonprofit world’s version of “Black Friday” or “Small Business...
FDA Grants Breakthrough Status to Ofev

FDA Grants Breakthrough Status to Ofev

Exciting news for the sarcoidosis community!On October 10, 2019, Boehringer Ingelheim announced that the US Food and Drug Administration (FDA) granted Breakthrough Therapy Designation to Ofev (nintedanib), which is a new drug that is believed to slow the progression...