Our mission is to stop sarcoidosis — join us.
The sarcoidosis community needs your help to put an end to this disease. When you participate, advocate, and donate, you advance the fight to find the cure and lead us toward a world without sarcoidosis.
John Carlin is an award-winning news anchor currently working at WSLS 10 in Roanoake, Virginia. He's also an avid cyclist, a strong pillar of his local community, a loving husband and father, and a sarcoidosis warrior. Several years back, John began...read more
Rare disease patients find out soon after a diagnosis that they'll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even though...read more
Allison Hawley- like so many other sarcoidosis patients- has had a tough time getting a diagnosis. Her journey has been filled with misdiagnoses, complicated tests and procedures, and doctors scratching their heads. Allison attended the FSR Patient Conference in...read more
The Foundation for Sarcoidosis Research prioritizes the long-term care of sarcoidosis patients and supports healthcare legislation that acknowledges and protects the needs of our community. As such, we feel compelled to voice our concern when pending legislation could...read more