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Act Now to Protect Drug Development

Act Now to Protect Drug Development

Act Now to Protect Drug Development.   As part of the budgeting process, Congress is discussing cutting back the Orphan Drug Tax Credit for pharmaceutical companies. Most of the drugs in sarcoidosis are not FDA-approved for sarcoidosis, but are repurposed from...
It’s All About the Journey

It’s All About the Journey

I have sarcoidosis and am a Patient Advocate.     In the Fall of 2020, I was diagnosed with neurosarcoidosis. The biggest question I struggled with after my diagnosis was, “What do I do now?”. My life was completely upended. I struggled with new treatments...