FSR and the Global Genes Foundation Alliance Leadership Council
FSR is excited to announce that our Executive Director, Ginger Spitzer, is now on the Global Genes Foundation Alliance Leadership Council!
Category: News
Sarcoidosis PSA Will Air in 10 Major US Cities on NBC
Last year, NBC helped us raise awareness about sarcoidosis during April by showing a 30-second PSA regularly in 9 major US cities throughout the month for Sarcoidosis Awareness Month. This year, they’re recommitting to raising awareness, and we’re thrilled...
Patient Survey Leads to New Treatment Guidelines
Early last year, we asked our community to tell us which treatment outcomes are most important to sarcoidosis patients. You and hundreds of other patients around the world responded! The survey, developed by a European Respiratory Society (ERS) working group which...
New Clinical Trial Opportunity in Gainesville, FL!
Diagnosed sarcoidosis patients in the Florida and Georgia regions are encouraged to participate in a new Clinical Trial Opportunity with the University of Florida in Gainesville! The purpose of this study is to investigate fibrocytes, specific cells in the blood which...
PRESS RELEASE: aTyr Pharma announces pulmonary sarcoidosis trial in collaboration with FSR
aTyr Pharma Announces Initiation of Phase 1b/2a Study of ATYR1923 in Patients with Pulmonary Sarcoidosis and Collaboration with the Foundation for Sarcoidosis Research (FSR) FSR Clinical Studies Network to assist with clinical site initiation to expedite...
Zach Kerr spotlights FSR for My Cause, My Cleats
Denver Broncos defensive end Zach Kerr will be wearing purple kicks for the next few weeks to show his support in raising awareness about sarcoidosis. Zach selected FSR as his charity of choice for the NFL’s My Cause, My Cleats campaign this year. Zach’s...
Orphan Drug Act: Celebrating 35 Years
The Orphan Drug Act has been helping sarcoidosis patients receive better treatment options for the last 35 years. Help us ensure its future!
Interview to Understand Experience Living with Sarcoidosis
A doctoral student at Northcentral University is doing a research study about the experience of living with sarcoidosis. Participants must: Be age 21 years or older Have had sarcoidosis for at least one year Or Live with a family member for at least one year that has...
Application Cycle for 2019-20 Patient Ambassador Program Term Now Open!
We are thrilled to announce that applications are now being accepted for the 2019-2020 term of the FSR Patient Ambassador Program.
Clinical Studies Network (2019 Update)
In 2019 the Clinical Studies Network (CSN) will conduct a study focused on cardiac sarcoidosis at all 12 of our sites.