Category: Research

Interview to Understand Experience Living with Sarcoidosis

Interview to Understand Experience Living with Sarcoidosis

A doctoral student at Northcentral University is doing a research study about the experience of living with sarcoidosis. Participants must: Be age 21 years or older Have had sarcoidosis for at least one year Or Live with a family member for at least one year that has...
Will You Help Us Find a Cure for Sarcoidosis?

Will You Help Us Find a Cure for Sarcoidosis?

FSR strives to bring patients the most up-to-date information about sarcoidosis, but we can’t do that without you. Besides being a rare disease, affecting only 200,000 people in the U.S., sarcoidosis is commonly misdiagnosed. The limited data that does exist doesn’t...
FSR Hosts Clinical Studies Network Meeting in Chicago

FSR Hosts Clinical Studies Network Meeting in Chicago

The members of the FSR Clinical Studies Network met on June 29th in Chicago, Illinois to determine and plan the next CSN Core Study as well as identify opportunities for additional Elective Studies via industry. Members traveled from all across the US, as well as...
Penn Medicine’s Sarcoidosis App Now on Android!

Penn Medicine’s Sarcoidosis App Now on Android!

We received a great deal of feedback asking when the app would be available on android devices. It has always been our goal to have the app available to everyone to give equal access to these sarcoidosis resources, as well as to help sarcoidosis researchers obtain the...
A Year in Review: FSR’s Research Initiatives

A Year in Review: FSR’s Research Initiatives

This year, FSR made some huge progress on our research agenda. This coming year promises to build on that progress, with new developments on several major projects that will lead to better understanding of the disease and therapies, more interest on the part of young...