Blog
Steroids and Sarcoidosis Town Hall Virtual Meeting
Please join John Carlin, FSR Patient Advocate and host of the Sarc Fighter podcast, on Tuesday, April 27, at 11:00AM CST as he moderates this panel discussion on sarcoidosis and steroids.
Rare Disease Legislative Advocacy
Rare Disease Legislative Advocacy By Jim Kuhn, FSR Patient Advocate, FSR Patient Navigator, and FSR Patient Advisory Committee Member In February 2018, I did my first ever grass-roots lobbying, when my wife and I met with legislative aides of the Congressional...