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Save the Date for our Virtual Patient Education Summit – June 12-13th!

Apr 20, 2021

Click here to register now! Join us for this year’s Virtual Patient Education Summit, June 12-13, 2021! Our summits in September and November of 2020 were incredibly successful. This year we will be offering a unique two-day experience on a fun, interactive...

Topics: FSR Events/ Online Educational Content/ Patient Voices

Why Sarcoidosis Awareness Month Matters

Apr 14, 2021

As the nation’s leading nonprofit organization dedicated to sarcoidosis, we believe in the power of community and that game-changing results in sarcoidosis research can be made when we work together. Sarcoidosis is a rare disease, all too often misdiagnosed and...

Topics: Living with Sarcoidosis/ Patient Voices

Steroids and Sarcoidosis Town Hall Virtual Meeting

Mar 31, 2021

Please join John Carlin, FSR Patient Advocate and host of the Sarc Fighter podcast, on Tuesday, April 27, at 11:00AM CST as he moderates this panel discussion on sarcoidosis and steroids.

Topics: FSR Events

Rare Disease Legislative Advocacy

Mar 2, 2021

Rare Disease Legislative Advocacy By Jim Kuhn, FSR Patient Advocate, FSR Patient Navigator, and FSR Patient Advisory Committee Member In February 2018, I did my first ever grass-roots lobbying, when my wife and I met with legislative aides of the Congressional...

Topics: Advocacy

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Save the Date for our Virtual Patient Education Summit – June 12-13th!

Why Sarcoidosis Awareness Month Matters

Steroids and Sarcoidosis Town Hall Virtual Meeting

Rare Disease Legislative Advocacy

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