Category: Community Partners
NORD offers financial assistance to rare community for COVID-19
FSR is a proud member of NORD, the National Organization for Rare Disorders. On April 15th, NORD announced the creation of a program to provide financial assistance for members of the rare disease community who have been impacted by COVID-19. Read the release below or...
Making Homemade Masks for National Jewish Health
Help FSR support our partners in the healthcare system during COVID-19Like many healthcare systems across the country and world right now, FSR’s friends at National Jewish Health in Colorado are experiencing a shortage of Personal Protective Equipment, or PPEs....
WEBINAR: A Rare Response: Addressing the COVID-19 Pandemic
FSR is a proud member of the National Organization for Rare Disorders, or NORD. Our friends at NORD are hosting an informational webinar about rare disease patients and the COVID-19 pandemic.A Rare Response: Addressing the Covid 19 PandemicTuesday, March 31, 20202:00...
Better Breather Clubs Welcome Sarcoidosis Warriors this April!
FSR is excited to once again be partnering with our friends at the American Lung Association for Sarcoidosis Awareness Month this April! This year, our partnership will extend to ALA’s Better Breathers Clubs, which are support groups for patients and caregivers...
FSR Attends Hill Day
On Oct. 2nd and 3rd FSR’s Executive Director, Ginger Spitzer, was able to travel with PAR to Washington D.C for ATS Hill Day.
Become a Sarcoidosis Advocate in Your Hometown!
Rare disease patients find out soon after a diagnosis that they’ll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even though...
Find Your Community: Connecting with Other Chronic Illness Warriors
Written by Margot Hahn Communications Intern At FSR, we aim to find avenues that connect sarcoidosis patients across the United States and abroad. People living with sarcoidosis are no stranger to the degree of unknown information about the disease and its effects....
Educating the Public with RareInsights
Our partners at NORD recently launched a new initiative called RareInsights: RareInsights™ is a NORD® initiative to help expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families. Through this initiative,...