What is Giving Tuesday? Giving Tuesday comes on the heels of the infamous Black Friday and other designated shopping days like “Small Business Saturday” and “Cyber Monday.” However, instead of focusing on buying things, Giving Tuesday is all about giving back! It’s an...
As a patient, you are key to advancing research! If you have- or think you might have- pulmonary hypertension along with your sarcoid, you may qualify for a nation-wide clinical trial where you will be financially compensated. Now with new clinical trial sites...
UCSF Sarcoidosis Studies are Recruiting! San Francisco based studies are looking for people diagnosed with sarcoidosis in or near the bay area to join us in learning more about this disease. All studies are currently observational (no interventions), looking closely...
Time is running out for an important piece of legislation that has recently stalled in the Senate. The 21st Century Cures Act was passed by the House in July 2015, but is now at risk of expiring before the Senate can approve it. A large portion of the act focuses on...
Guest post written by Sue Bhalla As the latest industry statistics show, an estimated 90% of drugs that reach the testing phase of clinical trials never end up marking the finish line and attaining FDA approval. This leaves potentially useful drug therapies far from...
We are excited to announce that Ginger Spitzer, Executive Director for the Foundation for Sarcoidosis Research, will present a session at the 44th Annual NBNA Institute and Conference. FSR recognizes sarcoidosis to be a debilitating disease for which there is limited...
Right now, it’s almost impossible to go a full day without hearing or reading about Pokemon Go. Nintendo has created a big buzz by bringing the 90’s game back in the form of a phone app. A lot of media attention focuses on negative stories: distracted players are...
Global nonprofit Foundation for Sarcoidosis Research announced today that it will be attending the upcoming Rare Disease Week on Capitol Hill from February 23 -27. They will be joining the Rare Disease Legislative Advocates to learn about how they can advocate for...
February 28th is Rare Disease Day! We partnered with our online Inspire community to conduct a survey to help better understand the quality of life for our patients. Here are some interesting...
FSR is pleased to support the research of Dr. Caroline Broos by awarding her the American Thoracic Society Abstract Scholarship during the ATS Conference in May 2013. We are grateful for Caroline’s research and confident her work will help promote the need for other...
