FSR Sarcoidosis Support Group In response to feedback received and a growing need to support patients where they are, FSR has launched an online peer-led support group for people living with sarcoidosis. FSR also offers additional, more localized community group...
Addressing Barriers to Care to Improve the Lives of Those with Sarcoidosis: Why I Support FSR’s African American Women and Sarcoidosis Campaign I was diagnosed with sarcoidosis over 8 years ago, starting in my lungs & lymph nodes, then shortly after it...
Act Now to Protect Drug Development. As part of the budgeting process, Congress is discussing cutting back the Orphan Drug Tax Credit for pharmaceutical companies. Most of the drugs in sarcoidosis are not FDA-approved for sarcoidosis, but are repurposed from...
I have sarcoidosis and am a Patient Advocate. In the Fall of 2020, I was diagnosed with neurosarcoidosis. The biggest question I struggled with after my diagnosis was, “What do I do now?”. My life was completely upended. I struggled with new treatments...
