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How Real-World Data Can Advance Research

How Real-World Data Can Advance Research

Dec 9, 2019

Patients are often looking for ways they can contribute to the advancement of research for their disease. Luckily, clinical trials are a great way for patients to get involved in the research process. As of now, clinical trials are the most effective way to obtain new...

Topics: Research

Traveling the World with Sarcoidosis

Traveling the World with Sarcoidosis

Dec 5, 2019

I had the good fortune this past summer to travel to Norway.  Even more special than being in this gorgeous place was how healthy I felt on this trip.  I was able to take walks with my husband, Jay, and our 15-year old son, Andrew, and paddle a kayak under the...

Topics: Patient Voices

Life After Transplant: Two Stories of Cardiac Sarcoidosis

Life After Transplant: Two Stories of Cardiac Sarcoidosis

Dec 5, 2019

While cardiac sarcoidosis is diagnosed in around 2-5% of sarcoidosis patients in the United States, recent studies are causing some experts to estimate that the number may be as high as 20-30% of sarcoidosis patients in the U.S. Read about two patient’s experiences with cardiac sarc and heart transplants!

Topics: Patient Voices

Host a Team KISS Walk in Your Hometown!

Host a Team KISS Walk in Your Hometown!

Dec 5, 2019

The Foundation for Sarcoidosis Research (FSR) is committed to supporting events that carry out our mission of increasing worldwide awareness for sarcoidosis while raising crucial funds for research. During April, which is Sarcoidosis Awareness Month, our community...

Topics: Team KISS

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