Blog
How Real-World Data Can Advance Research
Patients are often looking for ways they can contribute to the advancement of research for their disease. Luckily, clinical trials are a great way for patients to get involved in the research process. As of now, clinical trials are the most effective way to obtain new...
Traveling the World with Sarcoidosis
I had the good fortune this past summer to travel to Norway. Even more special than being in this gorgeous place was how healthy I felt on this trip. I was able to take walks with my husband, Jay, and our 15-year old son, Andrew, and paddle a kayak under the...
Life After Transplant: Two Stories of Cardiac Sarcoidosis
While cardiac sarcoidosis is diagnosed in around 2-5% of sarcoidosis patients in the United States, recent studies are causing some experts to estimate that the number may be as high as 20-30% of sarcoidosis patients in the U.S. Read about two patient’s experiences with cardiac sarc and heart transplants!