Health insurance can be complicated, especially if you have a rare or chronic disease. Figuring out if and how you can see a certain specialist or how to afford expensive drug therapies can be exhausting,and understanding insurance lingo can feel like learning a...
The National Organization for Rare Disorders is starting a patient-driven campaign to highlight the significant impact that the Affordable Care Act has had on patients with rare and chronic diseases. Some noticeable changes for these patients was prohibiting...
FSR’s partner Inspire, which serves as the platform for our online support group- “Stop Sarcoidosis”- has hit 1 million members! Inspire provides a space for online support communities that allow patients to connect with others like them, regardless of geography....
As a small nonprofit, FSR relies on independent fundraising from generous supporters like you. Independent events have consistently contributed toward FSR’s mission to fund critical sarcoidosis research projects and programs that improve education and care for sarc...
