The National Organization for Rare Disorders is starting a patient-driven campaign to highlight the significant impact that the Affordable Care Act has had on patients with rare and chronic diseases. Some noticeable changes for these patients was prohibiting discrimination against patients with pre-existing conditions, as well as the eliminating the lifetime and annual caps on coverage. If the ACA is repealed without a comparable substitute put in its place, rare and chronic patients risk losing coverage and benefits that are crucial to their health and long-term care. By sharing your story, you can join the campaign and help ensure patients voices are heard!

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