Summer officially starts June 20th! It’s time for backyard barbecues, time with friends and family, and some fun in the sun. There’s no better time to join Team KISS! This summer, sarc warriors and their families are getting together to raise awareness and...
Gretchen Denney developed some strange symptoms around the time she was pregnant with her two children. After the birth of her first child, her daughter, Gretchen noticed an annoying and unexplained rash on her legs. A few years later, pregnant with her second child,...
Firefighters and first responders seem to be at a higher risk of developing sarcoidosis. While this has been a theory by many over the years, like every other aspect of sarcoidosis, research was lacking. As a disease that commonly affects the lungs and shows a...
Health insurance can be complicated, especially if you have a rare or chronic disease. Figuring out if and how you can see a certain specialist or how to afford expensive drug therapies can be exhausting,and understanding insurance lingo can feel like learning a...
FSR is proud to have partnered with the University of Pennsylvania and Penn Medicine to help share a new mobile app for sarcoidosis patients which allows patients to track their symptoms, disease activity and impact, and other quality of life measures, using their...
Dr. Lesley Ann Saketkoo, MD, MPH, Associate Professor of Medicine at Tulane University and a strong believer in the power of mindfulness in overcoming chronic illness, shared some helpful tips for patients to increase mental and physical strength to combat illness....
Below are excerpts from an article written by Dr. Lesley Saketkoo, MD, MPH called “Mind and Body Strength” Gentle Listening to the Softening Breath.” On December 8th, 2016, FSR cohosted a webinar with Inspire and the Scleroderma Foundation, hosted by...
Right now, it’s almost impossible to go a full day without hearing or reading about Pokemon Go. Nintendo has created a big buzz by bringing the 90’s game back in the form of a phone app. A lot of media attention focuses on negative stories: distracted players are...
