Category: Research
Interview to Understand Experience Living with Sarcoidosis
A doctoral student at Northcentral University is doing a research study about the experience of living with sarcoidosis. Participants must: Be age 21 years or older Have had sarcoidosis for at least one year Or Live with a family member for at least one year that has...
Clinical Studies Network (2019 Update)
In 2019 the Clinical Studies Network (CSN) will conduct a study focused on cardiac sarcoidosis at all 12 of our sites.
Will You Help Us Find a Cure for Sarcoidosis?
FSR strives to bring patients the most up-to-date information about sarcoidosis, but we can’t do that without you. Besides being a rare disease, affecting only 200,000 people in the U.S., sarcoidosis is commonly misdiagnosed. The limited data that does exist doesn’t...
FSR Hosts Clinical Studies Network Meeting in Chicago
The members of the FSR Clinical Studies Network met on June 29th in Chicago, Illinois to determine and plan the next CSN Core Study as well as identify opportunities for additional Elective Studies via industry. Members traveled from all across the US, as well as...
FSR Staff Presents at International Sarcoidosis Conference
Three FSR team members presented at the World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) Annual Meeting in Crete, Greece this month. The conference was an annual meeting between the leading experts in sarcoidosis research and clinical care...
Penn Medicine’s Sarcoidosis App Now on Android!
We received a great deal of feedback asking when the app would be available on android devices. It has always been our goal to have the app available to everyone to give equal access to these sarcoidosis resources, as well as to help sarcoidosis researchers obtain the...
Sarcoidosis Treatment and Outcomes: What is Most Important to You?
As an organization dedicated to optimizing patient outcomes from treatments for sarcoidosis, FSR is always looking for ways to help ensure that the patient voice is represented in research and projects relating to sarcoidosis. As part of these efforts, we are sharing...
Nicotine Treatment for Pulmonary Sarcoidosis: A Clinical Trial Pilot Study
Disclaimer: This approach to treatment is still under active investigation to confirm it is safe for patients and effective when used in conjunction with other approved therapies. We strongly discourage use of nicotine in any form, including tobacco smoking, smokeless...