Category: Take Action
Wear Purple this Friday, April 13!
As we’ve done in past years, we’re encouraging sarc warriors and their loved ones to show off their purple pride this April for Sarcoidosis Awareness Month! Whether you’re decked out in head-to-toe purple or just sporting a subtle accent, find a way...Apply for a Team KISS Walk Leader Grant!
Every year, FSR’s Team KISS hosts our Annual Team KISS 5K Run/Walk event in a major US city. On April 28th, 2018 this year’s official event will be held in the beautiful city of Atlanta, Georgia! We’d love to have you join us in Atlanta, however we know...
Take Action: AHCA Will Remove Key Protections for Pre-Existing Conditions
The Foundation for Sarcoidosis Research is sharing this urgent call to action from the National Organization for Rare Disorders (NORD): WE NEED YOU to call, email, tweet, and message your Senators… Urge them to stand up for the millions of children and adults...
Taking Steps Towards A Cure
If you were one of over 500 people worldwide who joined FSR for our annual K.I.S.S. 5K and virtual walks, you are part of the movement that will put sarcoidosis on the map – the same map as other big name diseases with national walk events that bring in millions...
FSR Speaks to Congress about Sarcoidosis Awareness
For Rare Disease Week on Capitol Hill, FSR co-cohosted a congressional briefing on the importance of recognizing April as Sarcoidosis Awareness Month. Sponsored by New York Representative Lee Zeldin’s office, the briefing had a great turnout, with many offices sending...
Get Featured on FSR’s Social Media for Awareness Month!
April is Sarcoidosis Awareness Month- help us spread the word! Submit a picture of yourself with a sign about awareness month and you could be featured on FSR’s social media during the month of April. Print one of the signs from below, or use the empty template...
They’re Here- Get Your K.I.S.S. T-Shirt Before It’s too Late!
With April 22nd just under a month away, there’s still time to register for both the Official Team K.I.S.S. 5K or a virtual walk location near you! Not only that, but if you register by Wednesday, April 5th, you can guarantee that your Team K.I.S.S. tech t-shirt...Join the Team: Ideas for Fundraising
As a small nonprofit, FSR relies on independent fundraising from generous supporters like you. Independent events have consistently contributed toward FSR’s mission to fund critical sarcoidosis research projects and programs that improve education and care for sarc...
21st Century Cures Passed…What Comes Next?
The final version of the 21st Century Cures Act was signed into law by Obama on Dec. 13, 2016. The bill has 17 titles with roughly 300 subsections, addressing a wide variety of current needs in health and medicine. The campaign #CuresNow helped build the momentum that got the bill passed, but how soon can patients really expect results- especially when there are almost 6,500 rare diseases with no known cure?