All of our patients ambassadors have a different experience and a different reason for becoming an ambassador. Find out in their own words what our patients ambassadors do and why they became involved with this program.
FSR strives to bring patients the most up-to-date information about sarcoidosis, but we can’t do that without you. Besides being a rare disease, affecting only 200,000 people in the U.S., sarcoidosis is commonly misdiagnosed. The limited data that does exist doesn’t...
Rare disease patients find out soon after a diagnosis that they’ll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even though...
This year with the help of awesome sarcoidosis warriors all across the US, we were able to obtain at least 28 state level proclamations designating April as Sarcoidosis Awareness Month, as well as at least 12 local proclamations as well! Learn more about proclamations...
April might be over, but the fight against sarcoidosis isn’t! While April is Sarcoidosis Awareness Month, here at the Foundation for Sarcoidosis Research we have education, advocacy and research efforts going all year long! We invite you to join us in the fight-...
Each year during Sarcoidosis Awareness Month, we take the time to remember the lives lost too soon to this terrible disease. On this Memorial Monday, we mourn the loss of the fallen snowflakes and remind ourselves why it’s so important to get involved in the...