The FSR Clinical Studies Network (FSR-CSN) brings together an international consortium of world-renowned medical institutes and researchers for unprecedented collaboration in studies and drug trials toward the treatment of sarcoidosis. The goals of the network are to:

  • collaborate for studies,
  • test the efficacies of treatment approaches,
  • measure the impact of re-purposed drug treatments,
  • and rapidly screen new promising compounds that emerge from biomedical research, significantly decreasing the time and amount of money needed to develop them.

FSR-CSN provides a forum to address a range of important but unanswered questions in sarcoidosis, facilitates a move towards broader consensus about clinical endpoints, and enables pharmaceutical industry entrance into the sarcoidosis space with less perceived risk. As an active, working entity, the Network provides a valuable resource for industry, academia, and individual researchers.

The FSR Clinical Studies Network (FSR-CSN) is led by a Steering Committee composed of the Principal Investigators from each participating institution. FSR-CSN is composed of 8 sites, two international and 6 U.S.-based, and FSR intends to expand the size of the CSN as funding allows.

The FSR- CSN currently is conducting two internal studies and several industry-initiated. All results will be published in professional and/or other publications and reports.

FSR-CSN SITES
SiteLocationPrimary Investigator (Awardee)
Albany Medical CollegeAlbany, NYJudson, Marc
Hôpital AvicenneBobigny, FranceValeyre, Dominique
Cleveland ClinicCleveland, OHCulver, Daniel
Johns Hopkins MedicineBaltimore, MDChen, Edward
National Jewish HealthDenver, COHamzeh, Nabeel
St. Antonius HospitalNieuwegein, NetherlandsGrutters, Jan
University of CincinnatiCincinnati, OHBaughman, Robert
University of Illinois Hospital & Health Sciences SystemChicago, ILSweiss, Nadera
ILD Care Foundation; WASOG President(not a site)Drent, Marjolein: CSN Steering Committee Chair

Learn about our search for a sarcoidosis model.