Tag: Patient Story
Life After Transplant: Two Stories of Cardiac Sarcoidosis
While cardiac sarcoidosis is diagnosed in around 2-5% of sarcoidosis patients in the United States, recent studies are causing some experts to estimate that the number may be as high as 20-30% of sarcoidosis patients in the U.S. Read about two patient’s experiences with cardiac sarc and heart transplants!
DENIED: How to Manage the Emotional Ups and Downs of Battling your Insurance
“The Actemra has been denied. We will start the appeals process.” These two sentences glare at me from the patient portal message center. I feel exposed and vulnerable. Here we go again. My doctor says I need this medication, but my insurance is saying “NO.”I was...
Life as a Sarc Warrior: Making Our Medical System Work for You
Life with sarcoidosis can be hard. This is why we reached out to you, our patients, for advice on how to deal with our medical system.
Life as a Sarc Warrior: Quality of Life
Life with sarcoidosis can be hard. This is why we reached out to you, our patients, for advice on living a healthier lifestyle.
A Sarc Warrior’s Perspective on Pulmonary Rehabilitation
Many sarcoidosis patients struggle with lung function which can make exercise seem impossible. Programs like Pulmonary Rehabilitation help patients with lung diseases improve lung function, reduce symptoms, and improve quality of life.
Life as a Sarc Warrior: Dealing with Financial Concerns
Life with sarcoidosis can be hard. This is why we reached out to you, our patients, to better understand the financial hardships that come with sarcoidosis.
50 States, 5,000 Miles, $50,000: Cycling Against Sarcoidosis
The husband of a sarc warrior is planning an ambitious fundraiser, cycling 5,000 miles to raise $50,000 for sarcoidosis research.
Life as a Sarc Warrior: Advice on Friends and Family
Life with sarcoidosis can be hard and no one knows that better than our patients. This is why we reached out to you, our patients, for advice.
Ask The Ambassadors: How to Navigate Medical Expenses
We reached out to our patient ambassadors and asked for their advice on navigating the medical expenses that come with sarcoidosis.