Aug 29, 2018
While all manifestations of sarcoidosis can causes physical symptoms, neurosarcoidosis in particular can come with serious mobility challenges. Mark Taylor is a neurosarcoidosis patient from New Zealand who is overcoming the challenges of neurosarcoidosis to raise...Topics: Patient Voices
Nov 23, 2017
Last year we asked FSR Ambassador, Mark Landiak to share what he was grateful for during the holiday season. A year later it all still rings true. When FSR asked me if I’d write a blog on what I’m grateful for, I almost didn’t know where to start. I’m often up...Topics: Patient Voices
Nov 7, 2017
Sarcoidosis patient and FSR Board of Directors member Karen Duffy has published her second book full of wit and wisdom on living with chronic illness. “Backbone: Living with Chronic Pain without Turning into One” is currently the #1 Best Seller in the...Topics: News/ Patient Voices
Oct 2, 2017
As a relatively younger woman (ok …in my 40’s, but that is all I am saying!), I certainly do not spend a lot of time thinking about my own mortality. And yes, I DO battle sarcoidosis every single day, but I refuse to let this disease dictate my spirit of life and...Topics: Patient Voices
Jul 10, 2017
Allison Hawley- like so many other sarcoidosis patients- has had a tough time getting a diagnosis. Her journey has been filled with misdiagnoses, complicated tests and procedures, and doctors scratching their heads. Allison attended the FSR Patient Conference in...Topics: Patient Voices
