Tag: Patient Story

Leaving My Legacy

Leaving My Legacy

As a relatively younger woman (ok …in my 40’s, but that is all I am saying!), I certainly do not spend a lot of time thinking about my own mortality. And yes, I DO battle sarcoidosis every single day, but I refuse to let this disease dictate my spirit of life and...

The Long Road to Diagnosis

Allison Hawley- like so many other sarcoidosis patients- has had a tough time getting a diagnosis. Her journey has been filled with misdiagnoses, complicated tests and procedures, and doctors scratching their heads. Allison attended the FSR Patient Conference in...