The FSR Clinical Studies Network (FSR-CSN) brings together an international consortium of world-renowned medical institutes and researchers for unprecedented collaboration in multi-site studies and drug trials in sarcoidosis research. The goals of the network are to:

  • collaborate for studies,
  • test the efficacies of treatment approaches,
  • measure the impact of re-purposed drug treatments,
  • and rapidly screen new promising compounds that emerge from biomedical research, significantly decreasing the time and amount of money needed to develop them.

FSR-CSN provides a forum to address a range of important but unanswered questions in sarcoidosis, facilitates a move towards broader consensus about clinical endpoints, and enables pharmaceutical industry entrance into the sarcoidosis space with less perceived risk. As an active, working entity, the Network provides a valuable resource for industry, academia, and individual researchers.

Requests for Applications is now closed for the second grant period. 

The FSR Clinical Studies Network (FSR-CSN) is led by a Steering Committee composed of the Principal Investigators from each participating institution. FSR-CSN 2018 – 2020 cycle is composed of 12 sites, two international and 10 U.S.-based.

Work of the FSR- CSN to date has included two internal studies and several industry-initiated trials. All results will be published in professional and/or other publications and reports.

FSR-CSN SITES, SECOND GRANT PERIOD 2018 – 2020
SiteLocationPrimary Investigator (Awardee)
Albany Medical CollegeAlbany, NYJudson, Marc
Cleveland ClinicCleveland, OHCulver, Daniel
Medical University of South CarolinaCharleston, SCJames, Ennis
National Jewish HealthDenver, COMaier, Lisa
Northwestern University Feinberg School of MedicineChicago, ILSporn, Peter
Papworth HospitalCambridge, United KingdomThillai, Muhunthan
St. Antonius HospitalNieuwegein, NetherlandsVeltkamp, Marcel
University of CincinnatiCincinnati, OHBaughman, Robert
University of Illinois College of Medicine at ChicagoChicago, ILSweiss, Nadera
University of Iowa Health CareIowa City, IAHamzeh, Nabeel
University of PennsylvaniaPhiladelphia, PALigon, Colin
University of Washington Medical CenterSeattle, WARaghu, Ganesh

 

FSR-CSN SITES, FIRST GRANT PERIOD 2016 – 2018
SiteLocationPrimary Investigator (Awardee)
Albany Medical CollegeAlbany, NYJudson, Marc
Hôpital AvicenneBobigny, FranceValeyre, Dominique
Cleveland ClinicCleveland, OHCulver, Daniel
Johns Hopkins MedicineBaltimore, MDChen, Edward
National Jewish HealthDenver, COMaier, Lisa
St. Antonius HospitalNieuwegein, NetherlandsGrutters, Jan
University of CincinnatiCincinnati, OHBaughman, Robert
University of Illinois Hospital & Health Sciences SystemChicago, ILSweiss, Nadera
ILD Care Foundation; WASOG President(not a site)Drent, Marjolein: CSN Steering Committee Chair

Learn about our search for a sarcoidosis model.