This year, FSR made some huge progress on our research agenda. This coming year promises to build on that progress, with new developments on several major projects that will lead to better understanding of the disease and therapies, more interest on the part of young...
It’s that time of year again- no matter what holidays you celebrate, it’s the season for giving and everyone’s stocking up on gifts for friends, family, and themselves too. If you’re shopping for any of these gifts online, did you know that you...
Our online support community has continued to grow over the past few years, reaching 40,000 online members this month! The Stop Sarcoidosis support community is hosted on the platform Inspire, which provides a space for online support communities that allow patients...
Now that it’s December, it’s high time to think about your year-end charitable gifts—and to make sure that you time them to your best advantage. The end of the year is the most popular time for charitable gifts partly because it’s the “giving season” and a great...
FSR Executive Director Ginger Spitzer attended the 2017 ATS Public Advisory Roundtable Planning Meeting on Nov 17-18 in Miami. Our membership in PAR allows FSR to continue our work toward advocating for patients and ensuring the patient perspective into clinical and...
Sarcoidosis patient and FSR Board of Directors member Karen Duffy has published her second book full of wit and wisdom on living with chronic illness. “Backbone: Living with Chronic Pain without Turning into One” is currently the #1 Best Seller in the...
The Forum of International Respiratory Societies (FIRS) has created a charter to recognize September 25th as World Lung Day. The purpose of the charter is to draw attention to the global issue of respiratory health and the increasing challenges that individuals with...
The application for this grant period is now closed. Learn more about the CSN. The FSR-CSN is a collaborative network of sites facilitating multi-site trials and studies in sarcoidosis research. The Network is focused on highly innovative projects with the intent of...
The Foundation for Sarcoidosis Research recently signed two petitions to show our support for important polices that directly impact many sarcoidosis patients. FSR makes sure to stay informed on policies that will affect the rare disease community and our patient...
Last week, the FSR staff enjoyed a visit from our Co-Founders Andrea and Reading Wilson, as well as Board of Directors Member Louise Perkins. The three board members joined staff for a strategic planning session focusing on the organization’s growth and...
