FSR is excited to share some breaking news from the world of rare disease research that could have a huge impact on the future of diagnosing and treating rare diseases worldwide. The International Rare Diseases Research Consortium (IRDiRC) has released an ambitious...
Tracking your fitness may be a way to help manage symptoms and side effects for sarcoidosis patients. As many sarc warriors know, it can be extremely difficult to stay active when you’re living with sarc. Between the chronic pain, fatigue, shortness of breath,...
The first ever meeting of the FDA’s new Patient Engagement Advisory Council (PEAC) will be this fall, as they host their first open forum focusing on the topic of clinical trials. This council came about due to legislation passed in 2012 that required the FDA to...
The Foundation for Sarcoidosis Research prioritizes the long-term care of sarcoidosis patients and supports healthcare legislation that acknowledges and protects the needs of our community. As such, we feel compelled to voice our concern when pending legislation could...
The Foundation for Sarcoidosis Research is sharing this urgent call to action from the National Organization for Rare Disorders (NORD): WE NEED YOU to call, email, tweet, and message your Senators… Urge them to stand up for the millions of children and adults...
Did you know, you have access to all of your health data online? 41% of Americans have never taken advantage of their ability to see this information, and 27% reported not even being aware they had the right to! We invite you to learn more about FasterCures’ new...
Ginger Spitzer, the Executive Director for the Foundation for Sarcoidosis Research, will be a panelist at this year’s Drug Information Association’s Annual Conference. The DIA 2017 Annual Meeting is the largest, longest-running event in the life sciences...
The Foundation for Sarcoidosis Research is committed to fostering the growth of medical professionals who are interested in research and clinical work related to sarcoidosis, inflammatory diseases, and interstitial lung disease. The six recipients of our ATS PAR...
..but our fight isn’t over. It may be the end of Sarcoidosis Awareness Month, but unfortunately patients and their loved ones will continue to face this devastating disease every single day of the year. Thank you to all who joined us in raising awareness this...
U.S. Senate Democratic Leader Charles E. Schumer, with Kerry in the background Senator Debbie Stabenow (MI) FSR Patient Ambassador Kerry was in Washington, D.C. last month attending a press conference held by Senate Democrats. The press conference focused on pending...
